Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Incredible Amount Of Hives On My Legs


blondebombshell

Recommended Posts

blondebombshell Collaborator

so much going on trying to confirm what it is is wrong with me.

my bloodwork says no wheat allergy, as does allergy test and endoscopy.

but. i have huge bloating/constipation issues AND break out in crazy hives after i eat wheat.

is this DH? only on my legs?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator

Have you ever been tested for Celiac??

Celiac is not an allergy and allergy tests are not used to diagnose Celiac Disease.

Was your endoscopy specifically for Celiac...meaning did they take samples??

Did you have bloodwork for Celiac?

If you dont have these problems while you're not eating wheat...then it makes sense to me that you should probably avoid it....even if you dont test positive in allergy tests and even if you dont have positive Celiac results.

Do you still have problems when you are totally gluten free?

blondebombshell Collaborator

yes - bloodwork and endo came back negative for celiac.

i feel better when i eat just grilled chicken and veggies, lol.

purple Community Regular
so much going on trying to confirm what it is is wrong with me.

my bloodwork says no wheat allergy, as does allergy test and endoscopy.

but. i have huge bloating/constipation issues AND break out in crazy hives after i eat wheat.

is this DH? only on my legs?

I just read that hives are a reaction to gluten. My sister gets hives, we thought it was from stress. She has been constipated for like 25 years. Her hives are on her arms only. She has several other symptoms too. Just 2 days ago she was dizzy 3 times while shopping and had to sit down. I think she is allergic to gluten. My daughter has bumps on her arms that are not DH but I am watching her and I think she is allergic too. Do any family members have it or some of the symptoms? It runs in the family. Keep an eye on them. My other daughter that is allergic to gluten and does get bloated, she is tiny 5' 4" and size 4 or 6 and looks like she is pregnant sometimes.
blondebombshell Collaborator

i get pregnant looking too when i eat wheat/gluten.

i feel like CRAP to be honest because i dont know WHAT IS WRONG.

the hives are only on my legs and no one else has them.

RiceGuy Collaborator

Well, if you went gluten-free in August, and had the endoscopy done in December, it's no wonder it came back negative. They aren't very accurate even while eating gluten. But even if you have a wheat allergy only, the diet is the same, though the skin reaction sounds like DH to me.

One thing which can help limit DH is to avoid things which are very high in iodine, like kelp and other sea vegetables.

Rachel--24 Collaborator
i get pregnant looking too when i eat wheat/gluten.

i feel like CRAP to be honest because i dont know WHAT IS WRONG.

If you dont experience these symptoms while on the gluten-free diet and you only get hives when consuming wheat.....why not just stay on the diet and feel better??

As Riceguy said.....if you started the diet in Aug. and were tested in December it could not have been an accurate test. You have to be eating gluten on a regular basis in order to have reliable testing....and even then the biopsy is "hit or miss".

It seems to me that if gluten makes you feel like crap you should probably avoid it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,029
    • Most Online (within 30 mins)
      7,748

    Jen72
    Newest Member
    Jen72
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.