Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

So Upset

mcs1984

Recommended Posts

mcs1984 Apprentice
mcs1984
Posted

:angry: ok so i just need to vent, we went to the GI doctor yesterday after he doubled over twice at preschool. They did more xrays and everything came back fine. They got the results back from his scope and everything came back normal they said. They even told me that he did not have a problem with lactose (but he can not handle any kind of dairy besides cheese). I dont understand they sent me home with a pain med to help if he doubled over again but when i looked that up on webmd i am not comfortable giving it to him. The GI dr told us the next thing we should do is go see an allergy dr and get him tested that way, but i dont think i am ready to put him though that. I asked them to fax everything to his main dr and made a appt with them today she see what she thinks. He is already back off the gluten. I dont know what to do, i am so lost and upset that everything is showing norm and we still have no answer of why he cant go to the bathroom, why he has these mood swings, and why his poor little tummy is hurting so much. I dont want him to go though what i have gone though for 24 years. :angry:

I'm sorry i just needed a place to vent where other people understand what we are going though. thanks

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


darlindeb25 Collaborator
darlindeb25
Posted

I'm sorry, I'm not sure if I have read your posts before. It sounds as though you have had him gluten free before, and if you are going to go back to the gluten free lifestyle with him, then it must work! You do what you know is right, he is your child. We celiac's go through false negative testing all the time. Sometimes, the results are only as good as the person reading the tests.

Dr. Peter Green was speaking at one of our celiac support meetings and was telling us about a patient who had an endoscopy done five times over five yrs with his own doctor. That doctor told him every year that he was fine, the test came back negative for celiac disease, the villi looked good. Dr. Green requested all 5 tests be sent to him and he told showed this man flatten villi on every single test, from 5 yrs back. His original doctor had no idea what he was looking at!!! How sad is that?????

So, don't give up. If your son is better on a gluten free diet, then live with that. Many people are gluten intolerant, and not celiac.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,525
    • Most Online (within 30 mins)
      7,748
    Alil Qt
    Newest Member
    Alil Qt
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • cristiana
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By cristiana · Posted

      More great tips, and a good excuse to shop at M&S and also buy more iced buns!   I wish we had an ASDA near us, as the few times we've been to one their gluten-free pasta range seemed very reasonably priced compared to other shops.  Thanks so much, @Russ H.
    • Russ H
      Shingles - Could It Be Related to Gluten/ Celiac

      By Russ H · Posted

      I hope you are on the mend soon. About 1 in 5 people who contracted chicken pox as a child go on to develop shingles in later life - it is not uncommon. There are 5 known members of the herpes virus family including chicken pox that commonly infect humans, and they all cause lifelong infections. The exact cause of viral reactivation as in the case of shingles or cold sores is not well understood, but stress, sunburn and radiotherapy treatment are known triggers. Some of the herpes viruses are implicated in triggering autoimmune diseases: Epstein-Barr virus is suspected of triggering multiple sclerosis and lupus, and there is a case where it is suspected of triggering coeliac disease. As to whether coeliac disease can increase the likelihood of viral reactivation, there have been several cohort studies including a large one in Sweden suggesting that coeliac disease is associated with a moderate increase in the likelihood of developing shingles in people over the age of 50. US 2024 - Increased Risk of Herpes Zoster Infection in Patients with Celiac Disease 50 Years Old and Older Sweden 2018 - Increased risk of herpes zoster in patients with coeliac disease - nationwide cohort study
    • Russ H
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By Russ H · Posted

      BFree bread is fortified with vitamins and minerals as is ASDA own-brand gluten-free bread. All the M&S bread seems to be fortified also.
    • Flash1970
      Shingles - Could It Be Related to Gluten/ Celiac

      By Flash1970 · Posted

      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      GI DX celiac despite neg serology and no biopsy

      By trents · Posted

      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.