Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

And So The Saga Continues.....


Robynhood

Recommended Posts

Robynhood Newbie

Hi all...

I am new to the world of gluten intolerance, but not to the world of celiac....

Here is my story...

A number of years ago I went through a big bout of depression.. I was put on meds (of course) and non of them worked.. tried a psychiatrist, psychologist, counsellor, noting worked. finally switched to another Gp and she blood tested me. To her amazement my B levels were very low. She loaded me up with b12 intramuscularly and the depression went away.. imagine that.

I have been plagued with random bouts of the runs, muscle pain, headdaches, stomach aches, constipation, never ending cankers in my mouth, gastric reflux, and the list goes on... Oh and I am quite overweight..

I had a biopsy about ten years ago (it was negative) have had two blood tests, the most recent was about a year ago, all were negative. However... My dad has celiac disease. It is funny that I had all the symptoms first and they tested me but I was negative, eight years later, he gets tested and is positive.

So now I wondering if I am just really really gluten intollerant? I go to the clinic near my home to get a B12 shot every month and both of the doctors on call have told me to give up gluten. i know it seems like a no brainer, I was just wondering if anyone else has had an experience similar to mine but tested negative for celiac? I truly seem to have all the symptoms on the list, including little water blisters that come up on my fingers randomly??

thoughts, comments???

:) Robyn


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Amyleigh0007 Enthusiast

Your story sounds familiar. I have had classic symptoms all my life (dx with IBS when I was 14) and when my son was dx with Celiac in March a light bulb went off and I thought that's what I had. I was CERTAIN I had Celiac. My bloodtest was negative. I decided to go gluten free anyway since my son is and what a difference! I feel like a different person. It has only been about a month but I feel so much better. All my symptoms are gone. I am self dx as gluten intolerant. The diet proved it for me. Good luck!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,155
    • Most Online (within 30 mins)
      7,748

    cecilyyy
    Newest Member
    cecilyyy
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
    • Zuma888
      AIP really worked for me as well.
    • max it
    • N00dnutt
      Hi @terrymouse Generally, after a Celiac Seriology Blood Test, if something anomalous shows up, the follow-up will be a Gastroscope. Your Endocrinonogist will be looking to see if you still have (Villi). Villi are Tenticles/Hairs that are prevalent throughout the small intestine; their function is to extract nutrients, vitamins and water. The absense of Villi will typically result in watery bowl movements, other telltale signs being, lethargy, feeling cold, always hungry (valuable nutrients are being bypassed). I was diagnosed 12 years ago. One other thing associated with an AutoImmune Disease, they generally have a companion, in my case I have Hypothyroidism, other may have Hyperthyroidism (Hashimoto's). Others may get Eczema, or some other skin disorder, usually due to not getting the proper nutrition your body needs.   HTH Mark.  
    • jeriM
      Thank you Knitty Kitty,   I have all the information for the nutritionist sitting in front of me, but I've procrastinated.   Between you and Scott - I'll contact him tomorrow and get started on a better me.   Thank you both for all the support and information.    
×
×
  • Create New...