Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My 13 Year-old Daughter Is Going On Outward Bound ...


arkant

Recommended Posts

arkant Newbie

My daughter choose to go on an Outward Bound backpacking trip this summer. From the beginning I asked them if they could accommodate a gluten free child, and they insisted it was no problem. They decided to make the whole group gluten free, (except for cookies and such which can be easily segregated) which we both really appreciated. They sent me their regular menus, and I sent back an extensive list of substitutions of brands we like and trust. They never got the list somehow, and went to local health food stores and supposedly read labels, but I'm very nervous about the whole thing. I can just picture her out in the backwoods somewhere, feeloing miserable, with people who don't understand what's going on.

We're going shopping today for gluten free trail mix, etc.. We bring her up to the base camp tomorrow. Any suggestions? I don't want to be too obnoxious and seemingly neurotic by snooping through their provisions, since their intentions seem to be great, but ....

Thanks :blink:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

That is a tough one for sure. But I am going to assume your daughter is very good about reading labels, so she could ask to see the boxes/cans/etc. before meals to make sure. And packing safe things for her is, of course, very smart.

I know it is very difficult not to worry, but the time comes when we have to let our children start living their own lives. She shouldnt NOT go to this because of fear of sickness. That will just cripple her for life.

This is a great opportunity for her to learn to be assertive and take care of herself. I would explain to her that it will be up to her to look over things before she eats to make sure.

purple Community Regular

I agree with ShayFL. Also I believe it is your right to check over everything b/c its for your daughters safety. Schools check for weapons and drugs. To your daughter, food is just as harmful to her health. You might consider replacing their "wrong" items with gluten-free ones just incase they messed up. Then there would be no hastle.

CeliacMom2008 Enthusiast

The Outward Bound trips I've heard of are usually pretty isolated and can be long lasting. If that's the case with your daughter, I wouldn't hesitate to look through the food. Heck, I'm a worry wart, I'd look anyway! When I'm feeling nervous about my over protectiveness I usually just fess up really fast. "I know, I'm a worry wart. But a quick look through the food and I'll be able to sleep while you're gone." The Outward Bound folks are good at what they do and deal with parents is a lof of what they do. I'm sure you are not the first parent who has wanted to check up on things. And you have a perfectly good reason to. Find a way to say it in an upbeat manner and just do a quick check. Better that than your daughter finding out that they didn't realize barley had gluten or something. They wouldn't want to have to deal with that out in the field any more than your daughter would want to be sick.

I hope she has a wonderful time! I've wanted to do an Outward Bound trip for almost 20 years (yikes that makes me old!)

arkant Newbie

thanks guys--

unfortunately they had packed away all their stuff when I dropped her off. I asked them to let her check the labels. Since its a backpacking trip, they've already stuck most of the stuff in ziplocs. It was very annoying because they are so in the business of reassuring parents, but know nothing about celiac disease. I felt they were working harder to pacify me than to listen to what I actually had to say. So they made a big effort to get wheat free food, but didn't check gluten. They thought it was a wheat allergy. So they bought unsafe oatmeal, nutrition bars, etc... Meanwhile, I'm afraid the other kids are going to feel resentful, and my daughter singled out, because everyone's food is going to be unnecessarily limited.

We arrived with two big bags of groceries, which they took, but now I'm feeling like I better Fed ex a bunch more.

We really need to get the word out about celiac more so that our children can grow up in a world that has a clue about what we are talking about.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,140
    • Most Online (within 30 mins)
      7,748

    KP009
    Newest Member
    KP009
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      These are labeled gluten-free: https://www.amazon.com/Corn-Husks-Tamales-Authentic-Flavorful/dp/B01MDSHUTM/
    • Wheatwacked
      Just a gluten free diet is not enough.  Now you have to identify and replenish your malnutrition.  Celiac disease is co-morbid with malabsorption syndrome.  Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely.  It takes time to heal and you need to focus on vitamins and minerals.  Gluten free foods are not fortified like regular processed foods.  
    • Sarah Grace
      Dear Kitty Since March I have been following your recommendations regarding vitamins to assist with various issues that I have been experiencing.  To recap, I am aged 68 and was late diagnosed with Celiac about 12 years ago.  I had been experiencing terrible early morning headaches which I had self diagnosed as hypoglycaemia.  I also mentioned that I had issues with insomnia, vertigo and brain fog.   It's now one year since I started on the Benfotiamine 600 mg/day.  I am still experiencing the hypoglycaemia and it's not really possible to say for sure whether the Benfotiamine is helpful.  In March this year, I added B-Complex Thiamine Hydrochloride and Magnesium L-Threonate on a daily basis, and I am now confident to report that the insomnia and vertigo and brain fog have all improved!!  So, very many thanks for your very helpful advice. I am now less confident that the early morning headaches are caused by hypoglycaemia, as even foods with a zero a GI rating (cheese, nuts, etc) can cause really server headaches, which sometimes require migraine medication in order to get rid off.  If you are able to suggest any other treatment I would definitely give it a try, as these headaches are a terrible burden.  Doctors in the UK have very limited knowledge concerning dietary issues, and I do not know how to get reliable advice from them. Best regards,
    • knitty kitty
      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.