Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

When Celiacs Start Feeling Better


jjtj

Recommended Posts

jjtj Rookie

hello,

My Mom was recently diagnosed with Celiac. She has been gluten-free Diet for almost 2 months now. She is struggling with the diet, but she does not feel any better.

She feels the same way. No improvements. She has the pain 24/7 and also she started to have pain in a right leg along with her hip and lower back.

The doctors are not 100% sure she has the disease, but told my mom that she had some damage and inflammation in the intestines.

Yesterday, she called me and said that she is feeling hungry al the time and she is loosing weight.

I will like to know what is the pain like and when people start improving.

My Mom don't think she does has celiac because she does not see any improvements.

Please Help.

Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

It took me over 3 months to see real improvement.

"Yesterday, she called me and said that she is feeling hungry al the time and she is loosing weight."

This is what typically happens to Celiacs (me included). When you remove the poison and your body can start to digest again, it makes you HUNGRY to get the nutrition it has been lacking. Once the nutrients have a chance to start getting to the cells, healing will begin and she will start to feel better.

2 months is not long enough.

PLUS: Certain she is 100% gluten-free??? Did she replace all of her old scratched pans, toaster, cutting boards? Cleaned everything to remove any old wheat flour dust? Made sure her toothpaste, creams, lip care, cosmetics are all gluten-free? Making sure no one else in her home is cross contaminating things like butter and mayonaise?

Not to mention, most celiacs MUST cut out dairy for at least 2 - 3 months until they heal. For many they get the same symptoms from dairy as gluten in the early months. It is the tips of the villi that digest milk/dairy.

powerbraid Rookie

I felt amazingly better right away initially after going gluten-free. However, then I started feeling worse. I think it may have just been my body changing and adjusting. I had to go off soy and dairy. I am back to eating yogurt again now, and doing well with that. It's been almost exactly 1 year after my diagnosis. All I can say is that it is definitely a journey. Be patient. :) It is so easy to get frustrated! I still have many days where I do not feel well and get frustrated and discouraged. I have heard that, depending on how badly the intestines were damaged, it can take up to 2 years to heal.

MELINE Enthusiast
"Yesterday, she called me and said that she is feeling hungry al the time and she is loosing weight."

This is what typically happens to Celiacs (me included). When you remove the poison and your body can start to digest again, it makes you HUNGRY to get the nutrition it has been lacking. Once the nutrients have a chance to start getting to the cells, healing will begin and she will start to feel better.

......it is amazing......it is SO SO SO typical. Extremely hungry and losing weight (you will find many threads with that topic..) And then after almost 11 months...oops!!!! I said the magic words ..."No thanks. I am not hungry".And it was the time when my period came back normal, my hair stopped falling, my body and my stools stopped smelling awful and my energy came 100% back. Let the healing begin!!!!!

Please try to explain to your mother that sometimes improvement may take a year or even more. For me it was 3 weeks for an improvement in energy and 11 months for an amazing improvement in hormones, weight, brain, sleep, hair, nails. I know it sounds like a lot of time but it is worth it. And yes, many times I was feeling MUCH worse than before starting the diet. It happens to many of us. Feeling worse before feeling better.

Meline

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,996
    • Most Online (within 30 mins)
      7,748

    Sasha Bondarev
    Newest Member
    Sasha Bondarev
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @sleuth, Has your son been checked for nutritional deficiencies?  All of those symptoms can be caused by malnutrition.  I had severe malnutrition that went unrecognized by my doctors.  Intense fatigue, brain fog, depression, anxiety, and gastrointestinal distress are symptoms of deficiencies in the eight essential B vitamins, especially Thiamine B1, which becomes low first because the demand is higher when we're sick.     Celiac Disease causes inflammation and damage of the intestinal lining which inhibits absorption of essential nutrients.  Checking for nutritional deficiencies is part of proper follow up care for people with celiac disease.   Is your son taking any vitamin supplements?  Most supplements contain thiamine mononitrate which in not readily absorbed and utilized by the body.  Benfotiamine is a form of thiamine that is shown to promote intestinal healing.  Benfotiamine is available over the counter.  Benfotiamine is safe and nontoxic.   Is your son eating processed gluten-free foods?  Gluten-free processed foods are not required to be enriched with vitamins like their gluten containing counterparts.   Is your son following a low histamine diet?  Histamine is released as part of the immune response to gluten and other foods high in histamine.  High levels of histamine in the brain can cause anxiety, insomnia, and depression.  The body needs the B vitamins to make the enzyme Diamine Oxidase (DAO) to break down and clear histamine.  DAO supplements are available over the counter.  Vitamin C helps clear histamine as well.  Some people find over the counter antihistamines helpful as well, but they're not for long term use.   Nicotine has antihistamine-like properties, but can also irritate the gut.  Tobacco, from which nicotine is derived, is a nightshade (like tomatoes, potatoes, peppers and eggplant).  Nightshades contain alkaloids which affect gastrointestinal permeability, causing leaky gut syndrome.  Nicotine can cause gastrointestinal irritation and alter for the worse the microbiome. Safer alternatives to Nicotine that have antihistamine properties include Lemon Balm (Sweet Melissa),  Passion Flower, Chamomile, and Bilberry.  They can be taken as supplements, extracts, or tea.  These will help with the anxiety, insomnia and depression in a much safer way. Oolong tea is also helpful.  Oolong tea contains the amino acid L-Theanine which helps the digestive tract heal.  (L -Theanine supplements are available over the counter, if not a tea drinker.)  Tryptophan, a form of Niacin B3, also helps calm digestive symptoms.  Another amino acid, L-Lysine, can help with anxiety and depression.  I've used these for years without problems.   What ways to cope have you tried in the past?
    • Scott Adams
      They are a sponsor here, and I did noticed a free shipping coupon: GFships
    • Scott Adams
      In general if it is labelled gluten-free then it should be ok for most celiacs, however, those who are super sensitive (which is most who have dermatitis herpetiformis) may want to eat only certified gluten-free items, which are supposed to test down to 10ppm (but don't always!).
    • Wheatwacked
      Have faith, you will survive. I get mine from Pipingrock.com.  500 capsules of 10,000 IU for $22.  That is almost two years worth for me.  250 caps 5000 IU for $6.69 if you only take 5,000 a day.  It's like half the price of Walmart.
    • Wheatwacked
      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.