Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Reintroducing Dairy


scottyfeelsick

Recommended Posts

scottyfeelsick Rookie

Thanks so much to everybody on this forum. You have all helped me out so much, and helped me to see the light at the end of the tunel.

My question is about reintriducing dairy after being gluten free for a few months. I showed a mild reaction to dairy on an enterolab test but never felt it personally. But went dairy free a few months ago at the same time as gluten because it sounds so common for people to have a temporary problem with it.

How have you felt reactions to it? was it right away, or did it take a day or two to feel a reaction? did it feel like a GI thing or more of a fatigue thing?

How long did you wait before you tried it? Did it seem like long enough or not?

How should I try it? With just a little butter at first, or go kinda crazy with everything?

Does anybody tolerate dairy in baked goods, like small amounts of butter and cream, but does not tolerate dairy like milk and yogurt and stuff?

Today, about 2 hours ago, I had a brownie that had butter and cream in it, and I feel amazingly better than I have all day. I'm sure the suger rush might have something to do with it, but still.... first dairy in months and no weird feelings in my stomach or nothing. Could I be o.k.? Am I having wishfull thinking?

If anybody has any experience with this or any thoughts about it I would really appreciate it. Thanks so much for all your help. scotty


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gfmolly Contributor

Hi Scotty,

I waited a full year before I tried dairy and now I am 1 year and two months out and able to tolerate low-lactose products only. I can have most hard cheeses in small amounts, butter and yogurt. that seems to be all, but everyone is different based on the amount of damage before diagnosis.

I react by the next morning in the form of D, and if I really react, my tummy gets very noisy almost immediately following consumption.

Hope that helps!

Molly

scottyfeelsick Rookie

GFMolly, Thanks so much for letting me know about your personal experience with it. I really do appreciate it.

I would love to hear from anybody else also, to see what kind of reactions people have had. Like if some people feel like they have been glutened or if it is a different kind of feeling. Just what it felt like for them to have a reaction to dairy, and how long before they knew if they had a reaction or not.

Also has anybody had a good experience(no reactions) to reintroducing dairy sooner than a year, like only a few months after going gluten free?

Thanks again for everybodys help on this forum. scotty

mushroom Proficient
GFMolly, Thanks so much for letting me know about your personal experience with it. I really do appreciate it.

I would love to hear from anybody else also, to see what kind of reactions people have had. Like if some people feel like they have been glutened or if it is a different kind of feeling. Just what it felt like for them to have a reaction to dairy, and how long before they knew if they had a reaction or not.

Also has anybody had a good experience(no reactions) to reintroducing dairy sooner than a year, like only a few months after going gluten free?

Thanks again for everybodys help on this forum. scotty

My reactions to lactose came before I recognized the gluten problems. While the gluten made me gassy and bloated, the lactose (milk, cream, ice cream, frozen yogurt --not really yogurt at all) would case ED within an hour or two.

For a while after going gluten-free I cut out cheese, sour cream and yogurt as well, but have added them back in without problem although I think the cheese does make my RA worse. However, after six months gluten-free I have not been game to try cream or ice cream. A little milk in my cappuccino (I ask for all froth) doesn't affect me.

Neroli

scottyfeelsick Rookie

Mushroom, thanks alot for your reply, I really appreciate hearing about anybody else's experiences with all of this stuff.

I don't mean to sound ignorant, but I am kinda new to forums in general(this is the first one I have ever posted on). But, does "ED" refer to the big D? and is "RA" refering to arthritis?

Thanks again for all your help, scotty.

ive Rookie

My husband is gluten intolerant as well (Enterolab test is positive) and I asked him not to eat dairy for 3 months (it was hard, he really loves dairy). So 3 months were up this Saturday and he ate some sour cream and so far so good. He is reintroducing dairy to his diet, but very slowly, starting with sour cream, next week he will start cottage cheese if everything will be fine. He had mostly GI symptoms before diagnosis, but it looks like he is healed enough now.

As for me, I could not tolerate any dairy well before my gluten intolerance diagnosis, first it was lactose intolerance (2 years ago) and then in a year I couldn't tolerate any dairy at all. Mostly it was GI symptoms. I will not attempt to reintroduce dairy into my diet any time soon. I think I will wait another year or so.

I would suggest trying to introduce dairy slowly, and start with low-lactose / fermented dairy products, such as sour cream, yougurt, cottage cheese, butter. Do not drink plain milk just yet. Also start slowly, i.e. eat yougurt for breakfast one day and then do not eat dairy for 3 days and notice if you have any reactions.

roxie Contributor

I tried to add dairy back into my diet after being gluten free for about 4 months now (I think). I tried the Breyers extra creamy nonfat chocolate ice cream. There were all kinds of weird ingredients in the ice cream so I called Breyers, and they said that it was gluten free if the ingredients did not specifically say "wheat". I had a good sized bowl of the ice cream and I was very sick for 2 whole days! I felt like I had the full blown flu. However, I seem to be able to tolerate things with very small amounts of dairy.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ksymonds84 Enthusiast
Mushroom, thanks alot for your reply, I really appreciate hearing about anybody else's experiences with all of this stuff.

I don't mean to sound ignorant, but I am kinda new to forums in general(this is the first one I have ever posted on). But, does "ED" refer to the big D? and is "RA" refering to arthritis?

Thanks again for all your help, scotty.

Hi Scotty

I've found through keeping a food journal that dairy was a problem for me but only when I ate heavy cheese sauces such as gluten free alfredo, cheesy enchilada's, or drank a glass of regular milk. I would always have bad gas and a bloaty stomache a couple hours later followed by D the next morning. I have found that I can tolerate hard cheeses and a tablespoon of sour cream on a baked potato. I tried yogurt the other day and got the uncomforable bloat & gas but no D in the morning so I will hold off on yogurt for awhile. I believe RA means rheumetoid Arthritis (probably spelling wrong) but don't know the ED. Don't worry no question here is ignorant, we are all learning!

Nancym Enthusiast

Dairy gives me constipation, it used to counterbalance the dairrhea that wheat gave me, most of the time anyway. :)

Anyway, nowadays my symptoms from dairy are excess mucus production, stuffy nose especially at night and weirdly enough, muscle spasms especially in my neck and shoulder area.

I seem to be ok with butter though.

scottyfeelsick Rookie

Ive, Roxy, Ksymonds84, Nancym; Thanks alot for all of your replies, I really do appreciate it.

So what I am kinda gathering here is that dairy is deffinatelly a digestive issue. Weather it is an upset stomach, or the big D or C, or any other kind of discomfort, it seems to be mostly related to GI issues, and not really the same problems that gluten causes alot of people. (like fatigue, brain fog, physical weakness, severe lethargy, etc..)

Please correct me if I am wrong, but I seem to get the feeling that I should try things like goat yogurt and goat cheese first, and things like kefir, just things a little lower in lactose. And if I don't get any kind of bloating or diarrhea or digestive discomfort, then I am probably ok with that amount, and can move on. If maybe I feel a bit more tired or run down that day, its most likely just an off day or something else not related to the dairy, as long as my stomach and bowels all feel fine still? I know this is not a for sure thing, but am I relatively safe in this assumtion? Please feel free to correct me if I am wrong here. Maybe it is just wishful thinking, because I had a brownie with some dairy in it and felt fine all day afterwards.

Thanks again everybody for all your help, scotty.

ive Rookie
If maybe I feel a bit more tired or run down that day, its most likely just an off day or something else not related to the dairy, as long as my stomach and bowels all feel fine still?

Before I stopped dairy, I would get extremely tired after eating it, even lactose-free milk. We used to do lattes (with lactose-free milk) on the weekends and I would get so sleepy and exhausted after it. It was actually well before my gluten intolerance diagnosis. And I did not have GI symptoms from non-lactose dairy.

So no, you are not safe if you don't have GI symptoms from dairy. Dairy can give you a lot more than GI symptoms, it can give you stuffy nose, fatigue, tiredness, brain fog, skin problems, etc. I guess majority of people have GI symptoms, but some of us do have non-GI symptoms.

scottyfeelsick Rookie

Ive, thanks alot for the info. Thats what I was kinda afraid of, it just seemed to simple to only watch out for GI stuff.

I am sorry to keep asking so many questions, I feel like I am probably getting kinda annoying. But, anyway Ive, could you give me a little bit of an idea of how long after eating dairy that you would notice those symptoms, and how long they would usually last for? Would it usually be pretty consistant, or could you have a different reaction different times? thanks alot, scotty.

Ann1231 Enthusiast
My reactions to lactose came before I recognized the gluten problems. While the gluten made me gassy and bloated, the lactose (milk, cream, ice cream, frozen yogurt --not really yogurt at all) would case ED within an hour or two.

For a while after going gluten-free I cut out cheese, sour cream and yogurt as well, but have added them back in without problem although I think the cheese does make my RA worse. However, after six months gluten-free I have not been game to try cream or ice cream. A little milk in my cappuccino (I ask for all froth) doesn't affect me.

Neroli

I have the same problem with cheese and my RA.

Milk makes it worse as well and also gives me violent D within an hour or two. I am finding that I have to avoid dairy except for butter, which doesn't seem to bother me at all.

Neroli, do you find meat bothers your RA?

RA= rheumatoid arthritis, btw for those who asked.

Ann

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      5

      Awaiting dermatitis herpetiformis confirmation following biopsy

    2. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

    4. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

    5. - catnapt posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,257
    • Most Online (within 30 mins)
      7,748

    KariNoMoreGluten
    Newest Member
    KariNoMoreGluten
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • suek54
      Thank you all for your advice and the dermatitis herpetiformis article. The latter made me realise I had stopped taking my antihistamine, which I will restart today. The Dapsone has cleared the rash entirely but I still get quite a bit itching, absolutely nothing to see though. I know its notoriously hard to clear and its still relatively early days for me.  The iodine issue is very interesting. I do eat quite a bit of salt because I have Addison's disease and sodium retention is an issue. I also have autoimmune hypothyroidism, not sure how a low iodine diet would play into that? Because of my Addison's I am totally steroid dependent, I take steroids 4 x daily and cannot mount any defence against inflammation. I need to increase my meds for that. Now that I know what is wrong I can do just that if Im having a bad day. Life is very sweet, just so damn complicated sometimes! Hey ho, onwards. Thank you again for your advice.  
    • trents
      So, essentially all of the nutrition in the food we eat is absorbed through the villous lining of the small bowel. This is the section of the intestinal track that is damaged by celiac disease. This villous lining is composed of billions of finger-like projections that create a huge amount of surface area for absorbing nutrients. For the celiac person, when gluten is consumed, it triggers an autoimmune reaction in this area which, of course, generates inflammation. The antibodies connected with this inflammation is what the celiac blood tests are designed to detect but this inflammation, over time, wears down the finger-like projections of the villous lining. Of course, when this proceeds for an extended period of time, greatly reduces the absorption efficiency of the villous lining and often results in many and various nutrient deficiency-related health issues. Classic examples would be osteoporosis and iron deficiency. But there are many more. Low D3 levels is a well-known celiac-caused nutritional deficiency. So is low B12. All the B vitamins in fact. Magnesium, zinc, etc.  Celiac disease can also cause liver inflammation. You mention elevated ALP levels. Elevated liver enzymes over a period of 13 years was what led to my celiac diagnosis. Within three months of going gluten free my liver enzymes normalized. I had elevated AST and ALT. The development of sensitivities to other food proteins is very common in the celiac population. Most common cross reactive foods are dairy and oats but eggs, soy and corn are also relatively common offenders. Lactose intolerance is also common in the celiac population because of damage to the SB lining.  Eggs when they are scrambled or fried give me a gut ache. But when I poach them, they do not. The steam and heat of poaching causes a hydrolysis process that alters the protein in the egg. They don't bother me in baked goods either so I assume the same process is at work. I bought a plastic poacher on Amazon to make poaching very easy. All this to say that many of the issues you describe could be caused by celiac disease. 
    • catnapt
      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt.   I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the same reason I gave up dairy and eggs- they make me feel ill.  I do have a bit of a sugar addiction lol so a lot of times I wasn't sure if it was the refined grains that I was eating - or the sugar. So from time to time I might have a cookie or something but I've learned how to make wonderful cookies and golden brownies with BEANS!! and no refined sugar - I use date paste instead. Pizza made me so ill- but I thought it was probably the cheese. I gave up pizza and haven't missed it. the one time I tried a slice I felt so bad I knew I'd never touch it again. I stopped eating wheat pasta at least 3 yrs ago- just didn't feel well after eating it. I tried chick pea pasta and a few others and discovered I like the brown rice pasta. I still don't eat a lot of pasta but it's nice for a change when I want something easy. TBH over the years I've wondered sometimes if I might be gluten intolerant but really believed it was not possible for me to have celiac disease. NOW I need to know for sure- because I'm in the middle of a long process of trying to find out why I have a high parathyroid level (NOT the thyroid- but rather the 4 glands that control the calcium balance in your body) I have had a hard time getting my vit D level up, my serum calcium has run on the low side of normal for many years... and now I am losing calcium from my bones and excreting it in my urine (some sort of renal calcium leak) Also have a high ALP since 2014. And now rapidly worsening bone density.  I still do not have a firm diagnosis. Could be secondary HPT (but secondary to what? we need to know) It could be early primary HPT. I am spilling calcium in my urine but is that caused by the high parathyroid hormone or is it the reason my PTH is high>? there are multiple feedback loops for this condition.    so I will keep eating the bread and some wheat germ that does not seem to bother me too much (it hasn't got enough gluten to use just wheat germ)    but I'm curious- if you don't have a strong reaction to a product- like me and wheat germ- does that mean it's ok to eat or is it still causing harm even if you don't have any obvious symptoms? I guess what you are saying about silent celiac makes it likely that you can have no symptoms and still have the harm... but geez! you'd think they'd come up with a way to test for this that didn't require you to consume something that makes you sick! I worry about the complications I've been reading about- different kinds of cancers etc. also wondering- are there degrees of celiac disease?  is there any correlation between symptoms and the amnt of damage to your intestines? I also need a firm diagnosis because I have an identical twin sister ... so if I have celiac, she has it too- or at least the genetic make up for having it. I did have a VERY major stress to my body in 2014-2016 time frame .. lost 50lbs in a short period of time and had severe symptoms from acute protracted withdrawal off an SSRI drug (that I'd been given an unethically high dose of, by a dr who has since lost his license)  Going off the drug was a good thing and in many ways my health improved dramatically- just losing 50lbs was helpful but I also went  off almost a dozen different medications, totally changed my diet and have been doing pretty well except for the past 3-4 yrs when the symptoms related to the parathyroid issue cropped up. It is likely that I had low vit D for some time and that caused me a lot of symptoms. The endo now tells me that low vit D can be caused by celiac disease so I need to know for sure! thank you for all that great and useful information!!! 
    • trents
      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.