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Teen Wanting Celiac Online Friends!


Softballer7

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Softballer7 Newbie

anyone here wanna talk about like celiac and stuff!!!


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purple Community Regular

Hey, nobody has replied yet, sorry. I have 2 teens allergic to gluten so I just stopped by to say HI :D

CeliacAlli Apprentice

Get them on here to talk!!! :P

wrachelle Newbie

im 17 and was recently diagnosed with celiac disease and ive been lookin for someone around my age to talk to. if you want to talk you can email me at w.rachelle@yahoo.com

that goes for everyone who wants to talk. i love talking to people. but a lot of people dont get what i go through and how i feel. im just lookin for another celiac

i check my email everyday, i dont know how often ill be on the board

thanks =]

  • 2 weeks later...
nikky Contributor

hey im 15 and was diagnosed in December, pm me if you want, or join celiac teens (www.celiacteens.com/messageboard)

SBJCHICK Newbie

ok so hey guys....my dr. is 75% sure i have celiac disease.. i have to go on a gluten-free diet starting tomorrow for a few weeks, and even if my test negative and then if i feeel better i guess i will be gluten-free forever!!!!!! ...i had my endoscopy today oh what fun that was...i have been looking up just info so i will be well informed and celiac seems to STINK..i am 16 btw and i would love some advice =P

thanks guys

kenzie101 Newbie
anyone here wanna talk about like celiac and stuff!!!

hi! im 14. i have been gluten free now for almost a year.i know two other people that have a gluten intolerance too. but they are older than me by several years than me. so i would like to talk to some kids that are around my age.

thanks

~kenzie


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Lollipop Newbie

hi i'm becca. i'm 14 and have had celiac for over a year now. pm me if you want my email, or just to talk. Right now I'm on a special diet for another disease i have, so all i can eat is formula (like the kind babies have-which i get through an ng tube cuz it tastes nasty :blink: ), cantelope, and potatoes. I was gluten free for a year before this diet and felt much better.

becca

I'm 14 years old. diagnosed may 2007. also have eosinophilic esophagitis- and have an ng tube for that.

CeliacAlli Apprentice

ok so hey guys....my dr. is 75% sure i have celiac disease.. i have to go on a gluten-free diet starting tomorrow for a few weeks, and even if my test negative and then if i feeel better i guess i will be gluten-free forever!!!!!! ...i had my endoscopy today oh what fun that was...i have been looking up just info so i will be well informed and celiac seems to STINK..i am 16 btw and i would love some advice =P

thanks guys

It doesn't always stink, but at times it seems that way. It's a way of life, that eventually you WILL get used to. If you have a craving for something that you can't have then eat something even better that you can have, even if it's not healthy it's healthier than having gluten. I don't really know what it's like to go from having gluten filled stuff to none at all but I do have a curiosity/ a want to try what everyone else is having. In kindergarten I took a goldfish cracker from someone ate it and was vomiting for ten days..this has happened many times unfortunately. Hope this helps!!!

Alli

Gluten free since I was 11 months old

positive blood test

positive biopsy

Katester Enthusiast

I do. I'm 15 and was just diagnosed in January. I haven't found any that's near my age and willing to talk!

CeliacAlli Apprentice
I do. I'm 15 and was just diagnosed in January. I haven't found any that's near my age and willing to talk!

email me any time katester....allisonnn04@aim.com or softballstarallie@yahoo.com. I check it every day so email me if you wanna talk or post on here!! I love talking to other celiacs!!!!!!

CeliacAlli Apprentice

Okay well just wondering if this happened/happens to anyone else:

My parents had a middle with my teachers because they need to be aware that I have celiac. Thats FINE, BuT they are annoying about it, like I don't know what I can and can't have or I want to try something I know I can't have(well yah there are temptations but I can get over it!!!)...anyone else feel like you just want to be treated the same and have them still realize the situation..my parents don't have celiac and they don't understand. It's so frusterating!

CeliacAlli Apprentice
Okay well just wondering if this happened/happens to anyone else:

My parents had a middle with my teachers because they need to be aware that I have celiac. Thats FINE, BuT they are annoying about it, like I don't know what I can and can't have or I want to try something I know I can't have(well yah there are temptations but I can get over it!!!)...anyone else feel like you just want to be treated the same and have them still realize the situation..my parents don't have celiac and they don't understand. It's so frusterating!

  • 2 weeks later...
CranberryTheif Newbie

I hate going to resuraunts with my mom.

First thing she does when the server comes is jumps on them with "No Gluten and this and that"

Its annoying and embarrassing.

Especially because I'm not 5. I can tell the server my needs and ask questions.

She doesn't have Celiac either.

I'm the only one in my immediate family...

>.<

CeliacAlli Apprentice
I hate going to resuraunts with my mom.

First thing she does when the server comes is jumps on them with "No Gluten and this and that"

Its annoying and embarrassing.

Especially because I'm not 5. I can tell the server my needs and ask questions.

She doesn't have Celiac either.

I'm the only one in my immediate family...

>.<

I totally understand...anyone like completely emotional some days and you cannot figure out why?

FaeLD Newbie

Hi, another celiac here new to the forums :P

I was diagnosed at 14 months of age, and now I'm 16 and well.

@Alli. My parents also informed my old school I was celiac, mainly because I entered when I was 10 years, and still not completely aware of what I was allergic of. But after that one time, my parents had no more contact with the school regarding being celiac.

When I used to go to camps or such, my mum would always enter and explain things. It could be a bit irritating at times, but I just accepted it.

The main issue here is trust. If you can show your parents that you can uphold your diet they will start trusting you. For these last two years, any camp / dinner I went to, I ordered for myself because now they know that I know my condition better than they do (since I'm the only celiac in my family. Well my father is slightly intolerant but he still takes gluten).

Also, as for completely emotional. Yes, I do. It's called being a teenager. :P Everyone passes through such days at our age. We just have something to blame it on (even though it might not be directly influential.)

@CranberryThief. Give them a few months to understand that you can handle it on yourself. They'll start backing off slowly themselves. :)

Also, Aim / MSN / Y!IM should be in my profile. Anyone feel free to hit me up. I tend to suffer from boredom a bit :D

nikky Contributor
Okay well just wondering if this happened/happens to anyone else:

My parents had a middle with my teachers because they need to be aware that I have celiac. Thats FINE, BuT they are annoying about it, like I don't know what I can and can't have or I want to try something I know I can't have(well yah there are temptations but I can get over it!!!)...anyone else feel like you just want to be treated the same and have them still realize the situation..my parents don't have celiac and they don't understand. It's so frusterating!

Yea, i know what you mean, i was glutened in school(accidently) and i tried telling the receptionist and she just kept asking questions, then told me i couldnt possibly be having a reaction that quickly (i dont think shes ever seen a reaction of any type). She told me to go to lesson and see the teacher if i still felt ill. which i did, lucky for me my welsh teacher's father has coeliac and after telling me to read the label more carefully she let me go home. (In my defence the label had sutible for coeliacs on it). Most of my teachers have actually been ok, even though last year i always seemed to be missing physics to have bloods done. When i explained why to the same teacher earlier this year, i found that she already knew. (My form tutor had told her the night before, we were on a camping trip). But yea, sometimes i wish the teachers didnt know because that way they wouldnt act like i cant speak for myself sometimes.

  • 2 months later...
Stoyns619 Newbie

Hey guys whats going on?? I was diagnosed w/ celiac disease in early june and have only met one person that has this disease........ anyways hit me up on my face book i would love to get to know you. my name is Alex Stoyanoff. Hope to talk to you soon!!!

Anna and Marie Newbie
I totally understand...anyone like completely emotional some days and you cannot figure out why?

I understand too. It took my immediate family three years to get used to it but they're getting there! and yes, i get really emotional some days and can't figure it out! so does my twin. we're 17 and would love to talk to you guys. No one seems to want to listen to me when I need a friend, a best friend other than my sister whom I'm reallllly close to, to talk to so I stopped trying. It' ll be nice to share stories and minor frustrations with someone who truly understands! :D

  • 2 weeks later...
Stoyns619 Newbie
I understand too. It took my immediate family three years to get used to it but they're getting there! and yes, i get really emotional some days and can't figure it out! so does my twin. we're 17 and would love to talk to you guys. No one seems to want to listen to me when I need a friend, a best friend other than my sister whom I'm reallllly close to, to talk to so I stopped trying. It' ll be nice to share stories and minor frustrations with someone who truly understands! :D

Ya i hate that some days i just get really depressed and angry for no reason.

Anna and Marie Newbie
Ya i hate that some days i just get really depressed and angry for no reason.

me too.

B R I A N A Apprentice

I'll talk!

I don't know anybody on here.

I'm fifteen, from California. I found out I wasn't able to have gluten the day after my birthday last year. So December 2nd.

  • 3 weeks later...
minton Contributor

I'm 19, i know, just barely a teen still, but I was diagnosed 2 years ago and would love to talk to other people with celiac. My name is kelsey and you can email me anytime at anamia4life89@yahoo.com

ATC-BS-MS Apprentice

Hi all. I am 23 ( a little older than most of you, however I don't feel always comfortable with the "adult" forums).

I was diagnosed with Celiac and Casein sensitivity since April 2008.

I would have to agree about going out to eat or being in public with family members, especially my mom and my soon to be mother in law. I love my mom to death....but she feels the need to announce to everyone around us that I am on a gluten-free diet! Personally, I would like not to have everyone else know at all times. It's none of their business, unless I bring it up, or they ask me. I don't have a problem talking about it....I just am always annoyed by the fact that other people decide to announce it for me. Does anyone else have that problem?

My soon to be mother in law has the tendency of buying lots of gluten free products for me (which is great, I don't have to buy them) however, most of the items are DISGUSTING! But, I am too shy (intimidated by her) to say otherwise, so I usually choke it down and smile :) Hopefully, I will get the courage to say something...sometime.

I know since I am older than some, I would love to talk about anything. Contact me anytime.

-Danielle

Anna and Marie Newbie
Hi all. I am 23 ( a little older than most of you, however I don't feel always comfortable with the "adult" forums).

I was diagnosed with Celiac and Casein sensitivity since April 2008.

I would have to agree about going out to eat or being in public with family members, especially my mom and my soon to be mother in law. I love my mom to death....but she feels the need to announce to everyone around us that I am on a gluten-free diet! Personally, I would like not to have everyone else know at all times. It's none of their business, unless I bring it up, or they ask me. I don't have a problem talking about it....I just am always annoyed by the fact that other people decide to announce it for me. Does anyone else have that problem?

My soon to be mother in law has the tendency of buying lots of gluten free products for me (which is great, I don't have to buy them) however, most of the items are DISGUSTING! But, I am too shy (intimidated by her) to say otherwise, so I usually choke it down and smile :) Hopefully, I will get the courage to say something...sometime.

I know since I am older than some, I would love to talk about anything. Contact me anytime.

-Danielle

wow, this happens to us sometimes, our sister recently bought us something that turned us green for awhile, anyways good luck to you and have the best wedding in the world!!! :D

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