Gene Testing

[MyMississippi]

Hi folks,

I am weary of sitting at this computer researching everything on Celiac disease I've got a LIFE ---- I need to be living it . HA !

But I am such the CURIOUS person----" Leave no stone unturned," so to speak --------

So, those of you who have already done the research on the gene testing,---- tell me what value is it in determining Celiac disease ????

Thanks for your time and input

------------------------GO AWAY FAY------ We've had enough rain, already ! ! ! !

[ShayFL]

It does NOT diagnose Celiac. It only can show a genetic propensity. I had it done because I wanted to know for myself and if I had a gene I could have passed on to my daughter. I do not have the recognized U.S. celiac genes. I have 2 genes recognized by some other countries and Enterolab as being gluten sensitivity genes. One being connected to neuro symptoms (my main symptoms). Since I am neg. with blood, refused biopsy, I did the gene test just to see if I had any real reason to cut out gluten. I did. So I did. And I am better for it.

[MyMississippi]

I know gene testing isn't used to diagnose celiac. BUT-----

Here's a quote from Dr. Peter HR Green, MD : "As celiac disease is in the genes,it will remain in the genes of families forever.... " my children are negative " is a common refrain. One should also add "for now" because Celiac disease can appear at any age in people who are negative in testing for the disease on previous occasions."

[ShayFL]

What he is saying is that if you have Celiac genes, then you can get the disease at anytime. Not that you WILL get the disease. Not everyone with the 2 recognized genes do. You can get tested so you know if you have the genes. For some it helps solidify their commitment to a gluten-free diet. It was for me.

[crunchy-mama]

What he is saying is that if you have Celiac genes, then you can get the disease at anytime. Not that you WILL get the disease. Not everyone with the 2 recognized genes do. You can get tested so you know if you have the genes. For some it helps solidify their commitment to a gluten-free diet. It was for me.

I hope it is ok to ask a question on someone else's thread (I am new to this forum and it seems the etiquette is different at different forums- if I should start a new thread then I will) It is my understanding that you cannot have the disease if you don't have these genes, right? However, I have seen you and others talk about how some genes are not recognized here, but are other places- so how do you get all of them tested? Can any lab do this? I get a huge discount from a local lab that is affiliated w/ dhs work clinic.

For me I think it would be helpful to know if it is a possibility or not. Right now I keep telling myself it is all in my head. I think it would help me w/ keeping the diet as well and seems a good first step.