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Please Help With Daughter's Blood Test Results!


starrymazed

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starrymazed Rookie

Hello. I have posted on here a few times, and recently I was diagnosed (through biopsy) with celiac disease. I fully believe that my daughter (possibly my son as well) has it. While they don't have a dr appt for that until July 1st, my seven year old daughter just recently had a slew of blood work done for her psych dr (she was just diagnosed as having ADHD) and I am trying to make sense of the results. Basically, her Creatinine levels, Bilirubin, Hematocrit, MPV, Neutrophil, and Lymphocyte %M levels were all low, while her Platelet count and Lymphocyte % levels were high. Does anyone know what this means? Is it celiac? She has plenty of stomach, skin, and head issues to make me believe that is what it is, but these blood results are scaring me. Please, any input would be much appreciated. The dr didn't offer much advice; she said that the celiac could explain these levels.


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betsyabailey Rookie

I'm not sure if she has celiac or not only the doc can tell you that. I can say with a diagnosed parent and behavior problems and odd lab work my guess is probably. Good luck.

Betsy

Rachel--24 Collaborator

Celiac Disease cannot be determined from those tests. You will have to wait for the Celiac tests to be done since none of these other tests are specific for Celiac.

starrymazed Rookie

I am aware that this is not a test for celiac's disease. What I was more specifically asking was if there is a connection between celiac's disease and having the Bilirubin and low blood count levels that she has. That is what I cannot determine online, and while I am awaiting the doctor, I thought I would ask on here as there seems to be quite a few people who know their stuff. :)

Rachel--24 Collaborator
I am aware that this is not a test for celiac's disease. What I was more specifically asking was if there is a connection between celiac's disease and having the Bilirubin and low blood count levels that she has. That is what I cannot determine online, and while I am awaiting the doctor, I thought I would ask on here as there seems to be quite a few people who know their stuff. :)

Yes...they can be symptoms of Celiac....or they can be symptoms from something else entirely. You will not be able to determine this (with any certainty) without knowing whether or not she has Celiac.

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    • trents
      Let me hasten to add that if you will be undergoing an endoscopy/biopsy, it is critical that you do not begin efforts to reduce gluten beforehand. Doing so will render the results invalid as it will allow the small bowel lining to heal and, therefore, obscure the damage done by celiac disease which is what the biopsy is looking for.
    • Scott Adams
      This article, and the comments below it, may be helpful:    
    • Scott Adams
      That’s a really tough situation. A few key points: as mentioned, a gluten challenge does require daily gluten for several weeks to make blood tests meaningful, but negative tests after limited exposure aren’t reliable. Dermatitis herpetiformis can also be tricky to diagnose unless the biopsy is taken from normal-looking skin next to a lesion. Some people with celiac or DH don’t react every time they’re exposed, so lack of symptoms doesn’t rule it out. Given your history and family cancer risk, this is something I’d strongly discuss with a celiac-experienced gastroenterologist or dermatologist before attempting a challenge on your own, so risks and benefits are clearly weighed.
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      https://celiac.org/glutenexposuremarkers/    yes, two hours after accidents ingesting gluten I am vomiting and then diarrhea- then exhaustion and a headache. see the article above- There is research that shows our reactions.
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