Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Because Of Symptoms, And Blood Test


mjhere69

Recommended Posts

mjhere69 Rookie

4 years ago, the dr. diagnosed me with celiac. I had lost 47 lbs, was "couch bound" from weakness from diah. Over the past 3 years, I have been diagnosed with..gastroparesis ( have been on a yogurt and ensure diet for a year and a half, because. Then diagnosed with microscopic colitis ( Dr. took biopsys during colonoscopy) It is immflamation and swelling INSIDE your colon, causing water diah. and cramping. A few months ago, after a stool sample, was diagnosed with C diff. It took 3 rounds of antibiotics to get over that. I was so weak I could not function. I got an IV, which gave mes some energy back. I am gluten free because of my diet, lactose intolerant, so I take lactaid pills. Doctors arnt listening. Do all of these things have something in common? Is there anything I can take to get my strength back up, even a little? My gastroenterologist doesnt think I have celiac, but he tested me after I had been gluten free for 2 years. I do not know what to do to get my life back. I did better, when I was eating reg food and was gluten free. Can anyone help..Mary


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

Hi Mary,

Sorry to hear you are having so many issues right now. The gastro is a tough one. Basically your nerves arent working right. Have they tested you for B-12 deficiency???

Yes or no, you should go and buy a good sublingual methylcobalmin. Jarrow is good. It goes under your tongue so you do not even have to digest it. Use the 5000. Perfectly safe as anything your body doesnt need will get moved through to your urine.

I would also encourage you to try acupuncture as it is very good for nerve issues and organs that arent working right (i.e. your stomach). Acupressure is also good. You can buy a book on acupressure and do it on yourself.

You might also look into Seacure or Immunical which are both pre-digested proteins supplements that help rebuild your intestines. Seacure is fish based and Immunical is whey based (should be lactose free).

And as whacky as this might sound....you should "talk to your gut". Relax and give it a nice massage. Perhaps put a warm hot pad on it. Tell it how much you love it and you want it to get better. Ask it questions. See if any revelations surface. Believe it or not, our bodies "talk to us". Yours needs some attention. Please try very hard not to be "angry" at your body. It is doing the best it can. I was amazed at how my emotional life and my body changed when I started to learn to love and care for myself. When I had a pain instead of saying "stupid body", I would catch myself and say "I know you have this pain for a reason. I love you for trying to tell me something. I will do everything I can to heal you. I love you my beautiful body". At first it made me cry to say these things because I had spent so many years hating my body. But now I have the greatest love and respect for my body. Every inch of it, scars, warts and all......

A good book that REALLY changed me is by Louise Hay called "You Can Heal Your Life".

Wishing you well.

Shay

mjhere69 Rookie
Hi Mary,

Sorry to hear you are having so many issues right now. The gastro is a tough one. Basically your nerves arent working right. Have they tested you for B-12 deficiency???

Yes or no, you should go and buy a good sublingual methylcobalmin. Jarrow is good. It goes under your tongue so you do not even have to digest it. Use the 5000. Perfectly safe as anything your body doesnt need will get moved through to your urine.

I would also encourage you to try acupuncture as it is very good for nerve issues and organs that arent working right (i.e. your stomach). Acupressure is also good. You can buy a book on acupressure and do it on yourself.

You might also look into Seacure or Immunical which are both pre-digested proteins supplements that help rebuild your intestines. Seacure is fish based and Immunical is whey based (should be lactose free).

And as whacky as this might sound....you should "talk to your gut". Relax and give it a nice massage. Perhaps put a warm hot pad on it. Tell it how much you love it and you want it to get better. Ask it questions. See if any revelations surface. Believe it or not, our bodies "talk to us". Yours needs some attention. Please try very hard not to be "angry" at your body. It is doing the best it can. I was amazed at how my emotional life and my body changed when I started to learn to love and care for myself. When I had a pain instead of saying "stupid body", I would catch myself and say "I know you have this pain for a reason. I love you for trying to tell me something. I will do everything I can to heal you. I love you my beautiful body". At first it made me cry to say these things because I had spent so many years hating my body. But now I have the greatest love and respect for my body. Every inch of it, scars, warts and all......

A good book that REALLY changed me is by Louise Hay called "You Can Heal Your Life".

Wishing you well.

Shay

mjhere69 Rookie

Shay, I appreciate you taking time to respond to me. It is very uplifting just to know someone knows what you are going through. Your advice is encouraging and I will definatly be checking up on it. Thank you so much. Mary :rolleyes:

oceangirl Collaborator

Hi Mary,

When you say your doctor diagnosed you with celiac, did you go gluten-free? If so, has it not helped? I'm so sorry you are having so much difficulty. In your title you say you had positive bloodwork? I do think you must try strict adherence to gluten-free living if this is the case. And I concur that acupuncture is a tremendous avenue for healing. But first, I am curious what measures you've taken regarding the possibility that you are gluten-intolerant or have celiac.

Healing thoughts for you,

lisa

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,205
    • Most Online (within 30 mins)
      7,748

    Butch68
    Newest Member
    Butch68
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.