Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Itch


njferrero

Recommended Posts

njferrero Newbie

Two-yr-old granddaughter has been gluten free since June 2004, but now has developed huge itchy skin which she scratches bloody. She cries and squirms and is miserable. We have tried Curel, Benadryl cream, Eucerin and Aquafor. Help!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cdford Contributor

The spots can be miserable. Be patient with her scratching. It is the most intense "itch" you can imagine...like thousands of tiny needles attacking you from underneath your skin.

I have found some things that help us in our family:

If the spots are getting red around them, she probably has a secondary infection. Let the doctor determine that and if so they will probably give her a prescription for something like Clindagel to rub on them.

My preferred choice for itch relief is to take a bubble bath in a Shaklee product called Basic H. It is a very mild household cleaner that can also be used on a baby's bottom to help control diaper rash. I put 1/2 to 1 teaspoon in a tub of warm water and soak. The bubbles don't seem to make my eyes burn, but you might have to warn a two year old to be a little more careful. My spots are even less red when I get out.

After bathing, I have found that keeping the spots moist and away from air helps with the itching. I use a Watkins product called Petrocarb. It is basically a petroleum jelly with camphor and such in it to help with the pain of the itch. I try to keep it on the spots so that they are not exposed to air or allowed to dry up and get itchier as they heal.

If she has been gluten-free for a while and the spots had pretty much gone away, you may want to search for the new gluten source she has come into contact with. Has her soap, shampoo, or clothes detergent changed recently? Has she eaten out at a new place or has a different brand of an item been purchased?

  • 1 month later...
snoopylian Apprentice

I used all of those for my son as well as 8 different prescriptions for eczema and none of them helped. I believe he has DH. There is also a DH online website that may be useful to you: Open Original Shared Link

I know that there are prescription meds for DH but I don't know any of their names. I try and control my sons through diet (no dairy, eggs, gluten), he takes borage oil, digestive enzymes, acidophilus, he only wears 100% cotton (even his bed sheets are 100% cotton). I've read that dust, dust mites, pet dander can contribute to the itchiness. So, we use one of those pleated allergen air filters at home. Currently we use dove sensitive skin at bath time but I am in the process of trying to learn how to make soap rich in hempseed oil and shea butter. Also, against some doctor's opinions, after bath before bed, I slather him down with Vaseline. All of the above have helped my son. Perhaps they may help your grandchild.

Also, I recently read, but have not verified, that people w/DH should be careful of the amount of iodine in their diet. I'm not sure about that, like I said I haven't had a chance to investigate it further.

Good luck. If I think of anything else I will let you know.

  • 3 months later...
lockett Newbie

Dear Snoopy, I learned recently much to my horror that most cotton fabrics sold recently (2 or 3 years) contain genetically engineered cotton to which the body reacts as if it were a synthetic. Only alternative is to buy organic clothes and sheets. I do buy in thrift stores cotton clothes that tend to be old but I can tell right away by my reaction if they contain GE cotton and your son may not be able to tell so try one set of organic and see if it makes a difference--Lockett

I used all of those for my son as well as 8 different prescriptions for eczema and none of them helped.  I believe he has DH.  There is also a DH online website that may be useful to you: Open Original Shared Link 

I know that there are prescription meds for DH but I don't know any of their names.  I try and control my sons through diet (no dairy, eggs, gluten), he takes borage oil, digestive enzymes, acidophilus, he only wears 100% cotton (even his bed sheets are 100% cotton).  I've read that dust, dust mites, pet dander can contribute to the itchiness.  So, we use one of those pleated allergen air filters at home.  Currently we use dove sensitive skin at bath time but I am in the process of trying to learn how to make soap rich in hempseed oil and shea butter.  Also, against some doctor's opinions, after bath before bed, I slather him down with Vaseline.  All of the above have helped my son.  Perhaps they may help your grandchild. 

Also, I recently read, but have not verified, that people w/DH should be careful of the amount of iodine in their diet.  I'm not sure about that, like I said I haven't had a chance to investigate it further.

Good luck.  If I think of anything else I will let you know.

<{POST_SNAPBACK}>

cdford Contributor

I did not realized about the iodine until recently. I have stopped it completely and it does seem to make a difference. Also realize that once glutened, the DH spots can come and go for months, long after any celiac disease symptoms have left.

watkinson Apprentice

Hi njferrero,

Have you check the source of all those lotions and meds you are puting on the skin? Could they possibly contain gluten? <_< One thing we do for itch is take milk baths, (Unless there is a sensitivity to dairy) We buy powdered milk and put 5 or 6 cups into a warm bath (it's cheaper that way!) You can also try witch hazel, you apply it with a cotton ball or soft towel, it is very sooting to the skin. Ask your doctor first but we have also soaked with epsom salts in the tub. Extremely soothing! I'm not sure with a 2 year old though. Especially if the rash may be infected.

Double check everything that comes in contact with the baby to make positive sure everything is gluten-free

Also... find out from your doctor what you can do to keep the skin moist from the inside out. Meaning...I take Omega 3 fatty acids (fish oil). It helps with every system of the body including the skin. :) I have no idea if children can take it though. do you live in a dry environment? What about a humidifier?

I hope all is well soon, Wendy

cdford Contributor

Those epsom salt baths are a life saver not only with the itch but also with muscle aches and spasms.

Our dermatologist and allergist had us put a tsp of clorox in our baths to cut the bacteria in the sores and help them heal. It also helped keep the redness down.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lbsteenwyk Explorer

My daughter has used a prescription topical med called hydrocortisone valerate which seemed to improve her itching and helped her heal. This was prescribed for eczema, so I'm not sure it would be appropriate for your child.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Aretaeus Cappadocia replied to drjay's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Unsteady in my new diagnosis

    2. - trents replied to drjay's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Unsteady in my new diagnosis

    3. - drjay posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Unsteady in my new diagnosis

    4. - knitty kitty replied to smiths's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      29

      Struggling with gluten challenge and not sure it’s worth it - looking for advice / experiences / encouragement

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,889
    • Most Online (within 30 mins)
      10,442

    drjay
    Newest Member
    drjay
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      @drjay in addition to what @trents wrote, I wanted to comment on your statement, "Positive for DQ2 and homozygous for DQB1*02 but negative for DQ8" You don't need DQ2 >and< DQ8 in order to be susceptible to getting celiac. Either one is good enough. DQB1*02 is a specific genetic allele that encodes part of the DQ2 protein. "Homozygous" means two copies of the same allele (the opposite is "heterozygous", where the two copies are different alleles). If you are homozygous for DQB1*02, you couldn't have DQ8. In other words, your genetic test tells you that you definitely have the potential to get celiac.   
    • trents
      @drjay, your mixed test results experience is exceedingly common for someone having been consuming reduced amounts of gluten. A Marsh scale score of 3 indicates "significant villous atrophy" according to a quick google search I did and the biopsy is the gold standard diagnostic test anyway, not the blood antibody testing. It doesn't look like a "total IGA" blood test was ordered and without that we cannot tell if you are IGA deficient. If IGA deficient, other celiac IGA antibody scores, such as the tTG-IGA, cannot be trusted. They will likely be artificially low. And given the fact that there is significant improvement in your symptoms once you went on a strict gluten free diet, there is no doubt in my mind that your doctor's diagnosis of celiac disease is the correct one. By the way, welcome to celiac.com.!
    • drjay
      About 2 years ago I got a referral to a GI because I was experiencing gut pain, bloating, and some other not so fun symptoms. He scheduled a colonoscopy and that came back fine with the exception of very small healing ulcers in my TI. I have a family history of stomach ulcers so I was prescribed a round of antibiotics and then placed on a PPI w/o an endoscopy to confirm. I think I may have convinced myself it was helping for about a year but I likely just acclimated to how I was feeling. Fast forward to January and my symptoms had gotten to be persistently unbearable and nothing was helping except some minor pressure relief from gasx. I get another appt with the GI and get an endoscopy done. There’s no ulcer so I stop the PPI and we do a SIBO test which comes back negative. The Dr orders a Labcorp celiac test immediately after he gets the biopsy results w/o the gluten challenge thing. I already don’t consume much if any because I suspected I may be sensitive to  gluten.  They grade the biopsy Marsh class 3 but my lab tests are weird and listed below IgA 11 (weak positive is 19) IgG 5 (weak positive is 19) tTG IgA 3 (weak positive 4) Positive for DQ2 and homozygous for DQB1*02 but negative for DQ8 My GI did diagnose as Celiac but the blood test makes me unsure. Even though I’ve been unsure, I immediately went on a strict gluten free diet. Yesterday makes 12 days and it was the first day with a normal bowel movement in last several weeks. Anyone have similar experience? 
    • knitty kitty
      I found these articles interesting. Among people already diagnosed with Celiac Disease, the HLA DQ B1*02 allele is present in about 95%...... Carrier frequency of HLA-DQB1*02 allele in patients affected with celiac disease: A systematic review assessing the potential rationale of a targeted allelic genotyping as a first-line screening https://pubmed.ncbi.nlm.nih.gov/32256023/   Total IgA levels can be affected by the same HLA DQ B1*02 allele..... Total serum IgA levels and HLA-DQB1*02:01 allelic status https://pubmed.ncbi.nlm.nih.gov/37725324/
    • Scott Adams
      This new company claims to offer the most comprehensive genetic tests on the market for celiac disease, and we'll be doing a product review article (sponsored) on them soon.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.