Suspected Symptoms Of Gluten Intolerance?

[Newbie789]

Hi, I am new to the forum. These are my symptoms:-

Severe bloating and sore back, Irritable bowel, Acne and Dry itchy skin, Brain fog - Memory loss, Tiredness, Nausea, Low Mood, Feeling not very sociable, Irritable, Food Cravings, Anxiety, Panic attacks, Nasal congestion, Low energy, Foot cramps, Muscle twitching, Night sweats, Ringing in ears, Rapid heartbeat, Raynaud

[MissyH]

You should go get biopsies done.

(In the UK this involves eating the equivalent to 4 slices of bread a day for 6 weeks prior to the biopsies being done..then they take 4 biopsies to test)

In the US I believe they take more biopsies..and I did see on one post from a long term member on here that the length of time to eat the 'evil' foods is 3 weeks, not 6..but your doc will let you know.

I had a lot of the symptoms you have..plus, gout like feelings in my feet and low blood sugar levels (I was tested for diabetes but it wasn't that).

I didn't have blood tests as they weren't not testing blood at the time I had this all checked out in th UK but I did have biopsies..but only 3 were good to test as the nurse dropped on on the floor!

I came back negative for coeliac but was diagnosed as wheat intolerant..however I have a very sever reaction to anything liquid which contains gluten..such as lager and vinegar and I suffer if I have malt too (in most cereals even those which do not contain wheat..eg rice pops).

Because I was diagnosed I do get prescription gluten free food..so it's worth going through the tests even if they just say it is wheat intolerance.

However, I am a firm believer now in..if you cut it out and suddenly feel better..then listen to your body..so it sounds like you have wheat and lactose intolerance..but I would split up your test periods.

If I ever cheat and eat anything normal bread or pastry it can be anywhere between 1 day to 3 weeks later that it affects me..usually though it will be a week later and I suffer all of the tummy symptoms..hence I don;t cheat often!

Hope that helps a bit.

[Newbie789]

Hi MissyH,

i have been on the elimination diet and tested reintroducing suspect foods which i then noticed reactions to - some fairly quickly and some delayed. It seems that i am even more sensitive to wheat and gluten since periodically removing it from my diet, and am fairly certain that wheat, gluten, barley malt etc and dairy are all a problem. I feel I know how it affects me regardless of what doctor tells me and really don't want to go through more tests just to confirm this. The only way to resolve it is a gluten free diet anyway right? I guess I need to eliminate them for longer than 1-2 weeks to see if i notice further improvements. I usually give in to my cravings after few weeks and suffer the consequences for days afterwards.

You should go get biopsies done.

(In the UK this involves eating the equivalent to 4 slices of bread a day for 6 weeks prior to the biopsies being done..then they take 4 biopsies to test)

In the US I believe they take more biopsies..and I did see on one post from a long term member on here that the length of time to eat the 'evil' foods is 3 weeks, not 6..but your doc will let you know.

I had a lot of the symptoms you have..plus, gout like feelings in my feet and low blood sugar levels (I was tested for diabetes but it wasn't that).

I didn't have blood tests as they weren't not testing blood at the time I had this all checked out in th UK but I did have biopsies..but only 3 were good to test as the nurse dropped on on the floor!

I came back negative for coeliac but was diagnosed as wheat intolerant..however I have a very sever reaction to anything liquid which contains gluten..such as lager and vinegar and I suffer if I have malt too (in most cereals even those which do not contain wheat..eg rice pops).

Because I was diagnosed I do get prescription gluten free food..so it's worth going through the tests even if they just say it is wheat intolerance.

However, I am a firm believer now in..if you cut it out and suddenly feel better..then listen to your body..so it sounds like you have wheat and lactose intolerance..but I would split up your test periods.

If I ever cheat and eat anything normal bread or pastry it can be anywhere between 1 day to 3 weeks later that it affects me..usually though it will be a week later and I suffer all of the tummy symptoms..hence I don;t cheat often!

Hope that helps a bit.

[ksymonds84]

Hi MissyH,

i have been on the elimination diet and tested reintroducing suspect foods which i then noticed reactions to - some fairly quickly and some delayed. It seems that i am even more sensitive to wheat and gluten since periodically removing it from my diet, and am fairly certain that wheat, gluten, barley malt etc and dairy are all a problem. I feel I know how it affects me regardless of what doctor tells me and really don't want to go through more tests just to confirm this. The only way to resolve it is a gluten free diet anyway right? I guess I need to eliminate them for longer than 1-2 weeks to see if i notice further improvements. I usually give in to my cravings after few weeks and suffer the consequences for days afterwards.

I know you intended this reply to Missy but wanted to add that you sound like me. I had a negative blood test but the gp didn't do the full panel and I was already gluten light when he did the test. He offered to send me off for biopsy but I just couldn't put myself through it to add back in gluten (I was 3 months gluten free when he offered to do this). He agreed and was amazed at my results. I had alot of gi symptoms plus mouth sores, cramping legs, eczema and it all cleared up as long as I am gluten free. He went ahead and diagnosed me based on my diet response alone. I feel that you should always listen to what your body is telling you. I kept a food journal for 6 months and that helped a great deal when I had mishaps and it helped point me to where I made a mistake. Good luck and keep us informed on how you are doing!

[MissyH]

The only reason for getting tests is to get prescrption foods..I had to do the tests to get that.

ut absolutely..if you are ok without prescrption foods (in the UK they are so expensive to buy) then just go for it and do what your body likes.

I give in to cravings too..currently suffering from a slice of garlic bread last Sunday...grrr! My own fault!

[Newbie789]

Well, i am now on day 4 gluten and dairy free since my last pig out on glutening foods and already I have ten times more energy, feel happier, bloating is almost gone, woke up a lot earlier this morning and actually wanted to get out of bed. Night sweats, foot cramps, pins and needles, muscle twitching all gone. Ringing in ears is still there a bit but my heartbeat has calmed down also. I have also noticed i can focus more clearly on tasks through out the day and not feel as tired. I keep telling myself do not give in to your cravings anymore and i must admit they are starting to fade - i know its still early days though...................