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Questions About Testing...

Lymetoo

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Lymetoo Contributor
Lymetoo
Posted

Hey gang! It's been quite awhile since I've been here. I never REALLY had a definitive test for celiac disease... I don't think.

I dont know if I'm a true celiac or gluten intolerant. I have been less than careful about my diet when eating out, etc.

I think I'm suffering from celiac symptoms again. I don't get deathly ill from ingesting gluten... it's more subtle.

I've been having trouble with what was thought to have been a stone in my bile duct and I just found out there is no longer one there.

I've been having dizziness, fatigue, and stomach pains [stomach, not intestines]. I lost about 25 lbs over the past 6 months.

So... if i get tested thru Enterolab, is there any chance it will be covered by insurance?? I need to find out if I'm a true celiac or not.

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Rachel--24 Collaborator
Rachel--24
Posted
So... if i get tested thru Enterolab, is there any chance it will be covered by insurance?? I need to find out if I'm a true celiac or not.

You cant find out whether or not you have Celiac Disease throuh Enterolab.

They can only tell you whether or not you are sensitive to gluten....but they cannot diagnose Celiac Disease.

Lisa Mentor
Lisa
Posted
Hey gang! It's been quite awhile since I've been here. I never REALLY had a definitive test for celiac disease... I don't think.

I dont know if I'm a true celiac or gluten intolerant. I have been less than careful about my diet when eating out, etc.

I think I'm suffering from celiac symptoms again. I don't get deathly ill from ingesting gluten... it's more subtle.

I've been having trouble with what was thought to have been a stone in my bile duct and I just found out there is no longer one there.

I've been having dizziness, fatigue, and stomach pains [stomach, not intestines]. I lost about 25 lbs over the past 6 months.

So... if i get tested thru Enterolab, is there any chance it will be covered by insurance?? I need to find out if I'm a true celiac or not.

Welcome back!

I am sorry that you are having problems again.

I don't think that I recall members mentioning that Enterolabs is covered by insurance. They do not diagnose, but they can tell you if are sensitive to gluten and other things, but you already know that.

Lymetoo Contributor
Lymetoo
Posted
  • Author

Ugh... They can't tell me if I'm celiac or not?? That STINKS!!!!

So the only way is thru the biopsy?? .. which I refuse to do...

Hi Rachel and Momma Goose!!!!!! :)

Lisa Mentor
Lisa
Posted
Ugh... They can't tell me if I'm celiac or not?? That STINKS!!!!

So the only way is thru the biopsy?? .. which I refuse to do...

Hi Rachel and Momma Goose!!!!!! :)

Biopsys are not always acccurate as are the blood tests. The only true test is a positive dietary response.

If you have been gluten free for a while and then slowly added gluten, it might take a while for symptoms to surface. Sort of like a car slowly rolling down a hill, no damage until one day the car goes over the cliff.

Wish I could offer an answer.

Lymetoo Contributor
Lymetoo
Posted
  • Author
Biopsys are not always acccurate as are the blood tests. The only true test is a positive dietary response.

If you have been gluten free for a while and then slowly added gluten, it might take a while for symptoms to surface. Sort of like a car slowly rolling down a hill, no damage until one day the car goes over the cliff.

Wish I could offer an answer.

Yes, my car went over the cliff allright! Thanks.

So, the only thing I can do is be more careful with my diet??

What about the blood test? If it comes back positive, then I'd know??

Rachel--24 Collaborator
Rachel--24
Posted
What about the blood test? If it comes back positive, then I'd know??

Hi Lymetoo. :)

No guarantees about the bloodwork being positive. Depends on how much gluten you've been eating and for how long now.

You can have them run the test just to check it...after that maybe you should go back on the diet 100% if you feel that gluten is responsible for the problems.

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Lymetoo Contributor
Lymetoo
Posted
  • Author

So it's kinda like the biopsy. If I haven't been ingesting very much gluten, it's likely to come back negative?

That's what happened to me when I had the biopsy years ago. I already knew I was "allergic" to wheat and had been avoiding it for the most part....but I didn't understand about gluten back then.

The one test that came back positive for gluten was a saliva test for cortisol. It showed high gliadin antibodies. Anything over 15 was high and mine was 66.

It says "Positive AGA or elevated AGA antibodies MAY not necessarily imply celiac disease state, but a subclinical mucotoxic reaction. Healthy adults and children may show positive antibodies to Gliadin."

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