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Needing Support In Colorado


Chrissyb

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Chrissyb Enthusiast

I am new to all this and would love some support any groups in Colorado Springs Colorado.


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ohsotired Enthusiast

Hi Chrissy!

I used to live in CoS, so I thought I'd see if I could help!

I did a search, and found this.

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Looks like they have a gluten free dinner club, and regular monthly meetings. The next meeting is scheduled for Aug 9

Good luck!

Chrissyb Enthusiast

Thank you so much Ohsotired :D. I will check it out.

ohsotired Enthusiast

You're welcome! I hope it's what you're looking for!

Jaimepsalm63 Rookie

Hey Chrissy,

I also live in the Colorado Springs area. I'm not part of a Celiac group here in the formal sense, but I educate churches with the subject. It's amazing how many people get diagnosed with Celiac and call me because they know someone who knows me.

If you are wanting you can contact me and get you going with it all. I can help with nutrition as well. I'm a holistic nutritionist and specialize in....Celiac, imagine that.. :rolleyes:

Jaime

ksymonds84 Enthusiast
I am new to all this and would love some support any groups in Colorado Springs Colorado.

Hi Chrissy,

I too live in Colorado Springs. The Pikes Peak Chapter Celiac Sprue Association is a great way to meet other celiac's. Val is their group leader and very very friendly. They meet every two weeks I think. Tonight is the Gluten free dinner at the Warehouse restaurant on Cimaron. If you give them a call I bet you could get reservations. I post these on the calendar if you want to know the September club dining. I don't go to the meetings myself because I have family members with celiac and lots of support that way. I own two restaurants and am working with val to have a gluten-free dinner at the fine dining one but won't say more since it would promote business for myself, a no no on this board. So that is how I know her and she's a fantastic person. PM me anytime, I know all the Chef's in the Springs (the real one's anyway that make thier own food from scratch etc.) and can give you advice on where to dine that is not a chain etc.

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    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
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