Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Amazing How Fast And Severe My Daughter Reacted To Gluten Today.


TammyK

Recommended Posts

TammyK Apprentice

I've been working on cleaning her diet up for weeks now but all it took was for one little friend to offer her a nible of her cookie. (We are working long hours at the county fair and are surrounded with gluten. Heck, we are surrounded by gluten anywhere but home). She admits now that it was totally not worth it. One hour later after the cookie, she started to tremble, body was so weak she thought she was to faint or collaspe, became extremely dizzy, whole body tingling, her head weird, blurry vision, weird facial sensations, couldn't respond to my questions .... My daughter first sat down on a cooler to protect herself from falling and then decide to lay down onto a filthy, cold cement floor until it passed. This lasted atleast 5-7 minutes, probably more. For the remainder of the day her head has been "recovering". (But no headaches). This episode was very scary and caused us both to cry later once home. She kept saying over and over, "I hate seizures. They are horrible."

One little bite!

I'm thinking that her little friend won't be able to entice her again. Should I mention it to the girl's mother? (Maybe my daughter will be strong enough to resist now). My daughter doesn't want her to get in trouble knowing their will be heck to pay. Afterall, my daughter agreed. What are your thoughts?

TammyK.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Beth in NC Contributor

How old is your daughter? Did the friend know she wasn't supposed to have it?

ravenwoodglass Mentor

I would not mention it to the friend or her parents unless it happens on a regular basis. Your DD learned a hard lesson with that one little bite. It was an important one so don't be too hard on her. The one who ultimately is going to have to keep her safe is her. This one incident and her reaction is going to go a long way to helping her resist other offers. While we hate to see our children suffer we can't be with them all the time and the strength of her reaction is going to help to keep her safe in the long run.

ShayFL Enthusiast

I agree. I wouldnt mention it to the friend. It might make the friend disappear. Better for your daughter to learn to resist. Because throughout life there will be A LOT of temptation.

TammyK Apprentice
How old is your daughter? Did the friend know she wasn't supposed to have it?

She is 11 yrs. old. This is the first time I have had her out in public without practically sitting on her since it started in May. Plus, it's been a long while since she has actually eaten pure gluten. We've had many reactions but it has been to hidden gluten.

I think this is great advice from you all. I thought for sure people would say to tattle. The mother would be mortified if she knew. This family has been particularly supportive regarding our circumstances having prayed for us every single day. The little friend absolutely did know. Good thing she got to see the whole thing having commented, "I didn't know just one little bite could do that." I did watch her sit in front of my Maddy and eat gluten all day long. That was hard for me.

Maddy said, "Mom, I fell temptation" in a very sobering manner and matter of factly. I'm hoping she won't forget too soon how awful she felt.

kbtoyssni Contributor

I'm guessing most non-gluten-free 11-year-olds don't realize the severity of the disease. After all, how many times have we heard from grown-up friends and family "one little bite won't hurt". And she might see your daughter eating (gluten-free) cookies and think that a bit of cookie is ok. Or she may have forgotten that cookies have gluten - it's easy to forget if you don't do this every day. I doubt her friend was purposely or maliciously trying to make her eat gluten, sounds like she was just trying to be nice and share her yummy treat. I'd let it slide. In the end, it's really up to your daughter to know her diet.

ShayFL Enthusiast

Kids do need to learn on their own. Here is a good example. For years I have drilled healthy eating into my daughter's head. And we dont eat junk around our house.

Her school has an annual dance every year. Well the one before last, Althea was sick when I picked her up. She said she had eaten cake and a bunch of soda. She wanted to puke. Well this last dance was very different. I didnt say a word to her....just "have fun". When I picked her up, she was beaming. She had had a great time! She said, "Mom I had sooooo much fun!! I didnt eat any of the junk and I only drank water".

They do learn......


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,548
    • Most Online (within 30 mins)
      7,748

    Lunaluv
    Newest Member
    Lunaluv
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.