Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac, Maybe, Desperate

Robink

By Robink
in Doctors

Recommended Posts

Robink Newbie
Robink
Posted

I live near Baton Rouge, Louisiana and I am looking for a doctor to run the specific tests that diagnose celiac. Can someone please help,

thank you, Robin

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


PaulaJ Newbie
PaulaJ
Posted

Hi Robin - I don't know of any docs in your area (I'm not from there) but I do know that you can get the test done through enterolab.com. :)

SarahbethBR Newbie
SarahbethBR
Posted

I went to Ochsner Clinic. I talked to Robbie Pitre, who is not a doctor but something else (not a NP, can't write prescriptions, I forgot her title). Someone on here recommended a different doctor also at Oschner, Dr. Khalid Moussa. Ms. Pitre also told me Dr. Moussa is a great doctor.

My experience with Ochsner was mixed. I felt like the staff at the location on Summa (near OLOL) was great. The nurses and staff there are always super helpful, and Ms. Pitre always listened to me and never dismissed my thoughts. My only complaint is that she didn't tell me I needed to eat gluten for my tests to be accurate. Since I have a wheat allergy as well, she said she didn't want me to risk anaphylactic shock, which is a real concern. I just felt like she should have told me in advance so I didn't waste time and money on inconclusive tests.

I had my EGD at the facility on Med. Center Drive (and you will too if you go with Ochsner, it's the only place they do EGDs and colonoscopies). The staff there were not at all nice or helpful. I had one woman scoff when I told her my husband's name, I assume because we didn't have the same last name. And every time I asked a question they got a little annoyed. The doctor doing the EGD was very dismissive, and acted like I definitely didn't have Celiac, and this was a waste of time. I don't remember anything after that, but my husband says he was rude to him, too, afterward.

Overall, I would go back to Ochsner, but I would try to stick to the Summa location if I could.

Lisa Mentor
Lisa
Posted
I live near Baton Rouge, Louisiana and I am looking for a doctor to run the specific tests that diagnose celiac. Can someone please help,

thank you, Robin

Hi Robin,

The Celiac Disease Foundation can help you get started. Good luck

Open Original Shared Link

Lisa Mentor
Lisa
Posted
Hi Robin - I don't know of any docs in your area (I'm not from there) but I do know that you can get the test done through enterolab.com. :)

Enterolabs can test for specific sensitivites but they cannot diagnose for Celiac Disease.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,658
    • Most Online (within 30 mins)
      7,748
    DML2493
    Newest Member
    DML2493
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Allergy Testing

      By trents · Posted

      Welcome to the forum, @ARutherford! Have you considered that your child may have gluten intolerance/celiac disease? It's not an allergy, it's an autoimmune response to the ingestion of gluten. It cannot be diagnosed by allergy testing but there are some specific antibody blood tests that any physician can order to check for it. Ask for a "total IGA test" and a "TTG-IGA" test. 
    • ARutherford
      Allergy Testing

      By ARutherford · Posted

      My child keeps getting rashes & stomach aches & l think it’s an allergy to gluten but l need to get a general allergy test done to confirm for sure what it can be. Getting an allergy test seems difficult, l keep hitting dead ends! I live in Christchurch & want to know if anyone can help with who to go to? Thanks
    • trents
      Is "Shield" skincare products gluten-free?

      By trents · Posted

      Good idea, @LynnM! That would be helpful to other celiacs who find themselves on the more sensitive end of the spectrum. You might also want to send them information about how to initiate the process with GFCO. But just a word of caution here, don't be surprised if the company is reluctant to pursue this certification as it can tie their hands with regard to changes in formulation in the future. Manufacturers often make ingredient decisions not only based on desired product outcomes but on cost factors. It can also put them at a liability risk should some ingredient supplier introduce an ingredient that was cross-contaminated with gluten without knowledge and cause someone to have a reaction. Testing for gluten-free certification is not done as frequently as consumers imagine and products can and do get out of spec at times. And once you slap a gluten-free certified label on a product, you are instantly open to possible liable suites. 
    • LynnM
      Is "Shield" skincare products gluten-free?

      By LynnM · Posted

      Hi Everyone. I just heard back from my son's GI doc and nutritionist. SHIELD products ARE gluten free. I am going to ask the company to Pursue gluten-free certification. 
    • Scott Adams
      Question about biopsy

      By Scott Adams · Posted

      Your experience highlights a common frustration in celiac disease diagnosis—discrepancies between lab results, biopsy findings, and clinical symptoms. The "localized mild nodular mucosa" noted in your duodenal bulb could indeed be significant, even if the overall pathology was deemed negative. Nodularity in the duodenum is often associated with lymphocytic infiltration, a feature seen in early celiac disease (before villous atrophy develops) or in conditions like H. pylori infection, chronic inflammation, or even food sensitivities (e.g., gluten or dairy). Since you had strongly positive celiac labs (e.g., TTG-IgA, EMA, or DGP), this nodularity might reflect an early or patchy immune response to gluten that wasn’t severe enough to meet traditional biopsy criteria (Marsh 3 damage). Some studies suggest nodular mucosa can precede classic celiac changes, especially in seropositive patients. Given your lab results and symptoms, it’s possible you have non-celiac gluten sensitivity (NCGS) or are in an early stage of celiac where damage isn’t yet widespread. False-negative biopsies aren’t uncommon due to sampling error (celiac can be patchy) or misinterpretation of subtle changes. If you’re still symptomatic, you might discuss repeat testing (e.g., HLA-DQ typing if not already done, or a gluten challenge with both serology and biopsy) or consider a capsule endoscopy, which can visualize more of the small intestine. Alternatively, H. pylori testing or a trial of strict gluten-free diet with symptom monitoring could provide clarity. Your case underscores the importance of correlating labs, histology, and clinical response—not just relying on biopsy alone. A second opinion from a celiac-savvy GI could be worthwhile!
×
×
  • Create New...