Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Please Help! Glutened For Months... Anyone Else?

Beth41777

Recommended Posts

Beth41777 Rookie
Beth41777
Posted

I was diagnosed with Celiac a year ago. My symptoms are constipation, bloating, gas. (Along with iron def. anemia and who knows what other deficiencies.) I follow the gluten free diet strictly... I am suspect of everything and very careful. It took 2 or 3 months of that for my body to heal. I felt great for awhile, my hemoglobin and iron levels improved quite a bit, just by being on the diet, and my symptoms were greatly improved. (I realize everyone gets a little bloated and gassy now and then regardless of the Celiac.) Anyway I did good for a few months and then back in March we ate out at some restaurants while travelling and I got glutened. I have not felt better since! (4 months!!) I am wondering if it is really taking my body that long to heal and get back to normal or if somewhere along the way I have accidentally ingested more gluten, even though I am extremely careful. This is so frustrating since I feel crummy and want to get pregnant in the next couple of years! Anyone have similar symptoms / experiences? How long did it take for your body to heal? Can you pin point what foods "gluten" you since your symptoms arrive right away and are short lived? (Mine seem to last so long it is very difficult to pin point what I ate that caused the problem.) Any thoughts / ideas? Thanks, Beth

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ShayFL Enthusiast
ShayFL
Posted

Are you eating dairy? Could be that you re-damaged yourself bad enough that the little villi that digests casien arent working. You could try cutting dairy and see if that helps.

ravenwoodglass Mentor
ravenwoodglass
Posted

Add soy to the previous post also. I would eliminate both for a bit and then perhaps challenge after you have been feeling better for a while. I became reactive to both after a severe adverse reaction to an med and after I healed up a bit again dairy issues (casein) became less of a problem. I still avoid soy but may challenge that at a later date. I do get hives from soy now though so I don't think adding that back in is really in my future.

A-Swiss Rookie
A-Swiss
Posted

One thing I would check is your pantry. I did even further research on some common things and found out my continued pain was due to a few random items. Land O Lakes butter spread has modified food starch (but not the stick version), and it was in my fruit snacks and mixed nuts (really? why add wheat to mixed nuts?). I was in pain for about 2 weeks and thought I was going crazy (didn't even tell my wife). I cut those out and felt a lot better.

Beth41777 Rookie
Beth41777
Posted
  • Author
Are you eating dairy? Could be that you re-damaged yourself bad enough that the little villi that digests casien arent working. You could try cutting dairy and see if that helps.

Yes, I eat a LOT of dairy acctually. Although I was eating a lot of dairy the first time around. (When I was first diagnosed and went gluten free, and my body did heal while consuming a lot of dairy.) I will consider eliminating dairy, to see if I get any results... I'm just not sure what I will eat!!! Thanks for the advice.

Beth41777 Rookie
Beth41777
Posted
  • Author
One thing I would check is your pantry. I did even further research on some common things and found out my continued pain was due to a few random items. Land O Lakes butter spread has modified food starch (but not the stick version), and it was in my fruit snacks and mixed nuts (really? why add wheat to mixed nuts?). I was in pain for about 2 weeks and thought I was going crazy (didn't even tell my wife). I cut those out and felt a lot better.

Yes, I know what you mean! A month or so ago I discovered that I was eating raw almonds that were "manufactued on equipment that also processes wheat." Grrrr...

Beth41777 Rookie
Beth41777
Posted
  • Author
Add soy to the previous post also. I would eliminate both for a bit and then perhaps challenge after you have been feeling better for a while. I became reactive to both after a severe adverse reaction to an med and after I healed up a bit again dairy issues (casein) became less of a problem. I still avoid soy but may challenge that at a later date. I do get hives from soy now though so I don't think adding that back in is really in my future.

When I first went gluten free the only thing I elminated was gluten (This was 11 months ago when I got diagnosed) and my body healed itself by just eliminating gluten. I wonder if dairy / soy could become a problem now? I suppose anything is possible and I do eat a LOT of dairy, I am just wondering if I cut that and soy out what I will eat!! Seriously, thanks for the advice. I will consider it.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted
When I first went gluten free the only thing I elminated was gluten (This was 11 months ago when I got diagnosed) and my body healed itself by just eliminating gluten. I wonder if dairy / soy could become a problem now? I suppose anything is possible and I do eat a LOT of dairy, I am just wondering if I cut that and soy out what I will eat!! Seriously, thanks for the advice. I will consider it.

There is really a surprising amount of stuff you can still eat, although it may not seem like it at the moment. Fruits and veggies, Bakery on Main makes great granola, rice or hemp milk are good, there are snack foods and stuff although a lot of specialty gluten-free baked goods use soy but Kinnickinnick has some great breads, premade pizza shells that can double as a flat bread and Gluten Free Pantry makes some good cake and bread mixes. There are also meats and chicken and fish, nuts and berries, potatoes, rice. It is daunting at first but if it helps it is worth getting used to.

One more note, you mentioned that you were traveling when you got glutened in some restaurants. Have you taken a stool sample to your doctor? You may not be dealing with a new intolerance but with a bug that you may have picked up in your travels. You may want to make sure your not dealing with a food poisoning or something else that is just hanging on, just to be on the safe side.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,140
    • Most Online (within 30 mins)
      7,748
    KP009
    Newest Member
    KP009
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      My migraines generally have their onset during the early morning hours as well. Presently, I am under siege with them, having headaches all but two days so far this month. I have looked at all the things reported to be common triggers (foods, sleep patterns, weather patterns, stress, etc.). Every time I think I start to see a pattern it proves not to pan out in the long run. I'm not sure it's any one thing but may, instead, be a combination of things that coalesce at certain times. It's very frustrating. The medication (sumatriptan or "Imatrix") is effective and is the only thing that will quell the pain. NSAIDs, Tylenol, even hydrocodone doesn't touch it. But they only give you 9 does of sumatriptan a month. And it doesn't help that medical science doesn't really know what causes migraines. They know some things about it but the root cause is still a mystery.
    • Scott Adams
      Tamale ingredients

      By Scott Adams · Posted

      These are labeled gluten-free: https://www.amazon.com/Corn-Husks-Tamales-Authentic-Flavorful/dp/B01MDSHUTM/
    • Wheatwacked
      GI DX celiac despite neg serology and no biopsy

      By Wheatwacked · Posted

      Just a gluten free diet is not enough.  Now you have to identify and replenish your malnutrition.  Celiac disease is co-morbid with malabsorption syndrome.  Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely.  It takes time to heal and you need to focus on vitamins and minerals.  Gluten free foods are not fortified like regular processed foods.  
    • Sarah Grace
      Headaches / Migraines and Hypoglycaemia

      By Sarah Grace · Posted

      Dear Kitty Since March I have been following your recommendations regarding vitamins to assist with various issues that I have been experiencing.  To recap, I am aged 68 and was late diagnosed with Celiac about 12 years ago.  I had been experiencing terrible early morning headaches which I had self diagnosed as hypoglycaemia.  I also mentioned that I had issues with insomnia, vertigo and brain fog.   It's now one year since I started on the Benfotiamine 600 mg/day.  I am still experiencing the hypoglycaemia and it's not really possible to say for sure whether the Benfotiamine is helpful.  In March this year, I added B-Complex Thiamine Hydrochloride and Magnesium L-Threonate on a daily basis, and I am now confident to report that the insomnia and vertigo and brain fog have all improved!!  So, very many thanks for your very helpful advice. I am now less confident that the early morning headaches are caused by hypoglycaemia, as even foods with a zero a GI rating (cheese, nuts, etc) can cause really server headaches, which sometimes require migraine medication in order to get rid off.  If you are able to suggest any other treatment I would definitely give it a try, as these headaches are a terrible burden.  Doctors in the UK have very limited knowledge concerning dietary issues, and I do not know how to get reliable advice from them. Best regards,
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.