Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Discovered Soy Sensitivity


margiemakes

Recommended Posts

margiemakes Newbie

Hi All

I have been having trouble with feeling sick way more often than the times I thought I had maybe taken a risk or had a chance of CC and so I've been experimenting in excluding dairy (no change) and soy (seems to be heaps better!)

So I am wondering if others on here who are also soy intolerant can give me some advice please:

Are there any soy-based ingredients which are safe to consume in the same way that some wheat based ingredients are like glucose syrup or caramel colouring? Or is it likely to be the whole soy content that I am reacting to rather than a component like gluten is to wheat?

For example I am noticing soy lecithin in most everything and finding that cuts out a huge number of options that were previously on my safe list, hard enough avoiding gluten as it is without avoiding that too...

Also, has anyone got any suggestions for a replacement for soy sauce? My diet has moved a lot to asian style cooking since mostly those kinds of dishes are easy to make gluten free but when I am excluding soy sauce it makes it a lot harder to make stuff be tasty!

Interesting side note for those who talk about being scared to travel - I actually felt a whole lot better when I was overseas recently and eating mostly the same diet that I am on at home, I ate a lot of homemade sandwiches etc, but as soon as I got home I started feeling bad again and realised that the main real change I had made when I came home was switching back to soy milk instead of dairy milk. (Yes I was drinking a certified gluten-free brand of soy milk) so that's what tipped me off that soy was probably my problem!

Thanks in advance!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tom Contributor
  margiemakes said:
Are there any soy-based ingredients which are safe to consume in the same way that some wheat based ingredients are like glucose syrup or caramel colouring?

YIPES!!! I don't consider those safe at all!!

  margiemakes said:
For example I am noticing soy lecithin in most everything and finding that cuts out a huge number of options that were previously on my safe list, hard enough avoiding gluten as it is without avoiding that too...

Noooooooooooo kiddin - soy lecithin is in a ton of processed foods. :(

I've been soy-free ~ a year.

I have seen ppl say they have a problem w/ soy but are fine w/ soy lecithin. I think I'm not, but I'm not all that sure about it.

Jestgar Rising Star

I don't worry about soy lecithin, but I also don't eat a lot of processed foods, so I don't get very much in general. Same with soy oil.

Mango04 Enthusiast
  Jestgar said:
I don't worry about soy lecithin, but I also don't eat a lot of processed foods, so I don't get very much in general. Same with soy oil.

ditto

missy'smom Collaborator

For some it seems that the soy isn't as much of a problem as the carageean in the soy milk. Someone clued me in to that and it explains why some soy milks bother me and others never seemed to. I've also heard that the fermented soy products like soy sauce and miso are less of a problem in some ways.

purple Community Regular
  margiemakes said:
Hi All

I have been having trouble with feeling sick way more often than the times I thought I had maybe taken a risk or had a chance of CC and so I've been experimenting in excluding dairy (no change) and soy (seems to be heaps better!)

So I am wondering if others on here who are also soy intolerant can give me some advice please:

Are there any soy-based ingredients which are safe to consume in the same way that some wheat based ingredients are like glucose syrup or caramel colouring? Or is it likely to be the whole soy content that I am reacting to rather than a component like gluten is to wheat?

For example I am noticing soy lecithin in most everything and finding that cuts out a huge number of options that were previously on my safe list, hard enough avoiding gluten as it is without avoiding that too...

Also, has anyone got any suggestions for a replacement for soy sauce? My diet has moved a lot to asian style cooking since mostly those kinds of dishes are easy to make gluten free but when I am excluding soy sauce it makes it a lot harder to make stuff be tasty!

Interesting side note for those who talk about being scared to travel - I actually felt a whole lot better when I was overseas recently and eating mostly the same diet that I am on at home, I ate a lot of homemade sandwiches etc, but as soon as I got home I started feeling bad again and realised that the main real change I had made when I came home was switching back to soy milk instead of dairy milk. (Yes I was drinking a certified gluten-free brand of soy milk) so that's what tipped me off that soy was probably my problem!

Thanks in advance!

I never tried this but just found it...yay! allrecipes.com/Recipe/Soy-Sauce-Substitute/Detail.aspx

margiemakes Newbie

Thanks everyone!

I will look at making that soy sauce substitute soon, Purple. :)

I wondered if maybe the soy lecithin was okay because I forgot to check before I ate some chocolate from my regular gluten-free brand that had that in it and felt fine afterwards.

Missy'smom - I have just looked up the soymilk I was drinking and it does have carageenan in it! I wonder if I should try a brand that doesn't or just stick with milk now seeing as that's working for me... I'd like to be able to use soy sauce and soy derivatives if it's not the soy that's the problem but the carageenan!

Tom - The Australian coeliac society recommends wheat glucose syrup and caramel colouring as safe and I have never had a reaction to either! Apparently they are so highly processed that all the gluten is removed during the purification.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,247
    • Most Online (within 30 mins)
      7,748

    Jbamf8791
    Newest Member
    Jbamf8791
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Zuma888
    • knitty kitty
      You have one gene for Celiac.  You have a second autoimmune disease, Hashimoto's thyroiditis, which is frequently found at a higher rate with Celiac.  HLA genes carry autoimmune disease genes like Celiac and Hashimoto's and diabetes and others.   You have Celiac symptoms of reacting after gluten.  You said "I am however still suffering from the effects of the gluten challenge (food sensitivities, slight brain fog, weird stool, fatigue, swollen thyroid, bodyaches)."  And your anti-thyroid antibodies increase after gluten exposure.  While tTg IgA does not directly attack the thyroid, gluten exposure does trigger the  immune system to produce antibodies against the...
    • Zuma888
      Thanks @Scott Adams! I guess my question now is: do the celiacs who can get away with regular contamination without villi damage as you mentioned have to be strict about cross-contamination ? 
    • Zuma888
      Thank you very much @knitty kitty! I'm glad you brought up the point about histamine. I have been taking an antihistamine after meals where I don't feel so good and never knew why it helped so much. At first I thought I might have a food allergy, but I recently did a food allergy test and I actually have ZERO food allergies. Regarding your last point about the stages of grief, are you saying it's likely that I have celiac? I have Hashimoto's BTW and I know for sure that gluten causes an autoimmune response to my thyroid as my anti-TPO and anti-Tg go up and my throat feels swollen. Could the symptoms be due to that autoimmune response?
    • knitty kitty
      @Zuma888, The antibodies produced in response to gluten are made in the intestines.  When the body is provoked sufficiently, the antibodies overflow out of the intestines and into the blood stream.  Once in the blood stream, the antibodies can be measured with tTg IgA tests.  Three grams of gluten per day for two weeks minimum is enough gluten to make you feel the symptoms of having been glutened, but the antibodies are not in sufficient quantity to be measured in the blood. Ten grams of gluten per day for a minimum of two weeks is required to get the anti gluten antibodies at a high enough level in the blood stream to be measured by tTg IgA tests. So, no, occasional cross...
×
×
  • Create New...