Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Else Have A Problem With Vinegar?

Rebecca's mom

Recommended Posts

Rebecca's mom Rookie
Rebecca's mom
Posted

Hi there, all.

I am new to the whole celiac disease thing. Our daughter, Rebecca (almost 7) has Down syndrome. Two months ago, as part of a routine well-child checkup, her doctor ran a Celiac Screen on her. He has a stepdaughter with DS who tested positive for celiac disease and after doing research he discovered that 1 in 8 people with DS also has celiac disease. He took it upon himself to test all of the kids with DS in his practice - he's so good that he has about 30 families that see him. Rebecca has absolutely NO symptoms, but her antibody numbers are off the chart!

Since celiac disease runs in families, we all got tested. So far 2 of our daughters and I have tested negative. Our oldest is off at college, and my husband is waiting for his results to come in. Despite being negative, after researching celiac disease myself, I decided that the entire house would be gluten-free. After I was gluten-free for 1 day, I found that I felt better than I have in 30 years (back in the teenage years....). The skin lesions that have stumped my internist and my dermatologist for the past 3 years started to clear up and I have also lost weight. The strangest thing that happened, though, was that if I accidentally ingested gluten, I started to itch all over. I joke to people that I am now officially Rebecca's "canary in the mine", as no one else seems to have this reaction to gluten. I have decided that I must be extremely gluten sensitive.

Well, that was a long way to get to my question! I have been religiously gluten-free since Rebecca's diagnosis, as I can't stand the itching that occurs when I get hold of gluten. However, the past couple of days I have been itching like a demon. The only things that I can think might be causing it is a Mozzarella cheese that I have in the fridge or the caramel coloring in Coke. The thing is, both companies state unequivocally that their products are gluten-free. Since I have been able to drink Cokes without much problem - the jury is still out on fountain drinks from Sonic - the only thing that I can figure it might be is the vinegar that is listed on the cheese package. My understanding is, though, that vinegar is safe.

Whatever I got hold of caused EXTREME itching that even Benadryl couldn't completely erase, and it took a whole day for the itching to stop, as opposed to the 4-5 hours that I experience with other glutenated food. I have also noticed that when I eat something with Dijon mustard or Worcestershire Sauce in it, I start to itch, too. When I looked at the ingredient list for Dijon and WS, vinegar is listed on them, too. Has anyone else heard of this? Any idea what this is?

I appreciate any help that I can get for this - I like vinegar, but not if it is going to make me feel like this....

Teresa Koch

Fort Worth, Texas

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ShayFL Enthusiast
ShayFL
Posted

If it were me, I would go off Vinegar for about a week and then test it with vinegar on a salad or something. But make sure no gluten/dairy/carmel coloring with the same meal. Then you will know for sure.

Rebecca's mom Rookie
Rebecca's mom
Posted
  • Author

Dear ShayFL,

My friends and family have nicknamed me "Little Miss Research", so I went out on the Internet after I posted my question and I actually may have found a totally "off-the-wall" explanation for it. Apparently some people show signs of a mold allergy when they ingest vinegar. Who'da thunk it?

These same people seem to have an allergic reaction to Penicillin, as well. Penicillin is one of the few medicines that I am actually allergic to - along with morphine, codeine, and hydrocodone, which I received after each of my C-Sections. They all make me itch like crazy.

I remember when I was 9, my parents had my sister and me checked for allergies, and one of the things that I was allergic to was mold. I never even thought of mold as being an internal allergy - after all, how many people EAT mold? I always thought of it as an airborne allergen. Looking back, though, it explains a whole lot.

I can only surmise that my body was working so hard to get all of the gluten out that the vinegar that did get into my system went virtually unnoticed. Ah, well, I guess I'm reading food labels anyway, so what's one more ingredient to look for?

I found that the Mozzarella cheese that I ate, as well as Dijon mustard and Worcestershire Sauce all have vinegar in them, so now they are on my official "no-no" list, too....

Thanks for your reply!

Teresa Koch

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,144
    • Most Online (within 30 mins)
      7,748
    Jenny0384
    Newest Member
    Jenny0384
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jmartes71
      Related issues

      By Jmartes71 · Posted

      Its been a complete nightmare dealing with all these health issues one thing after another and being told many different things.I am looking for a new primary care physician considering when I told my past doctor of 25 years I was diagnosed before any foods eliminated from my diet and now this year at age 54 no longer able to push considering Im always exhausted, leg pain , stomach,skin and eye issues,high blood pressure to name a few all worsen because I was a  school bus driver and few years until my immune system went to hell and was fired because of it.Im still struggling now, Im sibo positive and been told im not celiac and that I am.I have a hernia and dealing with menopause. Its exhausting and is causing depression because of non medical help. Today I saw another gastrointestinalist and he said everything im feeling doesn't add up to celiac disease since my ITg levels are normal so celiac disease is under control and it's something else. I for got I had Barrett's esophagus diagnosed in 2007 because recent doctors down played it just like my celiac disease. Im currently looking for a pcp in my area because it is affecting me personally and professionally. Im told since celiac looks under control it's IBS and I need to see a therapist to control it. Gastrointestinalist around here think only food consumption and if ITG looks normal its bit celiac disease it's something else. Is this right? This is what im being told. I want medical help but told its IBS.Im feel lost by " medical team "
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      My migraines generally have their onset during the early morning hours as well. Presently, I am under siege with them, having headaches all but two days so far this month. I have looked at all the things reported to be common triggers (foods, sleep patterns, weather patterns, stress, etc.). Every time I think I start to see a pattern it proves not to pan out in the long run. I'm not sure it's any one thing but may, instead, be a combination of things that coalesce at certain times. It's very frustrating. The medication (sumatriptan or "Imatrix") is effective and is the only thing that will quell the pain. NSAIDs, Tylenol, even hydrocodone doesn't touch it. But they only give you 9 does of sumatriptan a month. And it doesn't help that medical science doesn't really know what causes migraines. They know some things about it but the root cause is still a mystery.
    • Scott Adams
      Tamale ingredients

      By Scott Adams · Posted

      These are labeled gluten-free: https://www.amazon.com/Corn-Husks-Tamales-Authentic-Flavorful/dp/B01MDSHUTM/
    • Wheatwacked
      GI DX celiac despite neg serology and no biopsy

      By Wheatwacked · Posted

      Just a gluten free diet is not enough.  Now you have to identify and replenish your malnutrition.  Celiac disease is co-morbid with malabsorption syndrome.  Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely.  It takes time to heal and you need to focus on vitamins and minerals.  Gluten free foods are not fortified like regular processed foods.  
    • Sarah Grace
      Headaches / Migraines and Hypoglycaemia

      By Sarah Grace · Posted

      Dear Kitty Since March I have been following your recommendations regarding vitamins to assist with various issues that I have been experiencing.  To recap, I am aged 68 and was late diagnosed with Celiac about 12 years ago.  I had been experiencing terrible early morning headaches which I had self diagnosed as hypoglycaemia.  I also mentioned that I had issues with insomnia, vertigo and brain fog.   It's now one year since I started on the Benfotiamine 600 mg/day.  I am still experiencing the hypoglycaemia and it's not really possible to say for sure whether the Benfotiamine is helpful.  In March this year, I added B-Complex Thiamine Hydrochloride and Magnesium L-Threonate on a daily basis, and I am now confident to report that the insomnia and vertigo and brain fog have all improved!!  So, very many thanks for your very helpful advice. I am now less confident that the early morning headaches are caused by hypoglycaemia, as even foods with a zero a GI rating (cheese, nuts, etc) can cause really server headaches, which sometimes require migraine medication in order to get rid off.  If you are able to suggest any other treatment I would definitely give it a try, as these headaches are a terrible burden.  Doctors in the UK have very limited knowledge concerning dietary issues, and I do not know how to get reliable advice from them. Best regards,
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.