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Nutritionist In Southern California


MindyK

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MindyK Newbie

I have been battling this stupid Celiac disease on my own for the last 8 months with limited success. I have fallen off the Gluten Free wagon and have completely made myself miserable. Now it seems everything I touch makes me sick. I am looking for a nutritionist who specialized in Celiac disease in the Southern California area to help me get on a diet plan to restore my health and put some weight back on. My doctor is of little help offering me the scholarly advice of


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home-based-mom Contributor
I have been battling this stupid Celiac disease on my own for the last 8 months with limited success. I have fallen off the Gluten Free wagon and have completely made myself miserable. Now it seems everything I touch makes me sick. I am looking for a nutritionist who specialized in Celiac disease in the Southern California area to help me get on a diet plan to restore my health and put some weight back on. My doctor is of little help offering me the scholarly advice of
CeliBelli Newbie
My doctor is of little help offering me the scholarly advice of
Dyan Rookie

Are you familar with the Celiac Disease Foundation? If you are, and a member, you can call them and get referals from them. They had a few at the convention earlier this month. They seemed to know what they were talking about and she knew that sometimes a lot more tha gluten needs to be cut out of our diets. I'm sorry I don't remember her name.

  • 2 months later...
etribole Newbie

Hi Mindy,

I hope you found a dietitian/nutritionist that specializes in celiac disease. If not, feel free to contact me as I specialize in celiac disese (my son was diagnosed with celiac disease 10 years ago, so I have both a personal and professional interest).

Evelyn Tribole, MS, RD

Newport Beach, CA 92660

Etribole@gmail.com

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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