Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

A Year On...?

bobjonson4

Recommended Posts

bobjonson4 Newbie
bobjonson4
Posted

hey guys

i was diagnosed with celiac disease in july 2007. before then i didnt feel sick as in i was going to throw up, but major bowel issues. so i havent had gluten (unless there was contamination) for over a year now.

but the thing is im still not better. im not putting any weight on, and my bowels still arent back to the way they were. i dread early morning starts as my bowels will always on cue want me to go, and the feeling wont go away until i go again. and it repeats itself.

its so fustrating! im getting fed up with it, because this issue has stopped me from socialising, attending events etc. because i just know im going to start feeling like "i need to go".

and with university starting for me in september, i am as worried about this as ever.

is there anything i can try or do? seriously, im up for giving anything a shot.

thanks for reading this guys. i know its just a rant really but i'm really fed up with this now.

cheers,

bob.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ShayFL Enthusiast
ShayFL
Posted

Hi Bob,

Have you cut out dairy as well? Many Celiacs cannot heal until they remove dairy. You can remove it for 3 months and if better try to reintroduce it (a lot of people tolerate it after they heal).

Also, soy and corn cause issues for many people Celiac or not. Once you remove your main gastro irritant (gluten) these other irritants show their nasty little heads.

Also consider the SCD (Specific Carbohydrate diet).

Digestive Enzymes including HCL.

Probiotics

SeaCure or Intestive

And be really sure there is no CC (toiletries, creams, toothpaste, dishes, cutting boards, old toasters, etc.

powerbraid Rookie
powerbraid
Posted

I was diagnosed September 2007, and this past year has been the hardest year of my life. It was almost like I felt WORSE after going gluten-free! I had to cut out diary and soy and ALL grains for the good part of the past year. Finally, I seem to be doing well with yogurt (it makes my tummy happy!) and grains such as buckwheat and amaranth. however, corn, and rice still bother me.

Be patient...I know it is hard. I have heard that it can take up to 2 years for the intestines to heal. I feel as though I am still "on the mend."

oceangirl Collaborator
oceangirl
Posted

Yes, it is a painful journey sometimes for the first two years... discovering other intolerances and learning where all the hidden gluten is- it can be UNBELIEVABLY discouraging! Hang in there and just keep playing "detective", because you'll find sources of gluten that you'd never guessed were culprits! Keep reading this board and asking for help. There are some tried and true gluten "gumshoes" here!

Hang in there. It took me TWO YEARS to really feel better and I STILL have mysterious glutenings! I make all my own food from whole foods, do not eat most grains except got Tinkyada pasta on occasion and have a gluten-free house!

It WILL get easier.

lisa

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748
    Tara M
    Newest Member
    Tara M
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      The Happy Tart review

      By Scott Adams · Posted

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Stomach burning and neuropathy

      By Scott Adams · Posted

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
    • Scott Adams
      Nausea

      By Scott Adams · Posted

      Welcome to the forum. Is the nausea associated with eating certain foods, or anything else in particular?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.