Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Thanks All Who Are Helping Me. This Week: A Mighty Wind!


Nancy Lake

Recommended Posts

Nancy Lake Rookie

I was almost ready to visit a hospital. I got very week. Tiredness is one thing. Dragging yourself around is another. Also I was very larthargic and depressed. Well, I started reading about the Ketogenic Diet on line. I had been google-ing my symptoms. Wrong Diagnosis.com is one place that scares me. The more symptoms you add to their search engine the more they come up with you must have cancer.

I am laughing because never once did it think I might be Celiac. Back to Ketogenics. Muscle builders elimenate all carbs for about one week. They only eat Akins style..very little fruit. This forces the body into ketonics.

I realized that I was dropping enormous water weight...peeing hourly great volumes of urine. But after a while you loose electrolites. This causes extreem weakness. So I have been able to eat corn chips.

I discovered that fruit is very helpful with bringing the energy and ketones back into balance. Before I was eating hard boiled eggs, celery and peanut butter...but also had no appetite so not eating much at all.

There was never any pain with urination...just lots of it. Learning how to eat is very hard for me.

Women used to stay in bed for a week or more after having a baby...well not anymore. I say this because hospitals have learned that getting up and moving around is a must for recovery. Even after a cesarian 20 years ago...I only had one day of bed rest, then they forced me up.

I spent two days in bed, and that probably did a lot of not so good things too. I force myself now to walk and do things...it is very important.

I still have not returned to the gym. But I am going to very soon. Maybe not for a hour but at least some time.

Ok my mighty wind. The last few days, my side hurt, and then today...gas. Lots of gas. I feel better at the moment.

Each new day brings something else. It is amazing. I now feel like I have had surgery. I haven't but this return to normal life and taking things slow reminds me of a post surgery feeling.

My insides feel bruised and sore. My liver feels like it is swelling and then shifting or somthing. I have no idea if it is my liver, maybe pancreas, or large intestine, but it is in that area.

I was so swollen, that my ribs hurt now. Things are happening. I am just along for the ride. And it is Mr. Toad's Wild Ride at that.

Someone mentioned eating anti inflamatory foods. Could some one explain what those are? Not sure.

I just realized that Morningstar, fake meat, has glutten. Oops. I am becoming more of a lable reader.

In my last post, someone said that they were feeling fine prior to being glutten free. I think I can relate to that pretty well here.

One thing though, friends who see me now say I look so much better. They thought I looked hagged out and grayish before. Hummm.

Now I feel hagged out but look better...go figure.

Thanks for all your support. One day I hope to return the favor to someone new like me.

Nancy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



irish daveyboy Community Regular

Hi Nancy,

Just something very interesting for you to read.

.

Open Original Shared Link

.

Best Regards,

David

  • 4 weeks later...
Cath724 Apprentice

Hi Nancy- How long have you been gluten-free? I am one of the ones who was primarily asymptomatic prior to my diagnosis, and I can very much relate to the gluten "withdrawal." I felt terrible the first few days, then I leveled out but have not yet felt well and continue to have various symptoms-- I have many symptoms now, gluten-free, that most complain of prior to being gluten-free. And the sudden lactose intolerance I was warned of certainly came true, but I hear this can be just temporary so don't let it get you down just yet! I get light-headed and dizzy now, and just an overall unsettled feeling in my head, like pressure. I haven't tried giving up soy yet, which as we were both told may alleviate this.

Some of the material I've read say that as many as 70% of Celiac patients may have had the "silent," or asymptomatic, type, yet it often seems like we're the minority when we're looking for info. Also, I've read that the emotional part of going gluten-free can sometimes be tough for those who were asymptomatic because we can't relate to the "I feel like a new person now" stories after going gluten-free---rather, we feel worse than we ever have, on top of giving up our lifelong friend named Gluten:)

As you've already noted, the forum members here are a great resource and certainly help to alleviate many concerns/questions about our new diagnosis. Good luck, and hope you're feeling better soon!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Have Tru Joy Sweets Choco Chews been discontinued??

    2. - Scott Adams replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Have Tru Joy Sweets Choco Chews been discontinued??

    3. - Jmartes71 replied to chrish42's topic in Doctors
      7

      Doctors and Celiac.com

    4. - Wheatwacked replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Have Tru Joy Sweets Choco Chews been discontinued??

    5. - Theresa2407 replied to chrish42's topic in Doctors
      7

      Doctors and Celiac.com

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,267
    • Most Online (within 30 mins)
      7,748

    Alan Tack
    Newest Member
    Alan Tack
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
      They both do.  The peanuts add nutrients to the treat. Tootsie Roll: Sugar, Corn Syrup, Palm Oil, Condensed Skim Milk, Cocoa, Whey, Soy Lecithin, Artificial and Natural Flavors. M&M Peanut: milk chocolate (sugar, chocolate, skim milk, cocoa butter, lactose, milkfat, peanuts, soy lecithin, salt, natural flavor), peanuts, sugar, cornstarch; less than 1% of: palm oil, corn syrup, dextrin, colors (includes blue 2 lake, blue 1 lake, red 40, yellow 6 lake, yellow 5, yellow 6, blue 1, yelskim milk contains caseinlow 5 lake, blue 2, red 40 lake), carnauba wax, gum acacia. glycemic index of Tootsie Rolls ~83 gycemic index of M&M Peanuts ~33   The composition of non-fat solids of skim milk is: 52.15% lactose, 38.71% protein (31.18% casein, 7.53% whey protein), 1.08% fat, and 8.06% ash.   https://onlinelibrary.wiley.com/doi/10.1002/9781118810279.ch04  Milkfat carries the fat soluble vitamins A, D, E, and K. The solids-not-fat portion [of milk] consists of protein (primarily casein and lactalbumin), carbohydrates (primarily lactose), and minerals (including calcium and phosphorus). https://ansc.umd.edu/sites/ansc.umd.edu/files/files/documents/Extension/Milk-Definitions.pdf
    • Scott Adams
      But M&M's contain milk, and would not be at all like a Tootsie Roll.
    • Jmartes71
      I appreciate you validating me because medical is an issue and it's not ok at all they they do this. Some days I just want to call the news media and just call out these doctors especially when they are supposed to be specialist Downplaying when gluten-free when they should know gluten-free is false negative. Now dealing with other issues and still crickets for disability because I show no signs of celiac BECAUSE IM GLUTENFREE! Actively dealing with sibo and skin issues.Depression is the key because thats all they know, im depressed because medical has caused it because of my celiac and related issues. I should have never ever been employed as a bus driver.After 3 years still healing and ZERO income desperately trying to get better but no careteam for celiac other than stay away frim wheat! Now im having care because my head is affected either ms or meningioma in go in tomorrow again for more scans.I know im slowly dying and im looking like a disability chaser
    • Wheatwacked
      M&M Peanuts. About the same calories and sugar while M&M Peanuts have fiber, potassium, iron and protein that Tootsie Rolls ("We are currently producing more than 50 million Tootsie Rolls each day.") don't. Click the links to compare nutritional values.  Both are made with sugar, not high fructose corn syrup.  I use them as a gluten free substitute for a peanut butter sandwich.  Try her on grass fed, pasture fed milk. While I get heartburn at night from commercial dairy milk, I do not from 'grassmilk'.     
    • Theresa2407
      I see it everyday on my feeds.  They go out and buy gluten-free processed products and wonder why they can't heal their guts.  I don't think they take it as a serious immune disease. They pick up things off the internet which is so far out in left field.  Some days I would just like to scream.  So much better when we had support groups and being able to teach them properly. I just had an EMA blood test because I haven't had one since my Doctor moved away.  Got test results today, doctor ordered a D3 vitamin test.  Now you know what  type of doctors we have.  Now I will have to pay for this test because she just tested my D3 end of December, and still have no idea about my EMA.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.