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Anyone Have Migraine Headaches That Look Like This?

TammyK

By TammyK
in Coping with Celiac Disease

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TammyK Apprentice
TammyK
Posted

I've been having health issues with my 11 yr. daughter. She had 2 definite seizures and is having smaller "episodes" that I thought was some form of a seizure. Then we went to the neurologist and he asked questions about family history of migraines but never really diagnosed anything. (We are scheduled for further testing in a month). I am stuck here at home and am not good at waiting and not knowing what is really happening. This is what happens... intense headache comes in throbbing form, she gets very dizzy, faint, pale, sometimes nauseated, and experiences bodily numbness, esp. noting her face/lip area. This episode comes in fast and leaves quickly, all taking about a minute or two. It leaves her feeling "weird" in the head, sort of weak and washed-out. She usually will try and communicate with me when it happens but I do noticed that being challenged. She can act a bit confused too. The numbness part really gets to me. This is NOT my understanding of a migraine. I find myself waffling back and forth (they are seizures, no, it's a headache, ect) and it is driving me crazy. We have a 24 hr EEG scheduled next month.

I have been surfing this site because we are working on figuring out food triggers and have definitely narrowed it down to gluten and MSG at this point. We have been able to STOP episodes mostly but yesterday she had one. (She was having 5-6 per day and now we are down to 1 every two weeks or so). My daughter had eaten pork fried rice at Chinese Restaurant and then a mocha chocolate cheesecake later wi crust removed. ????

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ShayFL Enthusiast
ShayFL
Posted

Soy Sauce!! That has gluten...and you cannot just remove the crust. Really to know if gluten free will get rid of these for her, you have to go 100% gluten free. If you want a diagnosis of Celiac first, then she has to keep eating gluten and lots of it to get all of the tests.

They sound like seizures to me. I used to get them in the middle of the night. Minus the headache. But all of the other symptoms. Potato is what caused my seizures. When I removed potatoes...I never had one again.

Gluten causes me to have vertigo. My food intolerances aggravate me neurologically. Bummer! But even harder to watch your child suffer. Sorry you have to be going through this.

I also had migraines prior to gluten-free. None since going off.

It is hard. But if you want to know for sure, you have to eliminate all gluten. You cannot risk eating out right now. And you need to clean your house/kitchen to prevent cross contamination with gluten.

tarnalberry Community Regular
tarnalberry
Posted

ditto - sounds like she's not gluten free, the chinese food and the contamination of the cheese cake.

I also have not heard of a migraine sounding like that (and I'm on topamax - an anti-epileptic - for migraine prophylaxis). the numbness, paleness, and brevity are all oddities when it comes to migraines. (difficulty speaking - due to pain, dizziness, and nausea are pretty common with bad migraines.)

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