Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can Low Iron Cause False Results?


sazzie

Recommended Posts

sazzie Rookie

Hi,

Sorry for more questions but now i am more confused than before!

I had a blood test and my ferratin (?) level was quite low (20-120 being normal mine was 10)

I tested weakly positive on my blood test for celiacs:

EMA was weak

ttg level was 5 with anything <5 being neg.

I went and saw the specialist today and he basically told me that there was only a very very small chance that i had celiac, and seemed more concerned about the fact that i had low iron than the results of the above tests.

He commented that it was probably from being pregnant that my iron stores were still low questioned me about how much meat i ate, did i take iron tablets ect... he said that my low iron could have skewed things up. however i didnt think iron had anything to do with the blood tests?

So would my low iron levels cause the above tests to be wrong?

I have no symptoms at all and according to the local hospital i am looking at at least a 10month wait for the biopsy, however if the above test can be wrong i really dont want to do a biopsy.

If the above levels are that low would anything even show up on a biopsy anyway?

if my biopsy is negative why would i have a weak ema test? As from what i have read there is basically no way that test can be wrong?

what do you think?

Thank you for your replys,

Lisa


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dollamasgetceliac? Explorer

I am new at this , but I am reading Dr. Peter Green's book Celiac Disease a hidden epidemic , what I gather from his book that after a pregnancy a n existing predisposition for Celiac can start with varying symptoms: one of which is Anemia, which i had as well. I was told to eat steak and always with orange juice for better absorbtion and was put on Iron suplaments. the symptoms went away. Not untill now I have severe abdominal pain, Migrains you name it ! all seems to be related to Celiacs ,I tested negative a few times and now suddenly it is positive.

Ursa Major Collaborator

First of all, your doctor didn't do the whole celiac disease panel when he did the tests. But your ttg level being so high certainly means something!

Anemia is one of the most common celiac disease symptoms. If your celiac disease was just triggered recently, the damage to your villi may not have progressed to where your blood work would be positive, and neither would a biopsy.

Have you tried the gluten-free diet? If you find an obvious improvement in your health by being on the gluten-free diet, you would really have your answer. Low iron is the result of malabsorption of essential nutrients and won't really be fixed until you fix the cause. Which may be celiac disease.

I wouldn't wait for a biopsy to try the gluten-free diet. But that is me, and you will have to make your own decision. Just know that if it is celiac disease a few months can make a huge difference as to how sick you will get if you keep eating gluten.

Nobody can make you eat gluten, you don't have to do what your doctor says, it is your own decision.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - RMJ replied to colinukcoeliac's topic in Gluten-Free Restaurants
      4

      What should I expect from a UK restaurant advertising / offering "Gluten Free" food

    2. - knitty kitty replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      14

      Pain in the right side of abdomen

    3. - trents replied to colinukcoeliac's topic in Gluten-Free Restaurants
      4

      What should I expect from a UK restaurant advertising / offering "Gluten Free" food

    4. - Scott Adams replied to colinukcoeliac's topic in Gluten-Free Restaurants
      4

      What should I expect from a UK restaurant advertising / offering "Gluten Free" food

    5. - Scott Adams replied to Colleen H's topic in Coping with Celiac Disease
      4

      Barilla gluten free pasta

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,480
    • Most Online (within 30 mins)
      7,748

    radster47
    Newest Member
    radster47
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • RMJ
      Hopefully @Cristiana will see this question, as she also lives in the UK.
    • knitty kitty
      @Theresa2407, My Non-Alcoholic Fatty Liver Disease (NAFD), now called Metabolic Dysfunction-Associated Steatotic Liver Disease (MASLD), cleared up, resolved, after supplementing with Thiamine B1 and Riboflavin B2.  "Specifically, higher intakes of vitamin B1 and vitamin B2 were negatively associated with the risk of NAFLD. Consequently, providing adequate levels of Vitamin B1 and Vitamin B2 in the daily diets of postmenopausal women could potentially serve as a preventive measure against NAFLD." Association between dietary intakes of B vitamins and nonalcoholic fatty liver disease in postmenopausal women: a cross-sectional study https://pmc.ncbi.nlm.nih.gov/articles/PMC10621796/ High-dose vitamin B1 therapy prevents the development of experimental fatty liver driven by overnutrition https://pmc.ncbi.nlm.nih.gov/articles/PMC7988776/
    • trents
      Welcome to the the celiac.com community @colinukcoeliac! I am in the USA but I don't think it is any different here in my experience. In some large cities there are dedicated gluten free restaurants where only gluten free ingredients are found. However, there are a growing number of mainstream eatery chains that advertise gluten free menu items but they are likely cooked and prepared along with gluten containing foods. They are just not set up to offer a dedicated gluten free cooking, preparation and handling environment. There simply isn't space for it and it would not be cost effective. And I think you probably realize that restaurants operate on a thin margin of profit. As the food industry has become more aware of celiac disease and the issue of cross contamination I have noticed that some eateries that used to offer "gluten free" menu items not have changed their terminology to "low gluten" to reflect the possibility of cross contamination.  I would have to say that I appreciate the openness and honesty of the response you got from your email inquiry. It also needs to be said that the degree of cross contamination happening in that eatery may still allow the food they advertise as gluten free to meet the regulatory standards of gluten free advertising which, in the USA is not more than 20ppm of gluten. And that is acceptable for most celiacs and those who are gluten sensitive. Perhaps you might suggest to the eatery that they add a disclaimer about cross contamination to the menu itself.
    • Scott Adams
      This is a very common source of frustration within the celiac community. Many restaurants, including large chain restaurants, now offer a "gluten-free" menu, or mark items on their menu as gluten-free. Some of them then include a standard CYA disclaimer like what you experienced--that they can't guarantee your food will be gluten-free. Should they even bother at all? This is a good question, and if they can't actually deliver gluten-free food, should they even be legally allowed to make any claims around it?  Personally I view a gluten-free menu as a basic guide that can help me order, but I still explain that I really have celiac disease and need my food to be gluten-free. Then I take some AN-PEP enzymes when my food arrives just in case there may be contamination. So far this has worked for me, and for others here. It is frustrating that ordering off a gluten-free menu doesn't mean it's actually safe, however, I do feel somewhat thankful that it does at least signal an awareness on their part, and an attempt to provide safe food. For legal reasons they likely need to add the disclaimer, but it may also be necessary because on a busy night, who knows what could happen?
    • Scott Adams
      That is a very old study that concludes "Hypothetically, maize prolamins could be harmful for a very limited subgroup of CD patients", and I've not seen any substantive studies that support the idea that corn would be a risk for celiacs, although some people with celiac disease could have a separate intolerance to it, just like those without celiac disease might have corn intolerance.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.