Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gastroscopy - Normal Side Effects?

Helena

Recommended Posts

Helena Contributor
Helena
Posted

I had a gastroscopy done about 1 week and a half ago. The resident doctor (my doctor was instructing) took biopsies of my esophagus, stomach, and small intestine (the celiac test won't tell me much though because I wasn't able to eat enough gluten prior to the test and I've been gluten free for awhile).

When I look at the list of 'complications' on the internet, none of mine seem to fit....while I didn't have severe problems afterwards, it did take me several days to get better, and my stomach is still upset.

My throat hurt for several days when swallowing liquids or food. For the first 48 hours or so, I pureed all my food because it hurt slightly all the way down...even soft foods hurt. Also, while my stomach didn't hurt, it felt like I had done too many situps or something. The one side effect that seems to be persisting---I feel like my stomach is upset and I have D in the mornings. Could that be from the test still or from something else?

My throat is okay now....but I'm still wondering whether it was 'normal' for it to hurt for awhile. I'm also wondering if my upset stomach could be from the procedure.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

It sounds like they may have glutened you during the procedure or with the prep. Were you given anything to calm you before the procedure? Doctors and nurses don't know the gluten statis of the drugs they prescribe we have to make sure they check and if you haven't yet been diagnosed they might not think there was a need. Another possible gluten source would be the spray that they put on your throat before they insert the endoscope. Did they send you home with any meds that you started taking that day? If so check them with the maker to be safe. Just a hint when you call to check on meds, script and OTC, sometimes you can get a better and more complete answer if you tell them you have an allergy to wheat rather than celiac. The powers that be consider codex wheat starch safe, it is not, and the maker may say an item is gluten free even if that is the starch binder they use. An allergy or histamine reaction has no tolerance levels and if they think you are allergic and might drop dead instantly rather than it taking years you will get a more accurate response.

Hopefully you are feeling better and the after effects will be over soon. If things get worse or you start to run a fever do get back in touch with the doctor.

dlp252 Apprentice
dlp252
Posted

The sore throat thing is pretty normal for me. I just had my fourth endoscopy on July 2, and this time the sore throat lasted a bit longer. I also have reactions to the sedatives they give me, and that can last for up to a week with some symptoms lasting a bit longer depending on what they give me.

I tend to react to all sedation type drugs...I just had foot surgery and was quite sick the day after. I had a sore throat which spread to my ears, which lasted for almost a week. I tend to get very light headed/dizzy (where I feel like my brain is disconnected and floating in my skull), sometimes nauseated, sometimes diarrhea, sore throats, and ear aches.

Over the last two years I've had 4 endoscopies, a bladder surgery and a foot surgery, with several different types of sedation and anesthesia, and have reacted to all of them, some moreso than others. So it could be that one of the medications had gluten, or you could just be sensitive to the meds in general.

Helena Contributor
Helena
Posted
  • Author

ravenwoodglass, I'm pretty sure I wasn't glutened during the procedure. I have allergies, so I checked the ingredients of the meds way in advance. But you got me thinking...it could have been something else. I am allergic to corn, and there was a corn-derived ingredient in one of the meds. I wouldn't think that I would react for such a long period of time, though ;) Thanks for the tip about the meds. I didn't know that they could say they are 'gluten free' if they contain wheat starch :blink:

dlp252 - good to know that the sore throat lasting more than 24 hours is normal! I guess I could have had a reaction to the sedative. I should mention this to my allergist the next time I see him!

happygirl Collaborator
happygirl
Posted

Hi Helena - good to see you here! Hope your side effects subside quickly!

Helena Contributor
Helena
Posted
  • Author

Hey happygirl, Thanks :) -- good to be back. And I am doing better...my stomach is more settled now.

MyMississippi Enthusiast
MyMississippi
Posted

Yes, it is normal to have sore throat after endo----- I'm surprised they didn't tell you that. :)

And it's possible to have sore tummy, etc.

All should resolve shortly--- if not, give the doc a call.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dlp252 Apprentice
dlp252
Posted
And I am doing better...my stomach is more settled now.

Good to hear!!! Yes, I mention my sensitivity to whomever will be administering the sedatives (in fact I mention it to as many people as will listen, lol, nurses, doctor, whomever, lol). With the endoscopies, I usually just have a nurse who gives the sedatives.

I actually had an anesthesiologist for my foot surgery and he gave me some things to help the nausea, but when I was in recovery, I couldn't stop shivering (even after two warmed blankets), so the nurse gave me something to relax me, and I think that's what made me really sick this time. So, now I'll know next time to just ask for more warm blankets and keep the happy drug for a last resort, lol. :lol:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. lil-oly
      - lil-oly replied to Jmartes71's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Gluten tester

      Hey there, have you been tested for allergies? You may not only have celiac disease but be allergic. I have celiac disease and am allergic to Barley, wheat and rye.
    2. JudyLou
      - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      Thanks so much!
    3. knitty kitty
      - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      I have osteopenia and have cracked three vertebrae. Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins. Blood tests don't reveal the amount of vitamins stored inside cells. The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four...
    4. JudyLou
      - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician? Have you been checked for nutritional deficiencies? Osteoporosis? Thyroid? Anemia? Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the...
    5. knitty kitty
      - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      @JudyLou, I have dermatitis herpetiformis, too! And...big drum roll... Niacin improves dermatitis herpetiformis! Niacin is very important to skin health and intestinal health. You're correct. dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,155
    • Most Online (within 30 mins)
      7,748
    Beccad611
    Newest Member
    Beccad611
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • lil-oly
      Gluten tester

      By lil-oly · Posted

      Hey there, have you been tested for allergies? You may not only have celiac disease but be allergic. I have celiac disease and am allergic to Barley, wheat and rye. 
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Thanks so much! 
    • knitty kitty
      Seeking advice on potential gluten challenge

      By knitty kitty · Posted

      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      Seeking advice on potential gluten challenge

      By knitty kitty · Posted

      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.