Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Looking For Advice


mama2two

Recommended Posts

mama2two Enthusiast

I have had a long standing battle with vaginal yeast infections, toenail fungus and some GI issues, constipation, pain etc. I have tried to treat myself with natural antifungals and diet, but decided to see a dr, to try to get rid of my eczema on my hands. he is an internal medicine MD, but also works in wellness and prevention and has some knowledge of supplements, celiac, fungus, etc. well on the first visit I was so glad to maybe get rid of my eczema and be rid of fungus. he had me take my temp for 5 days, keep track of my urine and saliva ph for 14 days and he ordered labs to check my thyroid, a CBC, CMP and I sent off stool and saliva specimens to a co. called Diagnos-techs. this checked for present of yeast, parasites, anti-gliadin antibodies, etc. All my tests are comming back fine, the only thing is that I am a little anemic, which I have been everytime I've ever been checked. I said that he wants to test my adrenals via saliva test through the same lab, and check an iron level. I may do the adrenal test but I don't think I'll do the iron test, I'm sure it probably is low. I am questioning the validity of this lab, anyone familiar with them? He wanted to put me on diflucan, but since I have been on this for 21 days before and did not have permanent results, but I was not following the diet that he has me on ( doug koufman's diet) He wanted to put me on sporanox, but I refused since it is so bad for you liver, also according to my test results, I have no fungus problem, but I believe I do. He suggested I buy OregaBiotic, it's an herbal antifungal, but he said it also kills you friendly bacteria too, so be sure to take it with a probiotic like two hours later, or before. He also suggested I buy Ambrotose, it's made buy a company called Mannatech, it's a glyconutrient. I did follow the diet for one week and my hands were not swollen like they usually are, and they were getting better, so I think the diet is helping but it is so hard to follow and I don't know if this guy knows what he's doing. I asked him about nystatin, because it's an anti-fungal that is good at treating GI tract yeast and has no side-effects and it's cheap, and safe, but he said well that mains deals with the gut yeast so I said well I thought that was where the problem is, I don't know what he said. Anyway I did buy the supplements the ambrotose and oregabiotic but I'm not sure that I needed these, and I don't think they will take them back. the diet is so hard to follow, if you stay home and fix your own food it's not too bad but if you go anywehre unless you bring your food with you, you can just starve because no one can accommodate you. I know this is alot to read, but any advise or shared experiences would be helpful.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator

Yeast doesn't become a problem all on its own....and if you focus on treating the yeast *only*...it usually never resolves.

Chronic yeast problems indicate that something has weakened the immune defenses...the body is not in "balance".

If the Dr. is treating the yeast instead of looking into some of the most common conditions which lead to yeast overgrowth...then yes...I would agree that he doesnt know what he's doing.

The diet/antifungals work....however, the yeast comes right back when you stop treatment. The underlying issues have to be identified and treated in order for the chronic yeast issues to resolve.

I dont know which type of test your doctor used for yeast?? Stool tests are not very reliable....blood antibody tests are more accurate.

Great Plains Lab. has a test (OAT) which looks for metabolites produced by yeast and bacteria....as well as many other things. It looks at 65 different compounds in the urine.

Parasites are difficult to test for....but most of us have them.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    2. - trents replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    3. - Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Probiotics

    4. - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    5. - Scott Adams replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,817
    • Most Online (within 30 mins)
      7,748

    sleuth
    Newest Member
    sleuth
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Hi @KathyR37 and a very warm welcome here.  I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana  
    • trents
      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    • Theresa2407
      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.