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Patty55

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Patty55 Rookie

So happy to have had this site to resort to for the past two years! I have only written twice, the rest of the time just sat with my mouth open while I read about everyone who sounded like me!

I have only for the past two months been unable to shake my symptoms. For one year I was successfully gluten free after hospitalization and miss-diagnosis of Crohn's. Then developed Leaky Gut Syndrome and improved dramatically with nutritional supplements from my chiropractor and Kinesiologist. Two months ago I developed strange new symptoms, aching joints, feeling feverish and started on new nutrional supplements which contained trace amounts of wheat, defatted wheat germ, oat flour, alfalfa flour and buckwheat seed and juice, which my chiropractor tested and told me would not harm me. I immediately began feeling better, but noticed an obvious degree of hair loss and weight gain the day after starting the supplements. Also saw my regular MD who (of course) said it was a virus because of the aching. So I stopped the supplements and the sypmtoms reappeared! My chiropractor insisted I had a bacteria and that I continue the supplement. A week or so later he tested me again and said it was not a virus or bacteria, as he first thought, but a parasite. For the last three weeks he has treated me with Oil of Oregano and acidophilus, which has slightly alleviated the aching, etc. I have also developed a soy allergy, which I identified, thanks to this site, and he confirmed Kinesiologically (whew!). But to date I still have hair loss and the weight which I am not sure if due to the soy I've been unknowingly ingesting or the trace amounts of gluten I took for two weeks.

Can anyone tell me whether these disconcerting sypmtoms will go away soon or I should expect a wait while my body clears itself of the gluten and soy?

Thanks for listening and more for all your information!

Patty


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    • ShariW
      A lot of people erroneously think soy is a problem for people needing to be on a gluten-free diet. Trents' comment above speaks to some celiacs also having a sensitivity to soy, but this is just some of them.  However, soy sauce is something anyone following a gluten-free diet should be wary of. Many soy sauces contain wheat, which is where the soy/gluten confusion comes into play. There is gluten-free soy sauce available, just read labels to be sure. I use San-J Tamari, which is gluten-free but does contain soy, in place of regular soy sauce.
    • Rejoicephd
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    • trents
      I have many of those same CMP irregularities from time to time, with the exception that my potassium is always normal. What I can tell you is that it is normal for everything not to be normal when you get a CMP done. I used to get a CBC and CMP done annually and there were always some things out of spec. Docs don't get excited about it for the most part. It depends on the particular parameter (some are more important than others) and it depends on how far out of range it is. Docs also look for trends over time as opposed to isolated snapshots of this or that being out of spec at any given time. Our body chemistry is a dynamic entity. 
    • trents
      Not sure what you mean by "soy being like gluten". Soy does not cause a celiac reaction. However, soy is one of the foods that many celiacs don't tolerate well for other reasons. Eggs, corn and dairy are also on that list of foods that many of those with celiac disease seem to be sensitive to. But that doesn't mean that all celiacs are sensitive to any one of them or all of them. It just means it's common. You may not have a problem with soy at all. Celiac disease is not a food allergy. It is an autoimmune response to the ingestion of gluten that creates inflammation in the small bowel lining that, over time, damages that lining.
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