Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Been Very Sick For 2 Years-changes With gluten-free Diet


hviola

Recommended Posts

hviola Newbie

I have been very very sick for about 2 years. These symptoms popped up gradually over a period of 3 months when I was going through a lot of stress and a bout of pnemonia. (Although, I have always had problems with digesting, joint pain, and anxiety my whole life.) I have seen every doctor and they say I am in perfect health. I even had to quit my job because Im sick! And the Dr's say nothing is wrong!?! Through more and more research on my own, Im starting to think it is food allergies. So I was trying an elimination diet of the different main allergens. I started with gluten. And after 4 days gluten-free, I am showing improvement.

Here were my symptoms and the improvements so far, if any:

(Some I dont list improvements because its too soon to tell)

I am 29 years old and Female

Bad Fatigue (Gone now for 2 days.)

Brain Fog, cant think, confusion (feels a little better)

Extreme light sensitivity (About 20% better. I went to Walmart without feeling like I would pass out from the light)

Sound/Touch sensitivity

Nausea after eating (a bit better)

Anxiety

Depression

Fatty looking stools (not present for 2 days)

Stools only 2-3 times a week

Stomach cramps with frequent diarreah

Dizzyness/Lightheadedness

Had a spontanious miscarriage at 17 weeks!! For NO reason, nothing wrong with baby or me...

Joint pain-neck, lower back, knees, hips (havent felt any since quitting gluten so far)

A lot of times I just feel like I am stoned or had some drinks. Sometimes it even seems like I took some acid or something.

Get extremely sick when trying to diet (When I diet, I eat more cereal and whole wheat)

Severe tonsil infections since I was 8 years old, got them out at 23 years old!

Does any of this sound like symptoms you guys have gone through? Should I ask my doctor for an allergy panel to see if there are any other food allergies?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



glutenfreegirl Enthusiast

Hi I have never posted before so I hope I am doing this right!!

Anyway reading your psot I felt like I had writed it myself symptoms and all except for the misscarrage I am sorry for your loss

Iwould definetly get tested however I beleive you have to be eatting gluten for the test to be accurate..

good luck you are definetly in the right place to get help and answers everyone here is so friendly..

quote name='hviola' date='Aug 5 2008, 05:52 PM' post='453779']

I have been very very sick for about 2 years. These symptoms popped up gradually over a period of 3 months when I was going through a lot of stress and a bout of pnemonia. (Although, I have always had problems with digesting, joint pain, and anxiety my whole life.) I have seen every doctor and they say I am in perfect health. I even had to quit my job because Im sick! And the Dr's say nothing is wrong!?! Through more and more research on my own, Im starting to think it is food allergies. So I was trying an elimination diet of the different main allergens. I started with gluten. And after 4 days gluten-free, I am showing improvement.

Here were my symptoms and the improvements so far, if any:

(Some I dont list improvements because its too soon to tell)

I am 29 years old and Female

Bad Fatigue (Gone now for 2 days.)

Brain Fog, cant think, confusion (feels a little better)

Extreme light sensitivity (About 20% better. I went to Walmart without feeling like I would pass out from the light)

Sound/Touch sensitivity

Nausea after eating (a bit better)

Anxiety

Depression

Fatty looking stools (not present for 2 days)

Stools only 2-3 times a week

Stomach cramps with frequent diarreah

Dizzyness/Lightheadedness

Had a spontanious miscarriage at 17 weeks!! For NO reason, nothing wrong with baby or me...

Joint pain-neck, lower back, knees, hips (havent felt any since quitting gluten so far)

A lot of times I just feel like I am stoned or had some drinks. Sometimes it even seems like I took some acid or something.

Get extremely sick when trying to diet (When I diet, I eat more cereal and whole wheat)

Severe tonsil infections since I was 8 years old, got them out at 23 years old!

Does any of this sound like symptoms you guys have gone through? Should I ask my doctor for an allergy panel to see if there are any other food allergies?

samcarter Contributor

Oh yes, I've had the brain fog. For the past 9 years I've felt like I was getting stupider and stupider. Add to that the depression I've had all my life (even as a little child), and suicidal thoughts.

For a while there it was feeling like i'd been drugged--after a meal of pizza or bread, I would just feel like somebody had given me sleeping pills, or I'd had a few drinks. It wasn't so much fatigue as total lethargy. And in the mornings (especially the morning after pizza) I'd feel like I had a hangover. Never wanted to get out of bed. And the bloating, oy.

I've been gluten free for four days, and it is getting better. I feel like my digestive system is still healing, BUT...interestingly enough, where i used to excrete all my vitamins (could tell because my vitamin pills are yellow, and I'd pee bright yellow the next morning), that's not happening. So maybe absorption is getting better. The brain fog and fatigue are most likely from malabsorption of B vitamins (same for depression and anxiety). Make sure you're taking a good B complex vitamin, gluten free of course, and try to take it with your evening meal to give your body time to metabolize it during the night.

KristaleeJane Contributor

Hello and Welcome

Well I just want to say that I have or should I say had a lot of the same symptoms, I am 28, and had tonsilitis, and strep throat so much growing up also and they eventually took my tonsils out at 23 also. I have been trying to get pregant for the last 9 mths with no luck, and so sorry to hear about your miscarriage.

I got diagnosed with celiac only about 3-4mths ago, and I am starting to feel so much better now, I had the blood work done and then a biopsy with both confirmed celiac disease.

If a diagnosis is important to you, you make want to consider that you have to be consuming gluten for the tests to be accurate, you shouldn't start gluten free until your tests are finished.

If diagnosis isn't important to you and you want to start the diet on your own then you don't need to worry about this.

Many of your symptoms sound like celiac disease, my doc tried to tell me I had IBS for a while too.

you should have a celiac panal of blood work done while consuming gluten and if they come back with any sign of celiac then your next step would be to have a biopsy.

Good luck

Krista

Amyleigh0007 Enthusiast

Hi! Allergy testing won't tell you if you have Celiac but it can help in determining if other foods bother you. That is what I am doing on the 11th. KristaleeJane is right about Celiac testing. Make sure you are consuming enough gluten or you could end up a false negative (that's what happened to me).

hviola Newbie
Hi! Allergy testing won't tell you if you have Celiac but it can help in determining if other foods bother you. That is what I am doing on the 11th. KristaleeJane is right about Celiac testing. Make sure you are consuming enough gluten or you could end up a false negative (that's what happened to me).

I spoke with my doctor today, and he is going to send me to an allergist. He also said he wants to test me (blood tests) for celiac and other food allergies.

Did you get re-tested after your false negative?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,536
    • Most Online (within 30 mins)
      7,748

    Flibertygibbet
    Newest Member
    Flibertygibbet
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
    • Celiac50
      That sounds so very likely in my case! I will absolutely ask my doctor on my next bone check coming up in March... Thanks a lot! 
    • trents
      Calcium levels as measured in the blood can be quite deceiving as the body will rob calcium from the bones to meet demands for it by other bodily functions. Also, supplementing with calcium can be counterproductive as it tends to raise gut pH and decrease absorption. More often than not, the problem is poor absorption to begin with rather than deficiency of intake amounts in the diet. Calcium needs an acidic environment to be absorbed. This is why so many people on PPIs develop osteoporosis. The PPIs raise gut pH. And some people have high gut PH for other reasons. Low pH equates to a more acidic environment whereas high pH equates to a more basic (less acidic) environment.
    • Celiac50
      Kind thanks for all this valuable information! Since my Folate was/is low and also my Calcium, there IS a chance I am low in B vitamins... My doctor only measured the first two, oh and Zinc as I has twisted her arm and guess what, that was mega low too. So who knows, until I get myself tested properly, what else I am deficient in... I did a hair mineral test recently and it said to avoid All sources of Calcium. But this is confusing for me as my Ca is so low and I have osteoporosis because of this. It is my Adjusted Ca that is on the higher side and shouldn't be. So am not sure why the mineral test showed high Ca (well, it was medium in the test but relative to my lowish Magnesium, also via hair sample, it was high I was told). But anyway, thanks again for the VitB download, I will look into this most certainly!
    • ElisaAllergiesgluten
      Hello good afternoon, I was wondering if anyone has ever brought their anti-allergy pills? I have been wanting to use their Cetirizine HCI 10mg. They are called HealthA2Z and distributed by Allegiant Health.I’m also Asthmatic and these allergies are terrible for me but I also want to be sure they don’t have any sort of gluten compound.    I have tried calling them but to no avail. Has anyone ever used them? If so, did you had any problems or no problems at all?    thank you
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.