Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Interesting Observation

Guest Leidenschaft

By Guest Leidenschaft
in Post Diagnosis, Recovery & Treatment of Celiac Disease

Recommended Posts

Guest Leidenschaft
Guest Leidenschaft
Posted

A pleasant observation I've noticed recently... before going gluten-free 13 months ago, I would be crippled (felt like!) at least once a week with an incredibly painful Charlie Horse in my right butt muscle! :blink: The ache would last for a few days, but more alarming and annoying was the stabbing pain that would almost take me off my feet! Since my job is quite physical, it was a big pain in my backside! Literally and figuratively! :lol: Funny how it was always the right cheek! :o

Since being gluten-free, I can only remember one Charlie Horse!!! I'm not even sure if it was related to a contamination, although I think not because I've been contaminated many times without any butt pains! ;) Well not the muscle kind anyway... :unsure:

Does anyone else have an affliction that may not be consistent with celiac disease symptoms (if there are such things??) that has disappeared since being gluten-free?

I'm still not 100%, but I'm 100% happy that I don't have THAT annoying pain anymore! :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


KaitiUSA Enthusiast
KaitiUSA
Posted

I have heard the charlie horses are a sign of not enough calcium. I'm not sure if that is true but I have heard that alot. Maybe before diagnosis you weren't absorbing enough of what you needed and now being gluten-free you are. Just a thought :D

Guest Leidenschaft
Guest Leidenschaft
Posted

That's quite interesting! I had heard of that and was taking Calcium supplements without any results before going gluten-free. I would guess that since going gluten-free I'm able to utilize the calcium better!

That's a GOOD thing! :D

cdford Contributor
cdford
Posted

The charlie horses could be the result of not absorbing calcium or not absorbing magnesium. I have to take supplements of both to keep them under control. My midnight dances around the room have almost gone away.

KaitiUSA Enthusiast
KaitiUSA
Posted

Yeah I was lacking certain things when I was on supplements before I went gluten-free. I just wasn't absorbing them. After going gluten-free I am absorbing them now. That's probably what happened with you. At least they are better now :D

sfortney Newbie
sfortney
Posted

Potassium is also a factor with Charlie Horses in muscles. When my husband was having them frequently his doctor told him to try eating a couple of bananas each day to help with them. It worked!

Guest Viola
Guest Viola
Posted

I knew about the calcium, but never heard that potassium could also cause them. I'll have to let my husband know about that. We are always learning something new in this forum :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,057
    • Most Online (within 30 mins)
      7,748
    candicef
    Newest Member
    candicef
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • RMJ
      Toddler recently diagnosed with Type 1 diabetes and need help understanding coeliac screening test results

      By RMJ · Posted

      Celiac testing often includes looking at total IgA levels, because if someone is deficient the IgA tests for celiac disease may not be accurate (false negatives).  Did her doctors say anything about how much gluten she should consume?  If you change that it could affect her next test results.
    • knitty kitty
      Toddler recently diagnosed with Type 1 diabetes and need help understanding coeliac screening test results

      By knitty kitty · Posted

      @mytype1diabetes, Do keep in mind that Celiac Disease is genetic, so all first degree relatives (parents, siblings) should be checked for celiac disease as well.   Thiamine deficiency is common in breastfeeding mothers and their babies, even in countries where people are well fed and eat healthy.  A high carbohydrate diet requires more thiamine to turn those calories into energy.  Mothers on a high carbohydrate diet can be deficient in thiamine which also causes the infant to be deficient. DKA is found in children with thiamine deficiency.   Thiamine deficiency correction is part of DKA treatment. Thiamine deficiency needs to be addressed and corrected quickly and maintained.  Ask for an Erythrocyte Transketolace test for thiamine deficiency. I've experienced this myself.  Diabetics continue to lose thiamine due to poor renal uptake. Thiamine should be supplemented daily.  Thiamine is a constant in my life which helps immensely with my diabetes.   References: Thiamine deficiency in pregnancy and lactation: implications and present perspectives https://pmc.ncbi.nlm.nih.gov/articles/PMC10158844/ Pediatric thiamine deficiency disorders in high‐income countries between 2000 and 2020: a clinical reappraisal https://pmc.ncbi.nlm.nih.gov/articles/PMC9290709/ Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ The Impact of Thiamine Treatment in the Diabetes Mellitus   https://pmc.ncbi.nlm.nih.gov/articles/PMC3376872/#:~:text=Low plasma thiamine level was,increase in thiamine transporter expression. Thiamine as adjunctive therapy for diabetic ketoacidosis (DKAT) trial protocol and statistical analysis plan: a prospective, single-centre, double-blind, randomised, placebo-controlled clinical trial in the USA https://pmc.ncbi.nlm.nih.gov/articles/PMC10910407/#:~:text=Introduction,acidemia in patients with DKA. The relationship between lactate and thiamine levels in patients with diabetic ketoacidosis https://pubmed.ncbi.nlm.nih.gov/23993771/ Acute thiamine deficiency in diabetic ketoacidosis: Diagnosis and management https://pubmed.ncbi.nlm.nih.gov/17006386/ Thiamine status during treatment of diabetic ketoacidosis in children - tertiary care centre experience https://pubmed.ncbi.nlm.nih.gov/36440592/ Low thiamine levels in children with type 1 diabetes and diabetic ketoacidosis: a pilot study https://pubmed.ncbi.nlm.nih.gov/25560422/
    • mytype1diabetes
      Toddler recently diagnosed with Type 1 diabetes and need help understanding coeliac screening test results

      By mytype1diabetes · Posted

      Thanks for this Wends and appreciate your insights! I'm not sure what you mean by "Your toddler is unlikely igA deficient with a titer of 22, as a positive test." ? I had a look at Dr Bernstein's work and we've definitely noticed that on lower carb days her blood glucose levels are much easier to manage. Our nutritionist advised against a low carb diet for toddlers as they said young children, unlike adults, rely on carbs for their growth and development. What's your view on this? Regarding malabsorption - it's so hard to know what's "normal". My daughter's poos have always been on the softer side as she's breastfed and we eat very healthily. I've booked an appointment with our GP and will take some photos!
    • mytype1diabetes
      Toddler recently diagnosed with Type 1 diabetes and need help understanding coeliac screening test results

      By mytype1diabetes · Posted

      Thank you all for your kind wishes, it means so much. The information you've all shared has been so useful. We have a great diabetes team and trust the consultants decision to wait a few months to repeat the blood test. We also don't want to put her through any more tests than she needs as it's so tough on her and us! It feels unbearable waiting when she has some unexplained symptoms and as her mum I want to make sure we're doing everything we can to keep her healthy. That's interesting re: iron levels. I hadn't thought about that but I'm pretty sure this would've been checked as she was in hospital with DKA and they did lots of tests. I have requested a copy of her results.
    • Scott Adams
      Pepsid alternative

      By Scott Adams · Posted

      It seems crazy to me that even when you call a manufacturer they can't, in this day and age, answer the simple question about what exactly is in their product!!
×
×
  • Create New...