Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Block Party


BallardWA

Recommended Posts

BallardWA Rookie

We had our first block party last night, and the woman who organized it was an absolute control freak who could not understand why we were setting up our own grill and table of food down the block away from everyone.

I tried to explain to her that it was just better for the reason you all know - cross contamination. I told her that no matter how closely I watched, chances were that someone would put one of their items on my grill, or stick their glutened spoon into my salad.

She was astonished, and intimated that we were using my "condition" to opt out of socializing with everyone.

I felt very conflicted. I am so sick of having to explain this stuff to people. I wanted to choke her and beg her forgiveness at the same time. Consequently, she did wind up alienating us, because I didn't want to have to stroll down to the gluten eaters and once again tell my tale.

I was only diagnosed in January, but had been feeling pretty fabulous about how things had been going. My health is improving in leaps and bounds, but this sort of thing is a setback of a different kind.

Right now, I'd like to send her a big wheaty pie with spiders in it. Sorry, just had to say it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sickchick Community Regular

Geez.

Was your block party just a bunch of strangers who decided to get together for a big dinner? Or was it some organization who puts it together like the p-patch crazy hippy people?

Obviously it wasn't put together by a Celiac group... LOL B)

blueeyedmanda Community Regular

I am sorry to hear that woman acted that way. You just wanted to make sure your food was safe...honestly in my opinion if I thought you were going to be anti-social then you would have not even came out of the house ;) But back to the other parts of your post. I understand how you feel about the whole conflicting thing....I felt that way at work at first when we would do potlucks and all, explaining everything especially when you have someone who is either not understanding or just making up excuses for you is very frustrating...It was not right for her to say your condition...that is very rude and for an adult immature. You wanted to enjoy the block party without getting ill which is perfect. I guess I don't have much great advice here.

I hope this doesn't deter you from future public outings, one rude person might be few and far between. Were the other neighbors accepting? If so that will make your next outing even better :) Don't worry about the venting, that what we are here for, feel free to vent anytime, because this is frustrating and I know from my personal life just when you get comfortable and thing everything is smooth you can hit that bump....Hang in there, it sounds like you are doing great :)

Judyin Philly Enthusiast

we've been having these block parties for about 6 years now.

the last 3 i've taken my own food and just eat at the table with everyone else.

many don't know i have celiac but those that did didn't think a thing about it.

last year there was a dish on the table..................i ran by...........b/c all the gluten food looked so darn good.

there was a sign in a dish..........gluten free.

i went to the hostes and she told me someone i didn't even know had been dx'd as had all the family.....

course i didn't try it b/c of cc but i think you were brave to even attend.

one time i went late after everyone was done eating and there was just the fun part.....drinking..... course i wasn't doing that either by the crowd had losened up a bit. :lol:

Will The Thrill Rookie

I go through that crap every day at school. She was a woman who didn't realize your condition. It might help if you told her what would happen, and if you ate wheat every day for a long time, you will develop cancer. It might be best to keep doing what your doing, or what i do is eat before i go to a birthday party or whatever. This way you wont have to worry about getting gluten, and won't have to explain anything to anybody. If they do ask, just say no thank you i'm not hungry. The only downside to this situation for me, is that some people think i'm anorexic (and im a thirteen year old boy!) because i try not to make a big deal about celiac. If that lady person was mean to you, she might not been rude, she just might not of understood your condition. Try not to hold to big of a grudge.

Will :P :P :P :P :P :P :P :P :P :P :P :P

Lisa Mentor
I go through that crap every day at school. She was a woman who didn't realize your condition. It might help if you told her what would happen, and if you ate wheat every day for a long time, you will develop cancer. It might be best to keep doing what your doing, or what i do is eat before i go to a birthday party or whatever. This way you wont have to worry about getting gluten, and won't have to explain anything to anybody. If they do ask, just say no thank you i'm not hungry. The only downside to this situation for me, is that some people think i'm anorexic (and im a thirteen year old boy!) because i try not to make a big deal about celiac. If that lady person was mean to you, she might not been rude, she just might not of understood your condition. Try not to hold to big of a grudge.

Will :P :P :P :P :P :P :P :P :P :P :P :P

It does get easier and after a while, it will be second nature. You just do what you need to do and often, don't give things a second thought.

I know that sometimes that people can be difficult, but it sounds like you have a great attitude Will!

sickchick Community Regular

HAHAHA Will always has an interesting spin on Celiac life :lol:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CeliacAlli Apprentice
HAHAHA Will always has an interesting spin on Celiac life :lol:

I agree to what some people say on here, but in Will and my case I have to say that kids/teens can be especially rude. They just don't have the maturity to understand and neither does this lady holding the block party! srry to hear that happend to you!

CeliacAlli Apprentice

srry i didn't mean to copy sickchick's comment...I was trying to add a comment not reply...haha...and yeah I agree will always has an intresting spin

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues

    2. - Scott Adams replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

    3. - catsrlife replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

    4. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,259
    • Most Online (within 30 mins)
      7,748

    Lindia
    Newest Member
    Lindia
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      jmartes, Thank you for sharing  more information with us. Most of us Celiacs whose problems do not clear up with in a few years have to decide what to do next. We can keep seeing DR.s and hope that we will get some  medication or advice that will improve our health. Or we can go looking for other ways to improve our health. Usually Celiac Disease is not a killer disease, it is a disabling disease as  you have found out. You have time to find some ways to help you recover. Stay on your gluten-free diet and be more careful in avoiding cross contamination . KnittyKitty  and others here can give you advice about avoiding some foods that can give you the gluten auto immune reaction and advice about vitamins and supplement that help celiacs. You may need to take higher doses of Vit. B12  and D3.  About 20 years before a Dr. suggested I might have Celiac disease I had health problems that all other Dr said they could not identify or treat. I was very opposed to alternative providers and treatments. So many people were getting help from a local healer I decided to try that out. It was a little helpful but then, because I had a good education in medical laboraties she gave me a book  to read and what did I think. With great skeptism I started reading and before I was half way through it I began using the methods outlined in the book. Using those herbs and supplements I went from hardly able to work to being able to work almost fulltime. I still use that program. But because I had undiagnosed celiac disease by 10 years later some  of my problems returned and I started to loose weight.    So how does a person find a program that will benefit them? Among the programs you can find online there are many that are snake oil scams and some that will be beneficial. by asking around, as I did. Is there an ND in your area? Do they reccomend that person? If you would like to read about the program I use go to www.drclark.net   
    • Scott Adams
      It's unfortunate that they won't work with you on this, but in the end sometimes we have to take charge of our own health--which is exactly what happened to me. I did finally get the tests done, but only after years of going down various rabbit holes and suffering. Just quitting gluten may be the best path for you at this point.
    • catsrlife
      My doctor didn't take the time to listen to anything. I don't even think she knows what it means. She is more concerned about my blood pressure that is caused by her presence than anything else and just wants to push pills at me. The so-called dermatologist wouldn't do a skin test. she prescribed all of these silly antihistamine skin meds. This lady didn't even know what she was talking about and said "they never turn out as celiac, they usually just say it's dermatitis so here's your meds," just like my regular quack. I'm trying to change insurance companies at the moment and that has been a battle because of red tape, wrong turns, and workers having wrong phone numbers. What a joke! The allergy blood days say I have a wheat allergy of .31. Hopefully it's just that and until I find a decent doctor and dermatologist, I'll just lay off the wheat anyway, since it gives me asthma, high blood sugar, and joint pain. So frustrated at this point. The rash on my back of arms/elbows is mostly gone. Both calves and chest have started up. smh. It comes and goes. It fades faster now, though, although my forearms still produce one or two bumps on each side. The itching has calmed down a lot except for the bump area. I have dry skin to begin with so anything affecting it just makes it crazy. i'm never going to eat wheat again. I don't care if they need it to produce results or if it is just an intolerance, allergy, or celiac. It gives me hell.
    • Jmartes71
      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.