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Tired Of Playing Games - Finally Gone Gluten Free

leadmeastray88

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leadmeastray88 Contributor
leadmeastray88
Posted

A few weeks ago I had some testing done to check for parasites, as my surgeon said he'd like to rule that out before we talk scopes. I thought that was fair, so I did the testing. I got my results yesterday - they were negative for parasites.

I was relieved and was looking forward to talking scopes, when he told me "I think you have IBS. You're too young for me to be sticking telescopes in you. Plus, you've been through enough already this past year." He wrote me a prescription and told me to come back in a month.

I pretty much left there in tears. I know you'll all say I should have spoken up and demanded a scope. However, we have been very close over the past year because he cured my hernia problems that were caused bya birth defect which was ruining my life. I have so much respect for this guy, it's not even funny. But I'm sick of waiting, I'm sick of being sick. A month is a long time, I'm sure most of you can relate.

When I got home I talked to my mom, who was also shocked that he didn't suggest more testing for gastro issues or food intolerances etc etc. My mom said I should try the gluten free diet anyway. My grandma was also there and she argued that I should just take the pills and see him in a month. My grandma also said "well if the pills help then problem solved!" All I was thinking was 'No..problem not solved. I'd be on pills for the rest of my life - I'm 19!' I couldn't believe how emotional I was getting over this. I think it's more frustration than anything.

So today is my first day gluten free.

I kind of wanted a diagnosis for the same reason anyone does - just to have peace of mind, to know it's not all going to be for nothing, to make everyone else around you take it seriously... but I've realized that its really only me who needs to take it seriously, not everyone else. Maybe I'll give Enterolab a try.

I just wanted to thank all the people here (and I'm sure they know who they are) who have helped me cope with this and have been so encouraging not only to me but to everyone here. :)

Kim

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ShayFL Enthusiast
ShayFL
Posted

Im rooting for you!!

YoloGx Rookie
YoloGx
Posted

Good luck! Even if you don't clinically have celiac you could be gluten intolerant. So going without for a month is a good plan. I'd keep your doc informed since he seems to care about you.

Bea

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      Severe severe mouth pain

      By cristiana · Posted

      I agree.  If someone has Barrett's Esophagus, at least here in the UK, as I understand it under normal circumstances a PPI needs to be taken long term (or similar medication).  I have two friends with this.  The PPI it does have side effects but they still have to take it.  
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