Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Diagnosed And A Sudden Relapse Of Symptoms


pickles177

Recommended Posts

pickles177 Newbie

Was diagnosed with celiac disease only two months ago and from that date undertook a completely gluten free diet. My most severe symptom before this was extreme bloating (looking 7 months pregnant) and a lot of pain. Within 3 days of going gluten free my stomach had ease and was going down :lol:

However - only last week suddenly overnight my stomach blew up again - and I am now completely unsure as to what to do next. I've just been diagnosed as anaemic as well and am on iron tablets form the doctor for two months. Some people say I should cut out dairy, some say it could be cereals, some say it could be rice cakes - everybody is telling me something different and I'm left very confused, still severely bloated and in a lot of pain - can anybody tell me if they had this and what they did?

Any advice appreciated


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

A lot of Celiacs react to Dairy. Some can eventually add it back in. If you are certain that you did not get cross contaminated, then I would suspect Dairy. Iron pills can totally screw with your digestive tract. I took "Gentle Iron" by Solgar and it didnt bother me.

MELINE Enthusiast
Was diagnosed with celiac disease only two months ago and from that date undertook a completely gluten free diet. My most severe symptom before this was extreme bloating (looking 7 months pregnant) and a lot of pain. Within 3 days of going gluten free my stomach had ease and was going down :lol:

However - only last week suddenly overnight my stomach blew up again - and I am now completely unsure as to what to do next. I've just been diagnosed as anaemic as well and am on iron tablets form the doctor for two months. Some people say I should cut out dairy, some say it could be cereals, some say it could be rice cakes - everybody is telling me something different and I'm left very confused, still severely bloated and in a lot of pain - can anybody tell me if they had this and what they did?

Any advice appreciated

Hello

I had the same problem and it was all because of lactose/casein and an endless list of other food intolerances AND IBS. So I just had a test for food intolerances and when I exluded the guilty ingredients my belly stopped existing.

Just to let you know that till now I thought that everyone was feeling abdominal pain/bloating after eating. I thought it was normal.....Silly me...

You are not getting any gluten by accident, are you?

And yes lactose/casein intolerance is very common for celiacs.

Good luck

Meline

feelingbetter Rookie

Just to echo what has been said here about dairy. I also had lots of problems with bloating, constipation etc until I gave up dairy.

ShayFL Enthusiast

Meline....what test did you take? Lame Advertisement

MELINE Enthusiast
Meline....what test did you take? Lame Advertisement

There is this lab here in greece that is running some tests , they call them nutritest. Without blood taking they measure the reaction of your body to some food combinations and they give you a list of your intolerances. I think my english is not good enough to explain the process in a better way....It cost me 250 euros to check 180 food ingredients. This can also be done with blood taking tests. It is 99% accurate (for me I think 100%.....)

I don't know the way you do it in your country but it was worth it for sure!!

Kisses

Meline

AliB Enthusiast

when I realised I was GI I dropped dairy at the same time as gluten, as well as most carbs and sugar. I thought "in for a penny, in for a pound!".

I had been tootling along fairly well for the last 3 months, getting odd reactions that I thought may be to other foods or just because my gut was still healing, but on Saturday I had a blatantly obvious reaction to gluten. I'm not sure what it was that did it but I suspect some oats that I used in some cookies I made.

Either I reacted to the oats or to some kind of contamination. I didn't sleep all night and was pretty dodgy for a couple days. Then Tuesday it happened again! This time I think it was some little nut and seed cookies that also have oats in them. I have been having them all the way through but lately I noticed that after one or two my stomach wasn't very happy.

What I am thinking is that I have probably been getting some gluten contamination from them all the way through, but suspect it is likely that my immune system is starting to kick back in now and that is why I am starting to get a lot more sensitive. Foods I thought were safe, aren't.

You may have the same problem. I am trying to completely avoid anything that might be a potential trigger or might even remotely have been contaminated.

Just out of interest, because I have had to now remove the oat milk I was having (the jury's out on soy and rice milk is too high in carbs - I am diabetic) I decided to try some cream in my (dairy-free!) hot choc this morning. My guts have been grumbling all afternoon and I have been passing the most obnoxious gas so that is definitely still a no-no. I might try the lactofree milk but although I am pretty sure my problem is lactose, it might be casein too.

Those who are Celiac/GI are typically reactive to other foods particularly dairy as the enzymes that produce lactase are situated at the tips of the villi and they usually are the first things to go in the damage process, mind you I do think you would have reacted to it sooner, but these things have a habit of not doing what we expect!

I still favour some kind of contamination, so look closely at what you are having and perhaps try a basic diet with nothing processed for a while to see if it makes any difference. I am doing the Specific Carbohydrate Diet and it does seem to help (the sweet oaty cookie things are not allowed so me eating them served me right!!!)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    2. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    4. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    5. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,324
    • Most Online (within 30 mins)
      7,748

    mao5617
    Newest Member
    mao5617
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.