Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Any Backpackers?


sallyterpsichore

Recommended Posts

sallyterpsichore Explorer

Hi everyone,

I'm sure this has been addressed on a situation by situation basis on the forum, but I'm looking for general feedback from backpackers. I've traveled a bit in my life so far, but have never backpacked because it never seemed that "safe" when I was in my teens. I'm interested in both travel backpacking (and staying in hostels, dorms, etc.) and backpacking into the wilderness and camping.

Have any of you done either of these since being gluten free? The food obviously wouldn't be an issue with wilderness packing as you'd bring it all yourself, but is anyone else worried about getting sick out there and then being, well, screwed? :huh:

As for the travel backpacking, I don't know the kind of strength it requires and am curious about this as I'm building up my muscles again and getting back to working out.

I'd appreciate any advice/tips or discussions you all have about the topic!

Thanks,

Sally


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MaryJones2 Enthusiast

I do quite a bit of adventure travel and did a lot of serious backpacking when I lived in Arizona. The best advice I can offer is to start out with day hikes and when you're comfortable move on to an overnight car camping trip. Also, invest in some good lightweight gear. backpacking.net has some good information on backpacking and has a list for an 18 pound - 3 day pack that is quite handy.

I never really had any interest in hotel type travel so I can't help you much there but there is a site called couch surfing that is interesting. You might be able to hook up with some gluten-free folks there.

Like you mentioned you should be less concerned about getting sick in the wilderness because you are in charge of all of your food. I understand that a few of the pre-packaged backpacking foods (like Mountain House, etc.) have a few gluten-free selections that you might want to explore.

sallyterpsichore Explorer
I do quite a bit of adventure travel and did a lot of serious backpacking when I lived in Arizona. The best advice I can offer is to start out with day hikes and when you're comfortable move on to an overnight car camping trip.

I did join a local meetup group of hikers so that I can "train" with some people who know what they're doing. I don't have a car and live in Boston, so I'm really limited as to parks and wilderness area, but there are a few. And the hiking group does quite a bit of carpooling, so that should work.

I'm still interested in traveling through South America, Canada, and maybe Europe (if I suddenly get a promotion ($$$$) at work! Anyone have any experience with this?

Thanks for the response!

tarnalberry Community Regular

I'm in WA, and do a lot of hiking and backpacking. (I'm going backpacking tomorrow - just an overnight for a summit attempt on Mt. St. Helens. I was sick with bronchitis and just started getting better last weekend, so we'll see if I'm up for a summit attempt.)

The food can be a bit of a pain, since you have to make your own backpacking food, and can't buy as much ahead of time. But a dehydrator can go a long way with that. Training just takes time and effort. Finding a group helps, but nothing makes a difference like getting out and doing the work.

Where are you located?

MaryJones2 Enthusiast
I did join a local meetup group of hikers so that I can "train" with some people who know what they're doing. I don't have a car and live in Boston, so I'm really limited as to parks and wilderness area, but there are a few. And the hiking group does quite a bit of carpooling, so that should work.

Thanks for the response!

There are tons of backpacking opportunities within a few hours of Boston in Vermont and New Hampshire. Mt. Washington is awesome. Also, the Applachian Trail runs through western MA. The AT is good for beginners because it's well mapped, has shelters, and a lot of times you can find shuttles to/from.

Some rental car agencies offer special weekend rates and you might look into renting a car if you want to go out on your own.

Have fun!

sallyterpsichore Explorer

Thanks for the responses! If I do get really into the hiking, I may have to look into a dehydrator. Also, does walking 4 miles to work a day count as "hiking"? :P It's uphill. Both ways. Really.

As for getting out to the trails, I think I will, indeed, have to rent a car. The whole car rental thing becomes a bit of an issue because I'm only 24, so it's generally expensive because insurance is expensive for rental companies for anyone under 25.

There are zipcars, though, that may be perfect for a day trip.

Thanks again for the advice! Also, Tarnalberry, good luck on the summit attempt. I'm in awe of people who can do these things!

~Sally

Char Apprentice

I've done a bit of the traveling backpacking, and hostels w/ kitchens were definitely my friends (you should check, because not all of them have). Also some countries are better than others (Finland and Taiwan were AMAZING, Germany stunk, and I heard Italy and Argentina are good) (tho Taiwan may only have been so good because I speak the language). Usually I google either the country's celiac support group and ask for help (they are usually kind enough to send me a list of gluten-free restaurants or places to go) (and they tend to speak a bit of english, tho you may have to Google translate the list to make sense of it) or just ask around for advice. There's a B&B website, if you want to go upscale (Open Original Shared Link) where you can search only for B&Bs that will accomodate gluten-free diets.

For both traveling backpacking and the wilderness kind, I found that the Tastybites were really good. I just pulled them out of the box and stuffed them in my pack, along with some gluten-free pasta (the ziti kind tend to stay together) and I was good to go!

Have fun!

-Char


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



StephanieSD Apprentice

I've done travel backpacking and I'm just getting started wilderness backpacking. (Conditioning to climb Mt. Kilamanjaro next year!) For travel, I found that bringing my own hot cereal was about the best thing for me. Even the saddest breakfast buffet at a motel will have some hot water and the cereal can be so comforting. Hostels with kitchens are awesome for the food freedom they provide. And I packed a lot of the same snacks I bring hiking, too. Dried fruit and nuts. Lara bars. Instant hot cereal.

The UK, Edinburgh especially, is awesome for gluten-free eaters. There's even a gluten-free pizza place there. And there's a website where you can print out little cards in different languages that explain the gluten-free thing to waiters. They really saved me in Poland and Austria. I think it's celiactravel.com

A note on hostels: If you don't want to be dragging your huge backpack around all day, try to find one with locking doors or lockers. Then you can drop off your big pack and use a smaller one while you're out for the day.

sallyterpsichore Explorer
I've done travel backpacking and I'm just getting started wilderness backpacking. (Conditioning to climb Mt. Kilamanjaro next year!) For travel, I found that bringing my own hot cereal was about the best thing for me. Even the saddest breakfast buffet at a motel will have some hot water and the cereal can be so comforting. Hostels with kitchens are awesome for the food freedom they provide. And I packed a lot of the same snacks I bring hiking, too. Dried fruit and nuts. Lara bars. Instant hot cereal.

The UK, Edinburgh especially, is awesome for gluten-free eaters. There's even a gluten-free pizza place there. And there's a website where you can print out little cards in different languages that explain the gluten-free thing to waiters. They really saved me in Poland and Austria. I think it's celiactravel.com

A note on hostels: If you don't want to be dragging your huge backpack around all day, try to find one with locking doors or lockers. Then you can drop off your big pack and use a smaller one while you're out for the day.

You read my mind! I have a couple of friends currently living in Edinburgh and it's at the top of my list (cheap places to stay: i.e. free couches/futons). I was a bit worried about food, but no more! I heard that Ireland is easy for travel, too, from my local bartenders from Galway area.

What hot cereal can we eat? Is it the Bob's Red Mill stuff that I see in the stores all the time. Mighty Tasty or something?

What I'm gathering from all your responses is that I need to stop worrying about it, plan ahead and bring food in case I can't find anything, and just get my butt moving! :P

Thanks again, everyone, for your informative responses and perhaps I'll see you on the trails!

~Sally

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    2. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

    3. - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    4. - Kirita posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Recovery from gluten challenge


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,243
    • Most Online (within 30 mins)
      7,748

    Dorfor
    Newest Member
    Dorfor
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      This article may be helpful:  
    • Kirita
      I’m wondering if anyone has had any experience with the gluten challenge. My teenager completed a gluten challenge over the summer, it ended up being 10 weeks although she stopped being consistent eating gluten after 6. Her previous endoscopy was negative but this past August it was positive after the gluten challenge. If you have done the gluten challenge, how long did it take you to feel back to normal? It took about two months before she got “glutened” again but now she’s having difficult coming back from that and has a lot of fatigue. I’m hoping someone has some advice! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.