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Overwhelmed And Scared

rainbowgoddess

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rainbowgoddess Newbie
rainbowgoddess
Posted

I have had diegestive problems for a long time, I really began to notice it a few years ago when I noticed that I had very foul oderous gas, constipation/ and or D. For a while I was having trouble keeping any food down so my gall bladder was removed. The most recent issues I am having are....

Diagnosed with UTI- July 2007

Diagnosed with colitis - July 2008

Diagnosed with iron deficiency anemia-July 2008

Diagnosed with enlarged spleen-August 2008

Frequent Lengthy Migraines

fatigue

muscle cramps

lactose intolerance

cinnamon oil allergy

laytex allergy

morphine allergy

walnut allergy

I have had many blood tests, ct scans, they have ruled out Mono, Liver conditions, and Leukemia among many others

Dr explained to me that my mcv is 69 acceptable is 80-99

He has referred me to a hematologist, no colonoscopy or Endoscopy

Any suggestions?

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MyMississippi Enthusiast
MyMississippi
Posted

Hi, :)

First suggestion------ Don't be scared---- only makes EVERYTHING worse.

Second suggestion----- to help with feeling overwhelmed----- Let this be your mantra :) " I will take one day at a time " , then pursue every avenue to wellness, but understand that it may take a while to sort everything out.

Do go ahead and see the hematologist that your doctor recommended and discuss with him your concerns about possible Celiac disease-----

ask him if it would be beneficial to have the Celiac panel done for your peace of mind ----

You may want to read "Celiac Disease, a Hidden Epidemic" by Dr. Peter Green----

Hang in there----- Hope you are feeling better soon.

ShayFL Enthusiast
ShayFL
Posted

My migraines are gone gluten free....there is light at the end of the tunnel. You should get tested for Celiac. Find a doctor who will do a complete Celiac panel.

ravenwoodglass Mentor
ravenwoodglass
Posted

Call your doctor Monday morning and ask to speak to a nurse. When you get the nurse on the phone tell her that you would like to pick up or have faxed a lab slip for a complete celiac panel. You should not need to wait for another appointment to do this. If your regular doctor refuses, which I don't think they will, call the hemo's office and ask for them to call in the request. During the same call tell them you want to be sent the A COPY of the lab results when they come in. Don't rely on just the blood test though. There are too many false negative for you to take a negative result and think okay then I am definately not celiac.

rainbowgoddess Newbie
rainbowgoddess
Posted
  • Author

Thank you those who responded. I went to the hematologist office and she ordered a colonoscopy, endoscopy and iv iron which is a 6 hour process

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