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Does This Mean I Dont Have Cd?


Iheartbostons

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Iheartbostons Newbie

I have been wheat free for about 8 wks in hopes of releaving symptoms such as nausea, low energy, loose stool, brain fog etc. etc. etc. Well It helped with some of the symptoms like brain fog but I still felt nausea and loose stool. So I was beginning to wonder if I really have a prob with wheat. I bought an otc med called Digestive advantage for Ibs. Since then I have felt better very little nausea and stool back to normal. Well I decided to eat wheat to see what it would do since I had the day off the next day I ate pizza and buffalo wings, YUM! :rolleyes: I felt great the next day!! So last night I had homemade mac and cheese and Im fine this morning! What do you all think. Could my prob be Ibs or is my body tricking me. I just dont really believe that I have IBS cause the symptoms are more like celiac. Any thoughts would be appreciated! Thanks


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MySuicidalTurtle Enthusiast

You can eat gluten and not have reactions but it stilldoes the damage if you have Celiac Disease. Did you got glutenfree of wehatfree? Before being dignosed I could eat a lot of things without getting painfully sick but after being 100% gluten-free get very bad sick as soon as I eat them. That's not the case for everyone though. If you want to make sure you don't have Celiacs then go to your doctor and get the blood test.

Good luck!

celiac3270 Collaborator

If you've been tested positive for celiac, then you have it and you're hurting your body regardless of whether you feel it or not.

I noticed that you used the word "wheat" constantly, but never gluten. You do realize that celiac disease results in an intolerance to not only wheat, but also rye, barley, etc., right?

I agree with Kristina that the best thing to do is get tested--this will give you the definite answer to your question. If you've already been tested positive for celiac, just start the diet ASAP.

KaitiUSA Enthusiast

I agree with exactly what was said in the previous 2 posts...get tested and if you have tested positive ..you are celiac. A lot of people go without having symptoms meanwhile their small intestine is being totally destroyed.

kactuskandee Apprentice

Having both IBS and gluten intolerance (but not Celiac Disease) I can tell you that you sound like you have symptoms of either. If you haven't done it yet, do yourself a favor and get the simple blood test for celiac disease. It will be the easiest test you've ever taken and is very sensitive. If you follow the Rome II criteria for diagnosis of IBS then you will have to take it anyway, since the symptoms are so similar. There are also a lot of other invasive tests you should have, like a colonoscopy to test for Irritable Bowel Disease and Crohns. But with IBS, if you follow a (proven) recommended diet, you will have to cut out the fats, and dairy to start feeling better. Digestive advantage is simply some mild probiotics that help the good gut flora. A lot of IBS'rs find that probiotics and digestive enzymes help, just as celiac disease folks do. If done right, a good IBS diet is just as restrictive as a gluten-free diet, with the difference being that IBS is not life threatening, but celiac disease IS!!

Kandee

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    • SamAlvi
      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once more developed severe diarrhea. I ended up in the ER again and received IV fluids. In my country, Pakistan, doctors are unfortunately not very thorough, so they treated me for a stomach infection. I visited three or four doctors, including a gastroenterologist, but it seemed like they just wanted to keep me on medications and IV fluids. Eventually, I did some digging myself and started connecting the dots. For years, I’ve had excessive gas buildup and frequent loose stools, but I never paid much attention to it. I also cannot easily digest dairy products. Two years ago, I had a CBC test that showed iron deficiency. My doctor told me to eat more meat and said it was nothing serious. However, for the past five years, I’ve also had severe motion sickness, which I never experienced before. Whenever I get on a bus or in a car, I sometimes lose consciousness for 10–20 seconds and wake up sweaty, and occasionally I feel the need to vomit. After more research on the internet, I came across gluten and celiac disease, so I got two related tests (TTG-IgA & TTG IgG) done along with a stool test and another CBC. The stool test showed weakly positive blood. Ever since eating those pancakes and bread, I’ve had a burning sensation in my gut. My doctor reviewed my tests, he told me to completely stop eating gluten and started me on IV fluids for 20 days, saying that I had severe inflammation in my gut. It has now been two months since I quit gluten, and I’m still not sure whether this is celiac disease or gluten intolerance. I don’t really trust doctors in Pakistan, so I thought I might get some help here.
    • trents
      Welcome to the celiac.com community, @SamAlvi! Were there any other antibody tests ordered? Particularly, was there a "total IGA" test ordered to check for IGA deficiency. When people are IGA deficient, celiac panel IGA test scores, such as the TTG-IGA, are likely not valid. If a total IGA test was not ordered, I would request such to be done. Note: "Total IGA" goes by other names as well. I will include a primer on celiac disease antibody testing which does a good job in covering the nomenclature variations connected with the various tests. Elevated IGG scores can certainly indicate celiac disease but they are more likely than elevated IGA tests to be caused by something else.  
    • GlorietaKaro
      Thank you— yes, valid and essential— The issue either doctors is that every one I have tried to talk to about this has essentially rolled their eyes and dismissed me as a hypochondriac, which gets discouraging. I believe a diagnosis would help me to be taken seriously by doctors as well as being validating, but can carry on without it.    There are many, probably most people in my area of my age and gender, who avoid gluten, but many just avoid it casually— eating the occasional plate of wheat pasta or a delicious-looking dessert, or baking cookies with wheat flour for gatherings.  That is not an option for me. I don’t eat other people’s cooking or go to restaurants that do not have strict cross- contamination procedures. It can be boring and lonely, and people do look at me as if I am being a bit dramatic but weeks of symptoms after a single small exposure has taught me to respect my experience.    Thank you very much for your response— sometimes I just need to hear that I am not crazy—
    • lalan45
      You’re not crazy—some people have severe neurological and physical reactions to gluten, not just digestive issues. While testing can be tricky without eating gluten, documenting symptoms and seeing a specialist familiar with atypical celiac or gluten-related disorders can help. Your reactions are real, and it’s valid to be cautious.
    • SamAlvi
      Anti TTG (IgA) 2.430 U/mL Anti TTG (IgG) 288.2 U/mL
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