Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To celiac disease

dish23

By dish23
in Coping with Celiac Disease

Recommended Posts

dish23 Newbie
dish23
Posted

Hi all,

My mom just got diagnosed with celiac disease and we are both trying to figure this out together. Unfortunately, she is not PC savvy so I have joined some of these discussion groups and so far they are very very helpful.

Just wondering about the following products. Can we buy regular brand names found in local supermarkets, or do we have to buy from Whole Foods or Trader Joes?

Cooking oil

Cooking spray

Peanut Butter (looked at ingredients from Whole Foods 365 brand, and regular skippy and it seems the same)

Spices

Dairy (is all dairy ok - milk, eggs, cheese, parm cheese etc.....)

I also read somewhere (possibly on this site) that all Boars Head cold cuts are gluten-free. Is this true? If so my mom will be in heaven!!! LOL

Thanks in advance for all advice and resonses.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


missy'smom Collaborator
missy'smom
Posted
Hi all,

My mom just got diagnosed with celiac disease and we are both trying to figure this out together. Unfortunately, she is not PC savvy so I have joined some of these discussion groups and so far they are very very helpful.

Just wondering about the following products. Can we buy regular brand names found in local supermarkets, or do we have to buy from Whole Foods or Trader Joes?

Cooking oil

Cooking spray

Peanut Butter (looked at ingredients from Whole Foods 365 brand, and regular skippy and it seems the same)

Spices

Dairy (is all dairy ok - milk, eggs, cheese, parm cheese etc.....)

I also read somewhere (possibly on this site) that all Boars Head cold cuts are gluten-free. Is this true? If so my mom will be in heaven!!! LOL

Thanks in advance for all advice and resonses.

There are many mainstream products that are gluten-free. Wheat is required by law to be listed as "wheat" in either the ingredient list or the al;ergen statement. Barley is not required to be listed as "barley" so it is important to learn the names of ingredients that could be made from it. All mainstream oats are considered to be contaminated with wheat so we have to buy certified gluten-free oats. But some react to oats so it is advisable to wait until you've healed and introduce them slowly. They will say gluten-free the package. Here is a list of forbidden ingredients. https://www.celiac.com/articles/182/1/Unsaf...ents/Page1.html

Kraft is one of a few companies that voluntarily discloses all gluten so if you don't see the words "wheat" "barley" or oats or rye, it's safe. Kraft has many brands under it's umbrella so look for their name on the back of the label too. Eggs are not dairy.

All pure plain cooking oil is safe.

National celiac disease organizations like The Celiac Sprue Association and Gluten Intolerance Group are good source of info. and have their own websites.

Don't be afraid to call the 800 numbers on the labels and ask if something is gluten-free. Many companies are very helpful. You can also access info on their websites. Click on FAQ's or Contact Us to find gluten-free info. or e-mail them if you don't find the info.

dbmamaz Explorer
dbmamaz
Posted

Yes, boars head meats are safe. Dairy is fine if she can handle it. Many celiacs have trouble digesting dairy until they start to heal.

loco-ladi Contributor
loco-ladi
Posted

beware of dairy for starters and start out slow and simple then add from there....

fresh veggies and meat.....

go thru the cupboards at home and do a "label day" get out the list of "suspect" ingredients and start tossing any that have them, yeah sometimes its hard but I ended up just taking my whole cupboard of spices and giving them to a friend and went out and bought all new!

Clean out the old wooden utensils (my much loved rolling pin got me once) and plastic dishes and dishware, cast iron (I cried over these) stoneware can harbor ill tummy woes as well... after all thats done

go on a shopping spree! your cupboards are bare, lol

start researching other brands and fill in all those blank holes!

after a while your restocked and healthy too!

redgf Rookie
redgf
Posted

Just adding my two cents here, but I have always had the best luck going on my local grocery store's website, be it Publix or Wegmans or Winn Dixie, and if I don't find a gluten free listing of their store brand products I email them and ask for one.... and I get a new one every six months, just to be sure. That has cut my grocery bills in half - really! Also a warning - Boar's Head is gluten free, but beware of the deli hand that doesn't wipe the previous scraps off the slicer before slicing your gluten-free meat... residual gluten got me twice before I became "that customer" who always asks for the slicer to be wiped clean before slicing my meat!

Good luck!

curlyfries Contributor
curlyfries
Posted

Skippy peanut butter is fine. McCormick seasonings will clearly label any gluten ingredients. This will also be helpful:

Open Original Shared Link

dish23 Newbie
dish23
Posted
  • Author
Just adding my two cents here, but I have always had the best luck going on my local grocery store's website, be it Publix or Wegmans or Winn Dixie, and if I don't find a gluten free listing of their store brand products I email them and ask for one.... and I get a new one every six months, just to be sure. That has cut my grocery bills in half - really! Also a warning - Boar's Head is gluten free, but beware of the deli hand that doesn't wipe the previous scraps off the slicer before slicing your gluten-free meat... residual gluten got me twice before I became "that customer" who always asks for the slicer to be wiped clean before slicing my meat!

Good luck!

I have Pathmark, Waldbaums and Stop and Shop by me. Not one of them has a gluten free aisle. They tell me gluten-free can be found in the organic aisle.

Wow, I never thought of that about the slicer needing to be wiped! Thanks for the heads up.

Sheryl, West Hempstead NY

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,198
    • Most Online (within 30 mins)
      7,748
    Jamie0230
    Newest Member
    Jamie0230
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      Waiting Gastroenterology review

      By RMJ · Posted

      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Bev in Milw · Posted

      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
    • Ginger38
      Food Allergies

      By Ginger38 · Posted

      So I recently had allergy testing for IGE antibodies in response to foods. My test results came back positive to corn, white potatoes, egg whites. Tomatoes, almonds and peanuts to name a few.  I have had obvious reactions to a few of these - particularly tomatoes and corn- both GI issues. I don’t really understand all this allergy versus celiac stuff. If the food allergies are mild do I have to avoid these foods entirely? I don’t know what I will eat if I can’t  have corn based gluten free products 
    • JForman
      7yo struggling!

      By JForman · Posted

      We have four children (7-14 yo), and our 7 year old was diagnosed with NCGS (though all Celiac labs were positive, her scope at 4 years old was negative so docs in the US won't call it celiac). We have started her on a Gluten Free diet after 3 years of major digestive issues and ruling out just about everything under the sun. Our home and kitchen and myself are all gluten-free. But I have not asked my husband/her dad or her other siblings to go completely gluten-free with us. They are at home, but not out of the home. This has led to situations when we are eating out where she has to consistently see others eating things she can't have and she has begun to say "Well, I can't have <fill in the blank>...stupid gluten."  How have you supported your gluten-free kiddos in the mental health space of this journey, especially young ones like her. I know it's hard for me as an adult sometimes to miss out, so I can't imagine being 7 and dealing with it! Any tips or ideas to help with this? 
×
×
  • Create New...