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When Celiacs Start Feeling Better

jjtj

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jjtj Rookie
jjtj
Posted

hello,

My Mom was recently diagnosed with Celiac. She has been gluten-free Diet for almost 2 months now. She is struggling with the diet, but she does not feel any better.

She feels the same way. No improvements. She has the pain 24/7 and also she started to have pain in a right leg along with her hip and lower back.

The doctors are not 100% sure she has the disease, but told my mom that she had some damage and inflammation in the intestines.

Yesterday, she called me and said that she is feeling hungry al the time and she is loosing weight.

I will like to know what is the pain like and when people start improving.

My Mom don't think she does has celiac because she does not see any improvements.

Please Help.

Thanks.

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ShayFL Enthusiast
ShayFL
Posted

It took me over 3 months to see real improvement.

"Yesterday, she called me and said that she is feeling hungry al the time and she is loosing weight."

This is what typically happens to Celiacs (me included). When you remove the poison and your body can start to digest again, it makes you HUNGRY to get the nutrition it has been lacking. Once the nutrients have a chance to start getting to the cells, healing will begin and she will start to feel better.

2 months is not long enough.

PLUS: Certain she is 100% gluten-free??? Did she replace all of her old scratched pans, toaster, cutting boards? Cleaned everything to remove any old wheat flour dust? Made sure her toothpaste, creams, lip care, cosmetics are all gluten-free? Making sure no one else in her home is cross contaminating things like butter and mayonaise?

Not to mention, most celiacs MUST cut out dairy for at least 2 - 3 months until they heal. For many they get the same symptoms from dairy as gluten in the early months. It is the tips of the villi that digest milk/dairy.

powerbraid Rookie
powerbraid
Posted

I felt amazingly better right away initially after going gluten-free. However, then I started feeling worse. I think it may have just been my body changing and adjusting. I had to go off soy and dairy. I am back to eating yogurt again now, and doing well with that. It's been almost exactly 1 year after my diagnosis. All I can say is that it is definitely a journey. Be patient. :) It is so easy to get frustrated! I still have many days where I do not feel well and get frustrated and discouraged. I have heard that, depending on how badly the intestines were damaged, it can take up to 2 years to heal.

MELINE Enthusiast
MELINE
Posted
"Yesterday, she called me and said that she is feeling hungry al the time and she is loosing weight."

This is what typically happens to Celiacs (me included). When you remove the poison and your body can start to digest again, it makes you HUNGRY to get the nutrition it has been lacking. Once the nutrients have a chance to start getting to the cells, healing will begin and she will start to feel better.

......it is amazing......it is SO SO SO typical. Extremely hungry and losing weight (you will find many threads with that topic..) And then after almost 11 months...oops!!!! I said the magic words ..."No thanks. I am not hungry".And it was the time when my period came back normal, my hair stopped falling, my body and my stools stopped smelling awful and my energy came 100% back. Let the healing begin!!!!!

Please try to explain to your mother that sometimes improvement may take a year or even more. For me it was 3 weeks for an improvement in energy and 11 months for an amazing improvement in hormones, weight, brain, sleep, hair, nails. I know it sounds like a lot of time but it is worth it. And yes, many times I was feeling MUCH worse than before starting the diet. It happens to many of us. Feeling worse before feeling better.

Meline

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