Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone In Tampa Fl? Dog Lovers A Plus :)


ShayFL

Recommended Posts

ShayFL Enthusiast

Hi Everyone,

2 months gluten-free under my belt. Improvement is very slow, but there is some. :) Looking for others who might want to socialize.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarolAnne Apprentice

Hello! My name is Carolanne...and I live in the StPetersburg/Clearwater area. Not really close...but I do have a Yahoo group that has several Tampa members in it. You're welcome to join us any time.

GlutenFreeInFlorida-subscribe@yahoogroups.com

The Tampa Bay Celiac's will be meeting on June 14 at 1 PM at the Jimmie Keel Library on Bearss Avenue in Tampa - all are invited. Here is a link to directions

Open Original Shared Link

Support Groups are a great way to help "newbie" as well as "seasoned" celiacs to stay informed on ways to navigate living the life of a gluten free person.

Look forward to seeing the regulars and glad to meet the people who have just discovered us.

ShayFL Enthusiast

Thanks CarolAnne!!!

Scott Adams Grand Master

Hello Everyone...please use the forum's calendar to post any celiac/gluten-free events. Regular posts in the forum are not a place to post events, as the calendar is the perfect spot for this:

Open Original Shared Link

Take care,

Scott

Leslie-FL Rookie

Wow, ShayFL and CarolAnne, I just responded to an email from the group leader, Janet, for that group. I met a girl in the health food store a few months back and she told me about the meetings, then sent me Janet's email address. I hope to meet you both there tomorrow - it'll be my first time going.

ShayFL, I have been meaning to PM you and ask what part of Florida you are from, because of both of us using "FL" in our usernames.

ShayFL Enthusiast

Hi Leslie!!

I live in Temple Terrace. I will be going to the meeting tomorrow at 1 pm at Jimmie Keel library. It is only about 10 minutes from me. Is that the one you are going to???

It will be my first time too. :)

Leslie-FL Rookie
Hi Leslie!!

I live in Temple Terrace. I will be going to the meeting tomorrow at 1 pm at Jimmie Keel library. It is only about 10 minutes from me. Is that the one you are going to???

It will be my first time too. :)

Yep, that is the same one. I'm coming from the New Port Richey area. I wonder if there will be name tags or something, so we can say hello to each other. Maybe we'll just be the two people who look like they don't know anyone. lol


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

This is me. Only my hair is even shorter now. :)

http://www.terracegallery.com/sharonnew.webp

I did send an email to Janet to make sure I would be welcomed. Someone said that some Celiac groups are very particular about who they allow. Some require "gold standard" diagnosis. Which isnt me. So Ive asked. On the off chance she says that I am not welcomed, then I would not be there. It is hard for me to imagine any group excluding others that have the same issue (but dx differently), but that is just me.....

Hopefully, she says "welcome" and I will see you there!!

Leslie-FL Rookie
This is me. Only my hair is even shorter now. :)

http://www.terracegallery.com/sharonnew.webp

I did send an email to Janet to make sure I would be welcomed. Someone said that some Celiac groups are very particular about who they allow. Some require "gold standard" diagnosis. Which isnt me. So Ive asked. On the off chance she says that I am not welcomed, then I would not be there. It is hard for me to imagine any group excluding others that have the same issue (but dx differently), but that is just me.....

Hopefully, she says "welcome" and I will see you there!!

Oh wow - it never occurred to me that it wouldn't be open to everyone. I just went back and re-read CarolAnne's post, and she did say all are invited, but if you hear anything differently from Janet, please PM me, ok?

I'll try to find a picture of me that looks like me now - I've been letting my hair grow and don't have many recent pictures.

  • 1 month later...
peter99ff Rookie

I live down in Bradenton and work in Sarasota. Its nice to see more people in the area.

ShayFL Enthusiast

I grew up in Bradenton/Sarasota. :) Hubby's parents have a condo there 1/2 the year. So we visit often. Tell of the good gluten-free restaurants down there?????

peter99ff Rookie
I grew up in Bradenton/Sarasota. :) Hubby's parents have a condo there 1/2 the year. So we visit often. Tell of the good gluten-free restaurants down there?????

Nothing that stands out. Lee Roy Selmons is one of my favorite spots when I get the chance to go out. They have a gluten free menu. The one I go to is down cortez by cortez, the one in Sarasota unfortunately is down University just west of the Interstate. Outside of that it's Outback or Carrabba's. Nothing I found in the city, except Whole Foods, lol which is Whole foods but I usually get lunch there, cookies, and bread. Lately they are getting scarce so I might have to give them a hard time and see whats up.

Im also starting to find out if you call ahead and plead your case to the cooks they usually take care of you.

I hope this helps a little, Im currently a single parent with one or two extra kids from time to time so like I said it's not easy for me to get out a lot. :)

ShayFL Enthusiast

You will want to check out the "Island Bakery" on Siesta Key sometime. Gluten Free bakery with french bread that tastes like real french bread. They also have normal sized sandwich bread loafs that actually taste good and are light not dense. Take the kids. They have ice cream too. They will have a handful of things to sample (breads and goodies), but you can order ANY of their gluten-free items and they will deliver.

peter99ff Rookie
You will want to check out the "Island Bakery" on Siesta Key sometime. Gluten Free bakery with french bread that tastes like real french bread. They also have normal sized sandwich bread loafs that actually taste good and are light not dense. Take the kids. They have ice cream too. They will have a handful of things to sample (breads and goodies), but you can order ANY of their gluten-free items and they will deliver.

Someone told me about that place and I went looking for it but couldn't find it. I think I might google it. its on the south end passed the beaches. Thanks for reminding me, I have to find it.

peter99ff Rookie
You will want to check out the "Island Bakery" on Siesta Key sometime. Gluten Free bakery with french bread that tastes like real french bread. They also have normal sized sandwich bread loafs that actually taste good and are light not dense. Take the kids. They have ice cream too. They will have a handful of things to sample (breads and goodies), but you can order ANY of their gluten-free items and they will deliver.

And now that you mentioned bakery,............cannoli's came to mind...now your killing me. And Im willing to bet someone has the right formula of flour to make them.

ShayFL Enthusiast

You can HAVE anything you want. I found these and they have gotten RAVE reviews:

Open Original Shared Link

They ship!! A bit pricey...but for that once in awhile...oh so heavenly.....cannoli!!

DeLina Newbie

I live in Seminole, FL which is the St. Pete/Clearwater area......and I would happily drive to seista key for french bread

pete8703 Newbie

Speaking of food, my family and I are getting ready to spend a week in Tampa Bay. (I once lived in North Tampa briefly, near USF.) Unfortunately, my research of places to eat (other than the usual chains) hasn't turned up much besides Lee Roy Selmon's. I LOVE Cuban food ... do any of you have any information about places where it might be safe to eat?

ShayFL Enthusiast

Not Cuban...but in Tampa you can eat at Bonefish, PF Changs, Carrabbas and Outback too. Other restaurants can accomodate. Especially high end. Never hurts to call ahead.

DeLina Newbie
Speaking of food, my family and I are getting ready to spend a week in Tampa Bay. (I once lived in North Tampa briefly, near USF.) Unfortunately, my research of places to eat (other than the usual chains) hasn't turned up much besides Lee Roy Selmon's. I LOVE Cuban food ... do any of you have any information about places where it might be safe to eat?

also Ruth's Chris steakhouse has a gluten free menu

ldh13 Newbie

Hello all-

I live in downtown St. Pete. I just figured out that I have celiac disease. This is horrible news for me since I eat mostly pasta and love good beer. If there are any support groups/meetings around the Tampa Bay area, please let me know. I would like to attend. It would be great to meet some others, swap some recipes, and discuss the local restaurant scene.

Thanks!

Lauren

ldh13@yahoo.com

ShayFL Enthusiast

Clearwater - Support Group

Contact: Jim & Mary DuGranrut

Pinellas County Celiac Group, CSA/USA Chapter #84

St. Petersburg/Clearwater, Florida

Tel: (727) 522-1204

E-mail: jdug@pipeline.com

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748

    Tara M
    Newest Member
    Tara M
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.