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Tired Of Playing Games - Finally Gone Gluten Free

leadmeastray88

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leadmeastray88 Contributor
leadmeastray88
Posted

A few weeks ago I had some testing done to check for parasites, as my surgeon said he'd like to rule that out before we talk scopes. I thought that was fair, so I did the testing. I got my results yesterday - they were negative for parasites.

I was relieved and was looking forward to talking scopes, when he told me "I think you have IBS. You're too young for me to be sticking telescopes in you. Plus, you've been through enough already this past year." He wrote me a prescription and told me to come back in a month.

I pretty much left there in tears. I know you'll all say I should have spoken up and demanded a scope. However, we have been very close over the past year because he cured my hernia problems that were caused bya birth defect which was ruining my life. I have so much respect for this guy, it's not even funny. But I'm sick of waiting, I'm sick of being sick. A month is a long time, I'm sure most of you can relate.

When I got home I talked to my mom, who was also shocked that he didn't suggest more testing for gastro issues or food intolerances etc etc. My mom said I should try the gluten free diet anyway. My grandma was also there and she argued that I should just take the pills and see him in a month. My grandma also said "well if the pills help then problem solved!" All I was thinking was 'No..problem not solved. I'd be on pills for the rest of my life - I'm 19!' I couldn't believe how emotional I was getting over this. I think it's more frustration than anything.

So today is my first day gluten free.

I kind of wanted a diagnosis for the same reason anyone does - just to have peace of mind, to know it's not all going to be for nothing, to make everyone else around you take it seriously... but I've realized that its really only me who needs to take it seriously, not everyone else. Maybe I'll give Enterolab a try.

I just wanted to thank all the people here (and I'm sure they know who they are) who have helped me cope with this and have been so encouraging not only to me but to everyone here. :)

Kim

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ShayFL Enthusiast
ShayFL
Posted

Im rooting for you!!

YoloGx Rookie
YoloGx
Posted

Good luck! Even if you don't clinically have celiac you could be gluten intolerant. So going without for a month is a good plan. I'd keep your doc informed since he seems to care about you.

Bea

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    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

      By trents · Posted

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    • BlessedinBoston
      Are Lindt chocolate balls gluten free?

      By BlessedinBoston · Posted

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

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    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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