Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Muscle Weakness And Increase Heart Rate?


Plyncie

Recommended Posts

Plyncie Newbie

I've been gluten free for a few days more than 6 months now. Every once in a while I make a mistake or eat a spice and forget to call the manufacturer first, and I seem to be able to tell if I've ingested even the TINIEST amount of gluten. My muscles in my arms and legs and neck get a strange tingly and weak feeling, and my heart rate increases, almost to the point of discomfort. I feel lightheaded also. These symptoms set in about an hour after eating the questionable food. I was just curious if anyone else has these symptoms.

I seem to be so sensitive that I can tell if a food that is supposedly free of wheat ingredients, (say corn chips) was manufactured alongside wheat products. I switched brands of corn chips, and they don't' give me the tingly feeling.

Also do any women out there notice that their periods don't hurt anymore?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



TipTip Newbie

Hi There!

i have a tendency to have a lot of problems regulating my body temperature for a couple days after being glutened - it's like i have the flu. i also get terrible muscle fatigue, which drives me nuts.

i found my periods have become "normal" - because they used to be barely noticeable - probably because i was so severely anemic and malnourished - or so i'm told.

i'm closing in on the 6 month mark now too, and it's getting easier - it's still not easy, but it is easier!

Plyncie Newbie
Hi There!

i have a tendency to have a lot of problems regulating my body temperature for a couple days after being glutened - it's like i have the flu. i also get terrible muscle fatigue, which drives me nuts.

OH! that would explain my random fevers!!!

congrats on being gluten free. its getting easier for me too, but i continue having the gluten-mares :)

  • 1 month later...
sallyterpsichore Explorer

I just saw this when I was searching for what warm, tingly muscles could possibly be and came upon this. I've been gluten-free for nearly two years now and this has been happening to me lately, too. I don't know if it's gluten-related or not, as I've also been lifting weights and doing a lot of heavy cardio for a couple of months and it could just be some kind of muscular reaction to that.

I have the muscle thing going on now and some major bloating, which makes me think I was somehow glutened (NO idea how unless my library book had gluten on it...ridiculous). Anyway, thanks for asking about this...I may bring it up with my doctors next month. I'll post if they shed any light on this one.

Good luck!

~Sally

bakinghomesteader Contributor

My time of the month has gotten so much better. I'm able to control the pain with Tylenol. I used to have Vicodin for the pain. I used to black out and get really sick to my stomach. I don't get that anymore since gluten free.

JennyBabe Newbie

Hi there!

So glad to see what you had posted!

I feel the exact same way! I can recognize when I've had the slightest amount of wheat. About one hour after ingesting it, I start feeling all weird. I experiece the tingling, weak feeling in my arms & legs too. My heart rate does increase, I get very anxious and lightheaded. Also my body temp drops. I'm like an ice cube. Also, corn chips make me sick too. Which brand works for you? I haven't found one yet.

Newly diagnosed 3 weeks ago--so far I seem to get worse at my cycle time.....not better. Probably stiil in the detox phase.

Thanks again for your posting. Means alot to me to know that I am not the only one experiencing these symptoms...

Everyone I talk to, seems to think celiac disease symptoms is just a stomach-ache and frequent trips to the bathroom. They don't understand when I tell them my symptoms.

Thanks again!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      13

      gluten free cookie recipes

    2. - Russ H replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

    3. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

    4. - Scott Adams replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      13

      gluten free cookie recipes

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,912
    • Most Online (within 30 mins)
      7,748

    journaljenny
    Newest Member
    journaljenny
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.