Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Seeing A Specialist While Pregnant For Celiac Disease

maddycat

By maddycat
in Related Issues & Disorders

Recommended Posts

maddycat Contributor
maddycat
Posted

I am 12 weeks pregnant. At my first prenatal appointment with my ob we discussed my celiac disease. I told her I have been gluten free for 2 years now and my levels are good. She mentioned that they would probably do growth scans starting after 20 weeks (I guess I can't complain that I will get to have more ultrasounds to see the baby more) but is this necessary? I do have full insurance coverage so I won't have to pay anything out of pocket.

They also scheduled an appointment for me with a high-risk perinatologist for next week. I'm not really sure why I have this appointment. Has anyone else had special appointments due to having celiac disease?

From everything I have read, once on a gluten free diet, there are no higher risk of complications than that of the general population.

Thanks!

Marcia

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jitters Apprentice
jitters
Posted

Hi,

When I was pregnant my doctor also scheduled extra scans and was very proactive in learning about celiac, etc. I didn't have to go to a high risk doctor though. As long as we were both doing ok my doctor felt it wasn't neccessary. Getting the scans was great! Also, I should note that I had a scheduled C-section due to a previous one. While I was in the hospital my doctor put a block on my food so that even if I wanted to order gluten the kitchen WOULD NOT deliver it. Looking back, I was very lucky to have had a doctor that knew so much about celiac.

Congratulations on the pregnancy!

jitters Apprentice
jitters
Posted

Sorry, I guess I didn't really answer your question! No, I don't think so many scans and seeing a specialist is *neccessary*, but I do think its good they take a little more time and care in the celiac pregnancy. Growth of the fetus is important to watch in any pregnancy, and when the mother has celiac it can cause problems so they want to make sure the baby is growing. As far as a specialist goes- thats out of my league but if you aren't having problems with your pregnancy I don't see why you'd need to go see a different doctor. Its up to you though, and remember I don't know your medical history or anything- maybe your doctor is just being extra careful.

I hope that helped a little!

WW340 Rookie
WW340
Posted

I would guess that your doctor wants you to be established with a high risk perinatologist in case this person is needed in the future. It is much easier to get an emergency consultation if you are already established.

I think your doctor should be commended for taking your celiac disease seriously. Relax and enjoy the pregnancy. It sounds like you are in very good hands and your doctor is just looking out for you and your baby.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,566
    • Most Online (within 30 mins)
      7,748
    Rrenee2990
    Newest Member
    Rrenee2990
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      How long does it take to gain weight?

      By cristiana · Posted

      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      How long does it take to gain weight?

      By petitojou · Posted

      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      How long does it take to gain weight?

      By petitojou · Posted

      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      Roommate search

      By ckeyser88 · Posted

      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.