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artselegance

Tcell Lymphocyte - Biopsy Positive

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I'm new to all this....so I'll make this as brief as possible.

I was diagnosed B12 Deficient in December, 2007. Treatment for this includes Weekly injections, Sublinguals daily, B-complex, folinic acid.

Have had stomach issues off and on for years and have taken stomach meds consistently for last 3-5 years. (prilosec, nexium, protonix). Last several months acid reflux, burping, indigestion, heartburn constant with everything I eat. Gastro did EGD and colonscopy on Aug 8th. Nurse called and Friday for me to come in on Monday to have blood testing done for celiac. She said the biopsy is showing positive for Celiac, but they must do further testing. She said the TCell Lymphoctye is what the biopsy shows.

Is this a sign of lymphoma. I have been reading this site all weekend about celiac and am truly overwhelmed. How long will it take blood tests to come back. I know they have to send them off. Usually if the biopsy is positive, does the bloodwork come back positive?

I'm now beginning to wonder about the cancer end of this.....my mind is running wild.

My tummy is distended, bloated, gurgling......and I guess I will just start gluten free tomorrow and see what happens.

Anyone with any insight please post.....I'm glad I found this wonderful site and look forward to making friends.

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I saw your post and had to respond. I know you are worried. So I did some research online. I found this:

http://www.pubmedcentral.nih.gov/articlere...i?artid=1411143

It sounds like that once you go on a Gluten Free diet your T-Cells will go back to normal. Try not to let complicated medical terms scare you (although I know it hard). I do not think you have cancer.

And regardless of what the blood tests say....you have intestinal evidence of Celiac. You need to be on a gluten-free diet for life. Make sure they test your total IgA. If you are deficient in this antibody, the other blood tests will be invalid, so they will need to do IgG on you.


GLUTEN FREE 4/4/08. LEGUME/SOY FREE 5/15/08. YEAST FREE. CORN FREE. GRAIN FREE. DAIRY FREE. I am eating all meats, eggs, veggies, fruits, squash, nuts and seeds. I just keep getting better every day. :)

Do not let any of the advice given here substitute for good medical care. Let this forum be a catalyst for research. Find support for any post in here before you believe it to be true. Arm yourself with knowledge. Let your doctor be your assistant. Listen to their advice, but follow your own instincts as well. Miracles are within your reach. You can heal!

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Thanks for you response Shay. And you are so right about the medical terms. I realize at this point I need to concentrate on the healing and eating the proper foods. These forums help so much.

I have so much to learn because the evidence IS there.

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The biopsy is the official test for celiac, was yours just showing increased intraepithelial lymphocytes, or blunted villi, or something not totally conclusive? What did it say?

I guess they want the blood tests too, maybe in order to get a baseline so they can tell later how much the antibodies have gone down on the gluten-free diet. But one does not really NEED them if the biopsy came back positive.

in old times, they just did a repeat biopsy a year later to check how much you improved.

In kids, they did a repeat biopsy, and then the chid had to go back on gluten, and then be biopsied again, and then if they did not find damage this time, the diagnosis was taken away....Nowadays they put you on a gluten-free diet for life.

nora


gluten-free since may 06 after neg. biopsy symptoms went away and DH symptoms which I had since 03 got gradually better.

daughter officially diagnosed celiac and casein intolerant.

non-DQ2 or DQ8. Maybe DQ1? Updated: Yes, double DQ5

Hypothyroid since 2000, thyroxine first started to work well 06 on a low-carb and gluten-free diet

Lost 20 kg after going gluten-free and weighing 53 kg now. neg. biopsy for DH. Found out afterwards from this forum that it should have been taken during an outbreak but it was taken two weeks after. vitaminD was 57 nmol/l in may08)

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The biopsy is the official test for celiac, was yours just showing increased intraepithelial lymphocytes, or blunted villi, or something not totally conclusive? What did it say?

I guess they want the blood tests too, maybe in order to get a baseline so they can tell later how much the antibodies have gone down on the gluten-free diet. But one does not really NEED them if the biopsy came back positive.

in old times, they just did a repeat biopsy a year later to check how much you improved.

In kids, they did a repeat biopsy, and then the chid had to go back on gluten, and then be biopsied again, and then if they did not find damage this time, the diagnosis was taken away....Nowadays they put you on a gluten-free diet for life.

nora

Nora, thanks for asking and just now I have requested a copy of the biopsy. The "RUDE" nurse told me yesterday that it would take 7 to 10 days to get the blood tests back. Soon as I get the report I will post. Thanks again.

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Sorry that the nurse was rude to you about the blood tests. I've had several such experiences now. Did she mean that it would take 7-10 days for -them- to get the results, or for them to tell you the results? I've had good luck getting a copy of my blood test results sooner when I tell the office that I need a copy for something else (for example, that I missed work/class while I was at the lab and I need to prove where I was).

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Sorry that the nurse was rude to you about the blood tests. I've had several such experiences now. Did she mean that it would take 7-10 days for -them- to get the results, or for them to tell you the results? I've had good luck getting a copy of my blood test results sooner when I tell the office that I need a copy for something else (for example, that I missed work/class while I was at the lab and I need to prove where I was).

The lab work is sent to California. So it probably does take several days... I will give it until next Monday, then place another telephone call. Thanks!

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