Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

A Few Questions, Need Advice


peetred

Recommended Posts

peetred Rookie

NO this is not for me, it is for my son who is on a gluten free diet at the moment. He is 2 and blood tests are negative, but shows symptoms when eating gluten.

Where is the best place for me to find out ahead of time what places we can eat at and what he can eat, especially concerning fast food. Some places have lists, some do not.. and I don't always trust the people at the drive through window that they actually checked to see what was in their food! Namely I am thinking of Burger King, Mcdonalds, Wendy's (they seem pretty celiac friendly), etc. I know there is practically nothing he can have at most places like Dairy Queen, etc... but some I don't know. Like Wendy's has gluten free hamburger meat but what about Burger king?

Secondly, we have seen improvement in our son but still has symptoms. It doesn't help that he may still be getting traces of Gluten that we are working on, and everyone offers him food wherever we go it seems. But, we want to be sure he doesn't have any other food intolerances or allergies... is it possible to find these things out this young and how? His main symptom is foul smelling diarrhea (he was 2 and had never had a formed bowel movement until we started Gluten free), but his symptoms havn't been night and day since we started Gluten free, so we are hoping to make sure he doesn't have any other problems as well.

I guess I just need people to talk to!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rosewynde Rookie

If you want to track it down keep track of what he eats and how he feels after. The best way to track this is avoiding eating out so you know the ingredients of everything. Testing by doctors doesn't always help though it's worth trying that too. You might just get told it's IBS.

As for restaurants, I can tell you what I do but it all has potential for problems. For general stuff look it up online do searches on a restaurant's name and the keywords gluten and/or allergy. Usually I get a good idea if it's safe just from that. You can also call ahead and ask a manager they can frequently tell you where to get the information on specific ingredients or look themselves.

I do have a personal list of fairly safe fast food places because we do long family car trips frequently. McDonalds, Carls, Dairy Queen, and In-N-Out all have safe burgers if you get them in a lettuce wrap (otherwise known as protein style or low carb). Always inform them you have what amounts to a wheat allergy and any crumbs on your burger could make you very sick ( most people have no idea what Celiac Disease or gluten is ; D). I haven't yet tried Burger King or Wendys. Hamburgers or unseasoned or unmarinated meat are typically safe at most places just ask a lot of questions.

Sauces that I use that I know are safe: Mcdonalds ketchup, In-N-Out's special sauce, Carl's Guacamole mix, Dairy Queens ultimate sauce. Keep in mind if sauces are squeezed or dropped onto items and you've checked the ingredients they are safe. If they are spread on with the same tool as is used for the bread they are not, I always ask. I've never had problems with tomato's or onions at any of these places.

French fries are not safe EXCEPT at In-N-Out. All other places share frying vats with battered items or have additives that have gluten or dairy. I haven't tried it but i heard somewhere that Wendy's plain baked potatoes are safe (no toppings). Best bet, is if you want a variety to go along with your meal carry safe rice cakes or chips in your car. Safe dried fruits, cereal, and nuts also work really well for on the go snacks. I also use Laura Bars and the rice ones from Environkids but they're expensive so I use them sparingly.

mamaw Community Regular

Hi & welcome

You are doing the right thing for your son & I want to say Thank YOU. Some just flip this off ... It will take time & trial & error will happen. The point is you are trying & willing to learn to help your son have a happy healthy life... Kudos to you.

I know that Red Robin has a gluten-free menu , Smokey Bones, Wendy's, chik -fil-lay.

Taco Bell now has wheat in the meat so that's no more. Chuckie Cheese allows us to bring in our own pizza & they will bake it on foil for us.

Dairy Queen has a gluten-free menu but i don't trust them making a blizzard , the cc with the spoons is a bit scary for me. We get vanilla or choc soft serve or milkshakes.

Alot of places when we know ahead of time , we take a bun with us....

Panera bread has a gluten-free menu, our kids love the gluten-free d soup there.

Good luck

mamaw

ShayFL Enthusiast

Pei Wei and Chipotle have gluten-free.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.