Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Medical Records


slmprofesseur

Recommended Posts

slmprofesseur Apprentice

I was trying to get my 9 yr old a new doc. The NP at our Ds2 is great. Does a great job with all of our allergies etc. Ds1 needs a new doc. He probably has a wheat allergy. He's 4ft9 and weight 68 -70 lbs. He also has low muscle tone (i.e. getting occupational therapy). I wanted to get a well visit with the NP but can't because the records (which I have requested twice! :angry: ) from the previous dr (butter ppl) haven't sent them yet!!!

What are my rights? What do I need to do to get them? How long does it take? This time I WILL be picking them up in person!!!!

I feel like crying because, he complained for a week of stomach pain. Then it went away. (I think I was packing him sandwiches for lunch). He's not on a Gluten-free diet, although he eats a lot of Gluten-free foods. Lucky for him he loves rice!

Has anyone else had this problem with a doctor?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



finally diagnosed Apprentice
I was trying to get my 9 yr old a new doc. The NP at our Ds2 is great. Does a great job with all of our allergies etc. Ds1 needs a new doc. He probably has a wheat allergy. He's 4ft9 and weight 68 -70 lbs. He also has low muscle tone (i.e. getting occupational therapy). I wanted to get a well visit with the NP but can't because the records (which I have requested twice! :angry: ) from the previous dr (butter ppl) haven't sent them yet!!!

What are my rights? What do I need to do to get them? How long does it take? This time I WILL be picking them up in person!!!!

I feel like crying because, he complained for a week of stomach pain. Then it went away. (I think I was packing him sandwiches for lunch). He's not on a Gluten-free diet, although he eats a lot of Gluten-free foods. Lucky for him he loves rice!

Has anyone else had this problem with a doctor?

Hi, you didn't say what state you are in, but in Mass you need to go in person or mail it on their form to sign a release to have them either sent to the new doc or you can pick them up in person. This is something that they don't make a priority in offices. But on the other hand you should still be able to see the new person and if they need certain records ie: lab tests results etc. they can fax a form over to the pedi and get them. It is called continutity of care and it cannot be denied if another doc requests it. Good Luck.

Phyllis28 Apprentice

When I went for second, third and fourth opinions for gallbladder surgery I needed copies of my medical records. In order to make an appointment for a second opinion they needed my medical records. I requested them to be sent and it took two weeks. That's when I requested a personal copy of my medical records and made copies. I picked them up rather than wait for the mail. I did have to sign a release.

slmprofesseur Apprentice

In VA you have to fill out a form (mail/in person). I am going to fill it out in person and will request to pick it up in person- and make copies like you! They will see him for a sick visit but not a well visit. I don't understand!!!

Tomorrow morning I will be a woman on a mission.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,892
    • Most Online (within 30 mins)
      7,748

    Nancy in MA
    Newest Member
    Nancy in MA
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Alibu
      MY BIOPSY WAS NEGATIVE!!!  HOW?? Obviously I'm thrilled it was negative, but I'm so confused now.  
    • trents
      First, I hope you know that celiac disease is not an allergy to gluten. It is an autoimmune disease reaction that is triggered by gluten consumption. Allergies don't trigger immunes responses whereby the body attacks it's own tissues but this is what is actually happening with celiac disease and what distinguishes celiac disease from NCGS (Non Celiac Gluten Sensitivity).  Second, though I think your question other question has already been answered. Since the tTG-IGA antibody test is only 90 to 98% specific, elevated values for this test will be have non-celiac disease causes in 2 to 8 out of 100 cases. I realize that is addressing your question in a general way but the non-celiac causes have also be covered in this thread, though not to  the granularity of giving percentages to each non-celiac cause. Not sure why that is important to you at this point. First, you need to separate whether it is due to celiac disease or not. If not, then start sorting out what the other cause is. But as I stated above, by far the most likely cause is celiac disease so that is the place to start. Sure, we get it. Having  to eliminate gluten from your life spells huge culinary and social changes and challenges. But it's still better than facing cancer or host of other diseases that less definitive antidotes and outcomes. With celiac disease you don't even have to worry about taking medications because, as of now at least, there are none. The treatment is very straightforward. Avoid gluten.
    • Shining My Light
      @trents This info is so helpful and I’m absorbing it all. My blood tests were almost a month ago and I feel like it came out of left field. I never even heard of term “silent celiac.” I thought celiac gave you violent diarrhea when you consumed a tiny bit of gluten. That’s it. Not that it damages your small intestine, not that it made the absorption of vitamins and minerals compromised. None of it. To me it was just an allergy to gluten.  My close family and friends think I’m crazy for even giving it a second thought because “no symptoms, no worries.”  It’s unfortunately hard for me to let something go that I don’t know enough about. Therefore all the research came into play.  I’m glad I’ve joined this forum. It’s more helpful to talk things through with people than looking through cases studies without being able to ask questions. I’m on the fence right now on what my odds are. I don’t know enough about the other variables and probability of why a TTG level would be raised.  The questions I still have lingering are:  -what are the odds that these levels are raised in something other than celiac? For instance of all positive TTG tests that have been done how many of those are from celiac? I know it’s a big ask but to me that’s something that is super unclear to me.  - what are the TTG levels in something other than celiac? (I.e. in things like type 1 diabetes, rheumatoid arthritis, hepatitis, viruses, NCGS, etc, are the TTG levels the same as those that have celiac, higher or lower?)  - even if it’s not celiac and it’s NCGS, if my body is “responding” to gluten, and creating antibodies to it, wouldn’t that be something to avoid anyway? Maybe not doing the damage but still my body doesn’t like it?  -could I really possibly follow a gluten free life as close as I follow Jesus?  Definitely understand now that key piece of needing an EGD. It’s looking at things from another angle. Also with all the other associated blood work, more angles.  I would like to say please forgive me if any of my questions seem as though I’m trying to be difficult. Making lifelong decisions is hard.  I do have decisions to make as you have said. I clearly will need convinced in order for this to be something to be committed to.  I would hope that there will be something in the future that comes out that will offset gluten in bodies the same was it does for sugar in diabetics.  My compassion is far greater for anyone carrying the burden of celiac than it was a month ago knowing what I know now.  I appreciate you helping me work this out, in real time. It’s been lonely up to this point. Only me talking about what I’ve read to people who don’t think I should be bothering with it any further. 😆 So thank you! 🙏            
    • trents
      Lot's of folks would trade places with you with regard to the unintentional weight loss. Seriously, though, I would be concerned about vitamin and mineral depletion due to malabsorption in the small bowel. One thing you can do now to address that which will not jeopardize the accuracy of further testing for celiac disease would be to start taking some high potency vitamin and mineral supplements. Make sure they are all gluten free if you will continue to use them - after diagnosis, that is. Wheat starch is sometimes used as a filler in pills. A multivitamin may not be potent enough. So, I would go for a B-complex, magnesium glycinate (the form of magnesium is important for good absorption and to prevent a laxative effect), zinc picolinate, and D3 (around 5000IU daily). These are supplements we routinely recommend on this forum to newly diagnosed celiacs and in view of your dramatic weight loss it would likely be appropriate for you as well. It often takes around 2 years for the villous lining of the small bowel to fully heal after going gluten free and until then, nutrient absorption will be compromised. The small bowel is the section of the intestines where all of our nutrition is taken up. Keep us posted.
    • terrymouse
      I'm 5'2" so it's weight I could afford to lose. I guess what's concerning is that it's not on purpose, I haven't been active because I don't have much energy, and it's been steadily going down since I started keeping track of it. So I'm not too worried about where I'm at right now, but it's something I'm keeping an eye on.
×
×
  • Create New...