Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Friends And Family Don't Understand


Gluten free kitchen

Recommended Posts

Gluten free kitchen Newbie

I thought that the diagnosis was the cure all, but now I know it was just the pebble that started the avalanche. I have been VERY good with my gluten free LIFESTYLE! (Otherwise, it's not pretty).

I am having problems eating out at restaurants and family/friend gatherings. I am not sure if my kitchen is ultra sterilized or if the cross contamination is not regarded, but I feel very isolated in my own home.

My friends make fun of the taste and flavor of my foods, but I have yet to get the guts to stand up for myself. I am just wondering if people have the same issues. I didn't ask for this and would never wish this isolation on anyone....

:) Teri


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dksart Apprentice

Yes.

I am so jealous whenever people post about how their husband threw out all the bread to keep a completely Gluten-free kitchen or how their kids support them.

My family thinks they are doing OK, but still make grilled cheese in my Gluten-free specific pans or use my colander because they say they will wash it and I'm just crazy for thinking that one little speck of gluten can get me. They think it's alright to wipe their toast crumbs off the counter and put that towel back on the rack.

I finally got them to stop double dipping in the butter, jam, mayo or peanut butter. They know what will make me sick, and don't want to hurt me, but sometimes they are a little lax when it comes to cc issues.

gfpaperdoll Rookie

GlutenFreeKitchen, your isolation is my heaven. I love my all gluten-free kitchen. Summon up the courage to speak up for yourself. Just take your own food with you when you go places. I did it for years before I even knew about gluten, because of all my allergies. Other people with allergies have to do this also, not just the gluten avoiders! :)

Have a topic of conversation ready & change the subject when it is directed towards your food. Really these days it should not even be a topic, what with people eating vegan, raw, no carb, no eggs, no this & no that. Most of us have a varied diet, it is just that we cannot eat fast food! & what a blessing that is!!!!

Try to start thinking of your kitchen in good terms & not put in the limitations.

YoloGx Rookie

Not to contradict, but I think going gluten free plus also having to avoid a host of other allergens does make it a lot more difficult if not almost impossible to eat out. Having an allergy to carrots does not make me react if there is a speck of carrot around if you get my drift. I could live with that and my nut allergies, fermented food intolerance, nightshade family and citrus reactions, sugar intolerance etc. Even gluten thought of as an allergy was OK. But now entirely off all gluten I react like others to the smallest trace amount like the vinegar or some invisible whatever. It makes going out to eat not fun at all unless I just alternatively bring my own.

The most difficult part is when people try to honor me. For birthdays now either I make the cake etc. or I just go do something different--though I got caught recently since my date wanted to take me out to dinner. I chose a restaurant which I thought had gluten-free food but as it turned out it wasn't gluten-free enough for me and I was miserable the next day. If I do this again I will go to some big chain known for their gluten-free dishes and still insist on talking with them thoroughly to remind them of the protocol.

The first date thing is really still pretty tricky, since even tea can be a problem if made with a server's gluteny hands. These days I plan on just bringing my thermos and hope no one really notices or cares.

Any other suggestions?

Bea

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,005
    • Most Online (within 30 mins)
      7,748

    Peg55
    Newest Member
    Peg55
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Welcome @JoJo0611. That is a valid question.  Unfortunately the short answer is slim to none.  Be proactive, when the diagnosis process is completed, start GFD.  Remember also that the western diet is deficient in many nutrients that governments require fortification.  Read the side of a breakfast cereal box. Anti-tTG antibodies has superseded older serological tests It has a strong sensitivity (99%) and specificity (>90%) for identifying celiac disease. A list of symptoms linked to Celiac is below.  No one seems to be tracking it, but I suspect that those with elevated ttg, but not diagnosed with Celiac Disease, are diagnosed with celiac disease many years later or just die, misdiagnosed.  Wheat has a very significant role in our economy and society.  And it is addictive.  Anti-tTG antibodies can be elevated without gluten intake in cases of other autoimmune diseases, certain infections, and inflammatory conditions like inflammatory bowel disease. Transient increases have been observed during infections such as Epstein-Barr virus.Some autoimmune disorders including hepatitis and biliary cirrhosis, gall bladder disease. Then, at 65 they are told you have Ciliac Disease. Milk protein has been connected to elevated levels.   Except for Ireland and New Zealand where almost all dairy cows are grass fed, commercial diaries feed cows TMR Total Mixed Rations which include hay, silage, grains and concentrate, protein supplements, vitamins and minerals, byproducts and feed additives. Up to 80% of their diet is food that cannot be eaten by humans. Byproducts of cotton seeds, citrus pulp, brewer’s grains (wheat and barley, rye, malt, candy waste, bakery waste. The wheat, barley and rye become molecules in the milk protein and can trigger tTg Iga in persons suseptible to Celiac. I can drink Grass fed milk, it tastes better, like the milk the milkman delivered in the 50's.  If I drink commercial or Organic milk at bedtime I wake with indigestion.    
    • captaincrab55
      Can you please share your research about MMA acrylic containing gluten?   I comin up blank about it containing gluten.  Thanks in Advance,  Tom
    • Aretaeus Cappadocia
      I strongly recommend 2 dedicated gluten free (gluten-free) restaurants in my area (East Bay of San Francisco Bay Area) (2025) -- Life is Sweet Bakery and Café in Danville. I've been a few times with friends and tried multiple entrees and salads. All very good and worth having again. I've also tried a number of their bakery goods. All extremely good (not just "good for gluten-free"). https://lifeissweetbakeryandcafe.com/ -- Kitara Kitchen in Albany (they have additional locations). I've been once and had the "Buritto Bowl". Six individual items plus a sauce. Outstanding. Not just "for gluten-free", but outstanding in its own right. Vibrant flavors, great textures. I can't wait to go back. https://www.kitava.com/location/kitava-albany/  
    • Martha Mitchell
      I'm 67 and have been celiac for 17yrs. I had cataract surgery and they put a gluten lens in my eye. Through a lot of research, I found out about MMA acrylic...it contains gluten. It took 6 months for me to find a DR that would remove it and replace it with a gluten-free lens . I have lost some vision in that eye because of it . I also go to a prosthodontist instead of a regular dentist because they are specialized. He has made me a night guard and a few retainers with no issues... where my regular dentist didn't care. I have really bad reactions to gluten and I'm extremely sensitive, even to CC. I have done so much research on gluten-free issues because of these Drs that just don't care. Gluten is in almost everything shampoo, lotion, food, spices, acrylic, medication even communion wafers! All of my Drs know and believe me I remind them often.... welcome to my world!
    • trents
      If this applies geographically, in the U.K., physicians will often declare a diagnosis of celiac disease based on the TTG-IGA antibody blood test alone if the score is 10x normal or greater, which your score is. There is very little chance the endoscopy/biopsy will contradict the antibody blood test. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.