Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Male Infertility

cmbolen

By cmbolen
in Related Issues & Disorders

Recommended Posts

cmbolen Newbie
cmbolen
Posted

My husband was diagonosed with celiac sprue a couple of months ago. We found out through various tests because we were trying to conceive for over a year unsuccessfully. I do not have celiac's and I am healthy otherwise. Searching tirelessly on information about his infertility and our options on conceiving. I heard it could take up to a year for his fertility to return, if it does. Other than that I don't have any other info. Would like to know if it could come back sooner, are there any other options to help (of course we have him on a gluten-free diet), and if by mistake (we are still learning) his eats something with gluten in it how that effects his fertility. Any insight on male infertility would be appreciated.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dollamasgetceliac? Explorer
dollamasgetceliac?
Posted

I know that there is a thread on Endometriosis There is also Endometriosis in men, I know that it can spread inside your entire body. i do not know if there is a link between Infertility in Men and Endometriosis? But we are begining to think that there is a link between Endo and Celiac. There is a book how to get pregnant, you can get a ovulation monitor at any drugstore. That can help. I think that in that book can not remember the authors name they do discuss the infirtility in men, I do not know if they talk about Celiac. But the Endometriosis thing is something that most Doc's do not know much about.

kenlove Rising Star
kenlove
Posted

I know that before I was diagnosed with celiac I lost all the testosterone in my body as well as some other hormones that I don't recall the names of. Even before diagnoses they gave me a number of injections and patches to use which helped a lot with general energy levels as well as other things. being 55 at that time I was not thinking of having more kids but you might want to ask the doctor and make sure his levels re checked. I had no idea what a difference it could make.

ken

My husband was diagonosed with celiac sprue a couple of months ago. We found out through various tests because we were trying to conceive for over a year unsuccessfully. I do not have celiac's and I am healthy otherwise. Searching tirelessly on information about his infertility and our options on conceiving. I heard it could take up to a year for his fertility to return, if it does. Other than that I don't have any other info. Would like to know if it could come back sooner, are there any other options to help (of course we have him on a gluten-free diet), and if by mistake (we are still learning) his eats something with gluten in it how that effects his fertility. Any insight on male infertility would be appreciated.
Adelle Enthusiast
Adelle
Posted

Well, um, DH and I have been trying for 18 months. Last month we finally found a clinic willing to help us (apparently most doctors think 23 and 25 are too young to have fertility issues). My tests came up shiney and perfect, but DH's SA was not as good. He has a low count and low morphology. We've been gluten-free for almost 2 years. Next we have an appointment with another doctor, but after that we can't pursue treatment for a while, as we'll have to save up the money!!

I really hope you guys have better luck than we do. Feel free to PM me if you want.

Cherry Tart Apprentice
Cherry Tart
Posted

cmbolen,

It's really best to wait a year for his system to heal before trying to conceive. Usually, motility/count/morphology will improve once his system is operating properly.

After being on the diet for a few months, I suggest going to a fertility specialist for an evaluation for both of you (that is, if you haven't done so already). It's easy to speculate or do your own investigation on the internet but, it will give you peace of mind to talk to an expert. My husband and I tried for 2 years without success. We just assumed that our infertility was due to my having Celiac (at that point, I was gluten-free for 3 years). After visiting a fertility specialist, we discovered that I was fine. Actually, my husband (non-celiac) has low motility/morphology. This reduced our chances of conceiving naturally to 1%. As I'm approaching the "magic age" we decided to forge ahead w/ IVF. You may not have to go to such extreme measures. It may be a simple vitamin deficiency, hormone imbalance, or simply allowing him time to heal on the gluten-free diet. Be patient, there isn't a set time for fertility to return - it's different for everyone. Some people have been able to conceive within 6 months of STRICT gluten-free foods. However, most doctors recommend a full year recovery. Hopefully, your husband will have a speedy recovery - Good luck to you!

  • 6 months later...
jvj Newbie
jvj
Posted

I'm a 28 year old male with celiac, who is *not as gluten-free as I'd like to be* and my wife and I are TTC. I just skimmed the following report from the UK on celiac and male infertility. I thought it was useful, so I thought I would post it here for any others looking for this type of info.

Open Original Shared Link

Good luck everyone TTC,

Josh

My husband was diagonosed with celiac sprue a couple of months ago. We found out through various tests because we were trying to conceive for over a year unsuccessfully. I do not have celiac's and I am healthy otherwise. Searching tirelessly on information about his infertility and our options on conceiving. I heard it could take up to a year for his fertility to return, if it does. Other than that I don't have any other info. Would like to know if it could come back sooner, are there any other options to help (of course we have him on a gluten-free diet), and if by mistake (we are still learning) his eats something with gluten in it how that effects his fertility. Any insight on male infertility would be appreciated.
kenlove Rising Star
kenlove
Posted

Thanks for the link Josh.

Ken

I'm a 28 year old male with celiac, who is *not as gluten-free as I'd like to be* and my wife and I are TTC. I just skimmed the following report from the UK on celiac and male infertility. I thought it was useful, so I thought I would post it here for any others looking for this type of info.

Open Original Shared Link

Good luck everyone TTC,

Josh

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,162
    • Most Online (within 30 mins)
      7,748
    Jean Kemling
    Newest Member
    Jean Kemling
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • DAR girl
      Celiac and allergic to common subs and adds in prepared foods

      By DAR girl · Posted

      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      Disregarded

      By Scott Adams · Posted

      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Oldturdle · Posted

      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By plumbago · Posted

      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...