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I Need Itch Info. Fast!


dakota girl

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dakota girl Rookie

OK, guys, I've been reading you all for 2 yrs., since I was diagnosed August of '06. All your talk has been invaluable, but now I really need to ask an indelicate question. What is with this awful anal itch? Is it just me? Has anyone had it? I am as gluten free as I knowingly can be...I read every label, don't cheat, etc... Please advise!


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curlyfries Contributor
OK, guys, I've been reading you all for 2 yrs., since I was diagnosed August of '06. All your talk has been invaluable, but now I really need to ask an indelicate question. What is with this awful anal itch? Is it just me? Has anyone had it? I am as gluten free as I knowingly can be...I read every label, don't cheat, etc... Please advise!

I don't have that problem, but if you put in *anal itching* in the search box you will find a lot of opinions on that subject.

YoloGx Rookie

Hi,

I didn't see much that was very extensive or that helpful on this subject on the boards so I think its of value to discuss it here now.

I have this problem too along with vulvar swelling and itching and flaking. Recently I developed a crack a couple of inches up away from my anus--so its not hemerroids. Not only is it uncomfortable and embarrassing but its hard on the sex life if you get my drift...

I discovered for me it has a lot to do with candida overgrowth. I was given a trial antifungal at Planned Parenthood when I had this checked out last fall and it really worked. I have put off getting more since the anti fungal can be hard on the liver etc. and this winter/spring I had to take two courses of antibiotics to save my kidneys after getting CC'd repeatedly and got some kind of bacterial infection in my lungs.

So up til now I just haven't felt strong enough to take the anti fungal. Plus I understand that even with the AMA anti fungal it comes back if one doesn't follow an anti candida diet. Certainly one week of the AMA treatment was not long enough for me.

So for now recently I have been taking homeopathic remedies for this itching and rash etc. (gluten-free suppositories and gel) which does really seem to help as well as the usual herbal remedies and probiotics as long again as they are gluten-free! By the way, I have found that for the probiotics to be more effective they need to be enterically coated. Ditto with the garlic.

Nevertheless, although better, I still have to avoid fruit for now and may also have to cut out all gluten-free grain flours etc. I already discovered that for now dried beans are out.

I am thinking I may also be low on essential fatty acids since the ones I had ran out. I plan to start grinding fresh flax seed again in my little electric coffee grinder to see if that will help. I am also thinking of starting to take selenium and zinc again since I tend to be low on minerals and both help with all kinds of things like connective tissues and skin.

When its really bad sometimes I put on Indian Healing clay (bentonite)--which seems contradictory to what one might figure should work but I find it really does take the itch away without harm to my skin. Kind of messy but its white and just washes out. It pulls all the swelling and itching out.

Fresh aloe vera has also helped to some extent as well as licorice root powder. I have found even better try barberry root powder to kill the candida.

Avoid anything with alcohol in it (this almost goes without saying) even if its gluten-free alcohol.

I am considering buying some grapefruit seed extract and making a wash from it to clear the area of excess candida/fungus. I am allergic to it internally but think it will be OK externally... For those that aren't allergic to it, its a great anti-fungal. Just make sure you only use a few drops in lots of water since its extremely intense otherwise and will burn you.

I don't think I am allergic to the nightshade family, however some here on the boards are and have found this causes the itching. If nothing else works I will try going off of it too.

Hope this begins a good discussion! And lets do compare notes if we have any successes.

Bea

feelingbetter Rookie

I had the anal itching a few months back. I have been gluten-free/cf for 5 months. I have been on the specific carb diet for about 3 months. I went from being very very sick to feeling the best I have in my whole life. We have a specialist here where I live and this md has celiac herself. She claimed that the patients in her practise who followed the SCD were the ones with the best recovery.

Best Always

Brenda

Fiddle-Faddle Community Regular

Panty-liners can cause all kinds of itching in delicate places! The back edge of the liner--which is plastic--can end up irritating the anal area.

Try loose cotton underwear, NO panty liners (change underwear half-way through the day if you have to), NO panty-hose, etc.

Also, make sure you are scrupulously clean after pooping--especially after a slightly mushy "celiac" poop--these can be very hard to clean. Use baby wipes instead of toilet paper, and wipe until it's really clean!

jerseyangel Proficient

Another cause can be acidic foods--coffee, orange juice, chocolate, tomatoes, spices, etc. I found that after I went gluten-free, I would get the itching as things began to affect me in that way that they never had before. I have to be very careful with citrus--maybe a splash in some tea once in a while and that's it. Same with tomato products.

Try wiping with toilet paper moistened with plain water--and take a bath if possible instead of a shower, or at night. You want to keep the area as clean and dry as possible.

Hope you can get some relief soon :)

Juliebove Rising Star

You could try the OTC yeast infection creams. You can also buy special mild soap for yeast infections. I got some online and also some drops to put in my bath. What really helped me was stopping the use of tampons. I don't know why but those seemed to cause yeast infections with me. After I stopped using them, I have had only one and it was related to antibiotics.

I agree on the liners. I don't use those.


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JNBunnie1 Community Regular

Keep in mind, not everything is food or Celiac related. You're talking about sudden anal itching. You might've just had a bit o' tear that's healing, or you might wanna spend some time googling pinworms.

lynn729 Newbie

hi,

oh yes!

I had the anal itch until recently! I was given Taclonex and it quieted down the itching about 90%. I was also given cortisone shots in all the active areas that did not react to the taclonex. Yes even in my crack. It seems my diet is helping keep the itching at bay.

i hope you find relief. i've been there!

lynn

YoloGx Rookie

Just wanted to report eating a more Paleo diet by going off all grains and more vegetables plus fresh gound flax seed so far seems to be helping reduce my "itchy b%$@#ies" a great deal.

For now I am avoiding fruit and yogurt as well. This should help cure the candida/fungus amongus and seems to be making a big difference even in the crack as well as the exterior of my nethers.

The gel homeopathic also seems to be helping as well as the pao de arco and oregano oil and enterically coated probiotics plus enterically coated garlic. However I was already using these items with less success before this recent change in diet.

I may need to go off of vinegar as well since I noticed increased redness after using some in my salad.

Am not sure yet about the tomatoes and green pepper and potatoes. Though sugar wise I suppose I shouldn't buy any more potatoes for a while.

I am tempted to eat the wild elderberries since they seem like they have very little if any sugar. But am going to wait a few days and then challenge it.

Haven't had to use any barberry today since the itch has greatly reduced. It mostly doesn't itch at all except this morning and this evening for a little so I put on more of the homeopathic gel and it once again stopped.

The crack meanwhile is obviously healing as is the skin around the vulva--less red and greatly reduced flaking and peeling. This is just day two on this diet for me so I have high hopes--especially when I start taking the barberry root powder again. However I like to go off barberry every once in a while since its so strong. I may get some neem tomorrow to replace it in the meantime.

There is no place else I could ever go into such graphic detail as here; hope I haven't offended anyone. But really this has been a bane to me for 4 years now ever since I was on some very heavy antibiotics to get rid of a bacterial infection which may have been caused by a tick bite. It worked with my heavy duty herbs praise to the gods, however the itch came in afterwards with a vengeance and has just kept on staying around driving me crazy. At one point I thought it was herpes but thankfully it isn't. Then it got even worse after another 2 courses of antibiotics this spring to get rid of both a lung infection and kidney infection after getting CC'd several times after I had gone off all trace glutens.

I am so glad a new friend of mine reminded me about the Paleo diet! As well as someone here saying that 20% of those who have celiac are grain sensitive in general and thus really shouldn't be eating grains at all. I think I can handle eating washed and cooked whole quinoa but even that for now I am going to avoid to see how this goes.

Bea

  • 3 weeks later...
dakota girl Rookie
Just wanted to report eating a more Paleo diet by going off all grains and more vegetables plus fresh gound flax seed so far seems to be helping reduce my "itchy b%$@#ies" a great deal.

For now I am avoiding fruit and yogurt as well. This should help cure the candida/fungus amongus and seems to be making a big difference even in the crack as well as the exterior of my nethers.

The gel homeopathic also seems to be helping as well as the pao de arco and oregano oil and enterically coated probiotics plus enterically coated garlic. However I was already using these items with less success before this recent change in diet.

I may need to go off of vinegar as well since I noticed increased redness after using some in my salad.

Am not sure yet about the tomatoes and green pepper and potatoes. Though sugar wise I suppose I shouldn't buy any more potatoes for a while.

I am tempted to eat the wild elderberries since they seem like they have very little if any sugar. But am going to wait a few days and then challenge it.

Haven't had to use any barberry today since the itch has greatly reduced. It mostly doesn't itch at all except this morning and this evening for a little so I put on more of the homeopathic gel and it once again stopped.

The crack meanwhile is obviously healing as is the skin around the vulva--less red and greatly reduced flaking and peeling. This is just day two on this diet for me so I have high hopes--especially when I start taking the barberry root powder again. However I like to go off barberry every once in a while since its so strong. I may get some neem tomorrow to replace it in the meantime.

There is no place else I could ever go into such graphic detail as here; hope I haven't offended anyone. But really this has been a bane to me for 4 years now ever since I was on some very heavy antibiotics to get rid of a bacterial infection which may have been caused by a tick bite. It worked with my heavy duty herbs praise to the gods, however the itch came in afterwards with a vengeance and has just kept on staying around driving me crazy. At one point I thought it was herpes but thankfully it isn't. Then it got even worse after another 2 courses of antibiotics this spring to get rid of both a lung infection and kidney infection after getting CC'd several times after I had gone off all trace glutens.

I am so glad a new friend of mine reminded me about the Paleo diet! As well as someone here saying that 20% of those who have celiac are grain sensitive in general and thus really shouldn't be eating grains at all. I think I can handle eating washed and cooked whole quinoa but even that for now I am going to avoid to see how this goes.

Bea

dakota girl Rookie

Thx 4 the replies! I'll look into several of your suggestions! It helps loads just to know that you may not be as crazed as you are afraid you might be! I'm thinking the chocolate I thought was safe may be a culprit...or one of possible things to use to pinpoint origin of the 'itchy b%$@#ies'...love the phase, so true! I am eating a flax sunflower seed kinnikinik (too tired to check spelling) bread, and a soy flour muffin mix...maybe should lay off them for a determiner. Thank you to all who replied! This forum is invaluable! Happy Monday!

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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