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Best Doctor Ever!


betsyabailey

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betsyabailey Rookie

Hi, so I posted a few months ago about a preschool that required a diagnosis for an alternative diet. I decided to try a gluten challange on my son then 18 mo. 4 days later he was sick as a dog and had a diaper rash up to his ears (no joke) so I stopped it and talked to our ped. He reffered us to the best doc I have seen (I have lupus so I've seen my fair share) Dr Kelts in Santa Barbara Rocks! He got us in in 4 days from our referral, was personalble and totally on top of it. I've been reading these books where they say docs make you do multiple gluten challanges and was worried sick about my kid being miserable. He sat and listened and diagnosed him with NO TESTS! not even a blood draw. He said it's not always that easy but Aidan, my son, is classic celiac, I knew when I was breastfeeding. He gave me a note for his school and a bunch of local resources and sent us on our way. He said his philosophy is "do no harm" why get a baby sick if the treatment is working already! (that's what i was thinking) He also said if he ever gets into some gluten and gets a reaction that if we want he could test him then but that he'll never ask for a chalange! Just want to let everyone know, at least one thing was easy!


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*lee-lee* Enthusiast

wow - that's awesome! i'm very happy for you. if only we could all be so lucky as to encounter wonderful doctors like yours.

ShayFL Enthusiast

A good doctor is a gem to treasure. Hold on to him!

dilettantesteph Collaborator
Hi, so I posted a few months ago about a preschool that required a diagnosis for an alternative diet. I decided to try a gluten challange on my son then 18 mo. 4 days later he was sick as a dog and had a diaper rash up to his ears (no joke) so I stopped it and talked to our ped. He reffered us to the best doc I have seen (I have lupus so I've seen my fair share) Dr Kelts in Santa Barbara Rocks! He got us in in 4 days from our referral, was personalble and totally on top of it. I've been reading these books where they say docs make you do multiple gluten challanges and was worried sick about my kid being miserable. He sat and listened and diagnosed him with NO TESTS! not even a blood draw. He said it's not always that easy but Aidan, my son, is classic celiac, I knew when I was breastfeeding. He gave me a note for his school and a bunch of local resources and sent us on our way. He said his philosophy is "do no harm" why get a baby sick if the treatment is working already! (that's what i was thinking) He also said if he ever gets into some gluten and gets a reaction that if we want he could test him then but that he'll never ask for a chalange! Just want to let everyone know, at least one thing was easy!

My son's(11 years) doc (ped) was equally wonderful. I wonder if I didn't even need to do the gluten challenge

with him, which also made him really sick. We only lasted 3 days. Maybe the fact that going gluten free

made him stop throwing up would have been good enough.

She also probably saved my life by suggesting that it might be celiac disease that was making him

throw up. I was more and more often not making it to the toilet. My docs had all said that it is IBS.

My mom died at 47 of lymphomia and I finally went gluten free at 49. All sorts of problems went away. I hadn't even heard of celiac disease.

She has been so incredibly understanding and helpful with problems with the school. She understands immediately all the problems with food, CC, medications containing gluten etc. I think I am in love. My son

was always so skinny and now he is getting a bit fat!

Fiddle-Faddle Community Regular

I'm so glad you found a great ped!

I'm wondering if you are aware that lupus has a strong link with gluten intolerance? Many of us here believe that lupus is one of the things that can happen when you have gluten intolerance without screamingly obvious GI symptoms (which does happen to a lot of us), and therefore continue to eat gluten.

If you are not already gluten-free, please try the gluten-free diet ASAP, and see if it helps your symptoms (you will likely find that giving up dairy will help, too). You might also look up the Lyme disease thread on this board, and/or google "Lyme Disease and lupus" and see what comes up.

Best of luck to you! (And welcome aboard!)

CeliacAlli Apprentice
Hi, so I posted a few months ago about a preschool that required a diagnosis for an alternative diet. I decided to try a gluten challange on my son then 18 mo. 4 days later he was sick as a dog and had a diaper rash up to his ears (no joke) so I stopped it and talked to our ped. He reffered us to the best doc I have seen (I have lupus so I've seen my fair share) Dr Kelts in Santa Barbara Rocks! He got us in in 4 days from our referral, was personalble and totally on top of it. I've been reading these books where they say docs make you do multiple gluten challanges and was worried sick about my kid being miserable. He sat and listened and diagnosed him with NO TESTS! not even a blood draw. He said it's not always that easy but Aidan, my son, is classic celiac, I knew when I was breastfeeding. He gave me a note for his school and a bunch of local resources and sent us on our way. He said his philosophy is "do no harm" why get a baby sick if the treatment is working already! (that's what i was thinking) He also said if he ever gets into some gluten and gets a reaction that if we want he could test him then but that he'll never ask for a chalange! Just want to let everyone know, at least one thing was easy!

I'm so happy that you have a great doctor! =]

betsyabailey Rookie

Yeah I'd heard about the correlation between both and lupus. I had Lyme as a kid... grew up in Ct actually. And have been gluten-free since I started breast feeding my son. (Largely) I did test neg to Celiac though. I find it's easier to tell my kid to eat something I'm eating myself.

Thanks!


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    • catnapt
      If lectins were my problem, I would react to wheat germ (the highest source of wheat lectins) and beans. I don't. I only react to bread and pasta, which are the highest sources of gluten. Therefore, my issue is wheat-specific (Gluten/ATIs), not a general lectin issue.   I have eaten a supposedly high lectin diet (I say supposedly because lectin content in these foods is greatly reduced by proper cooking and I eat very few of those foods raw, and even then, rarely!!) for years. My health has improved greatly on my whole foods plant forward diet. I have asked all my drs and a registered dietician about my diet, asked if eating such a high amnt of fiber might interfere with the digestion of any other nutrients and the answer has always been NO.     while doing the gluten challenge I did not eat ANY wheat germ (since it doesn't have hardly any gluten, and I was too sick from the bread and pasta to want to eat much anyway) I will NOT put that poison in my body again. That was a horrific experience and if this is what most celiac patients have to deal with, I am very sorry for them I don't care if I have celiac or NCGS I won't intentionally cause myself that much pain and suffering it's not worth it.  
    • knitty kitty
      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
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