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Columbia Conference

flagbabyds

By flagbabyds
in Coping with Celiac Disease

Recommended Posts

flagbabyds Collaborator
flagbabyds
Posted

I was was wondering if anyone is going to this, I am, April 2nd and register @

Just wonderingOpen Original Shared Link

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darlindeb25 Collaborator
darlindeb25
Posted
:( i would love too, but i work on saturdays and since it is a new job i dont feel i can request time off---anyone that goes can fill us in--otay----deb :lol:
celiac3270 Collaborator
celiac3270
Posted

That's so cool! Thanks for posting it--I sent the link to my mom and I think I can go :). It might be very interesting and I'll make sure I take scrupulous notes or save brochures so I can share all the information here.

angel-jd1 Community Regular
angel-jd1
Posted

The only activity that I see on the 2nd is a screening fair. Am I missing something?? -Jessica

I only found this:

April 2, 2005

Celiac Disease Center

flagbabyds Collaborator
flagbabyds
Posted
  • Author

YOu have to click on the calendar of events and then you can get the pdf agenda and there are a lot of talks and discussions.

I'm flying out from California on Wednesday and leaving on Sunday and going with my sister who is getting the screening, it's going to be really fun

Wow I keep editing this, ok it is a screening fair but you don't have to get the screening done, there are also talks and sessions if you look on the calendar of events

stef-the-kicking-cuty Enthusiast
stef-the-kicking-cuty
Posted

Does anybody know, how the screening will be done? Blood test??? And do you need more than one person from one family since it said family screening???

Hugs, Stef

flagbabyds Collaborator
flagbabyds
Posted
  • Author

you don't have to have more than 1 person it is just reccomended so you can get your whole family tested, and i think that it is done by blood but i'm not sure, you can email the lady if you want to know

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flagbabyds Collaborator
flagbabyds
Posted
  • Author

I just registered! It's going to be so interesting and fun!

celiac3270 Collaborator
celiac3270
Posted

No--you don't need more than one person. It's just marketed that way. My mom and I both registered last night--she's going to do the screening even though she's tested negative for celiac in the past because she seems to have symptoms that match up with celiac: hypothyroidism, bloating/distended stomach after eating particularly gluteny foods, etc.

If you register, you have the option to do the blood screening, for which you need to pick a time frame, such as 8:00-8:15, 8:15-8:30, etc. in which you would like to do the test. I'm not getting tested, obviously, but I'm doing the other option you need to sign up for, the "teen cooking" thing, which you also need to pick a time for: a morning one or an afternoon one at 2:30. Then there are people talking throughout the day--you listen to whichever talks you want and they have a Q and A section after each...lecture? speech? whatever they call it.

To answer your question--simply, get as many people from your family tested as you want--or none.....

flagbabyds Collaborator
flagbabyds
Posted
  • Author

I'm not getting tested either... But my sister is even though she has been doing mostly gluten-free, she wants to get tested again, because her Biopsy was negative, but she feels better on the diet. I'm doing the afternoon teen cooking, all teens who are going should do this one ;)

celiac3270 Collaborator
celiac3270
Posted

I'm also doing the afternoon teen cooking....yay, I'll meet somebody else from the board! :) Then I'll be able to put a face with the name :P

If your sister is on a nearly gluten-free diet, though, she probably won't get accurate blood results, but I guess if it comes free with going to the event and it only takes a few minutes, it can't hurt.

mela14 Enthusiast
mela14
Posted

now that I am officially here in NJ I will probably register to go! I just oed in today....everything is in boxes but got to my lap...yeah!

I really need you guys now! I am soooooooooo sick. I have been officially glutenized to the max! I am going to post a new topic just to keep things straight...but the bottom line is I bought a whole rotisserie chicken in Wegman's and am deathly ill from it! I spent an hour crying in the bathroom and feeling like I was poisoned! My gut is raw and painful and distended. I am in AGONY!

I had this same chicken at this same Wegman's 3 weeks ago and did not get sick. I specifically went to this store . the label said whole chicken...nothing else...no added ingredient. . I spoke with the cook and she said nothing was added............. I walked out of a different store that I had gone to before this store because the chicken they had was full of "bad" ingredients!

I am getting worse! I just flew in last night and was still suffering from the Lays Potatoe chips and now this. I did NOT eat on the airplane and had a banana for breakfast....so that wasn't it. I ate the chicken and immediately got sick.......... I had a baked sweet potatoe with it but it wasn't that. I microwaved it myself so it couldn't be that. I ate nothing else! it's not 7 hours later and haven't been able to eat. I feel so ill........

If my stove would have been connected this might not have happened. I had workers in my house during the week and the kitchen should have been in order. I get here only to find my stove in my dining room along with my frig. The ony place that I felt safe to go to was Wegman's and now this. The workers are back tomorrow at 8:00am to do the floors in the kitchen. After that I will have my kitchen back.

So much for a smooth move! I should have stayed in Florida. I am so depressed and still in so much pain.

Help! I thought about slitting my wrists today. I can't do this anymore!

I have so much to do this week and just want to lay down and rest. Make the world go away!

I'll have to call my new GI and move my appt up. At this point he might as well do the biopsy that I've been avoiding............I really need to be sedated (just to get some rest)....even if for a little while. Maybe I won't wake up ...won't that be an added bonus.

So much for putting this in another post. I got it all out right here.

oK.the migraine is setting in and I don't know how I will be able to sleep from this pain..........I dare not even take anything for it.

irishchick04 Newbie
irishchick04
Posted

Wow. I wish I could go to this. Luckily it sounds like the people who are getting to go will be able to give us a full review.

Mel,

Hang in there. I know how you are feeling. I just spent the last hour crying on the phone to my mom because I have been feeling so sh*tty.

I had to go on a four day field trip with my college class and I accidently got gluten the day before and I had the worse reaction while I was on the trip. It is so <i>not</i> fun to be out in the field doing research and suddenly need to use the bathroom for like four hours. I know what you mean when you say you feeling like slitting your wrists. But believe me, that's not the solution.

Just hang in there. It's so hard sometimes (actually ALOT of the time). I often feel like I just can't win but you just gotta keep putting one foot infront of the other.

Good luck!

Caryn

KaitiUSA Enthusiast
KaitiUSA
Posted

I think I am going to go too my parents seem interested in taking me but I'm not 100% sure if I'm going yet. I hope to :D

  • 3 weeks later...
celiac3270 Collaborator
celiac3270
Posted

The registration deadline for this event has been extended to March 21st. So for anyone who has an interest in going and hasn't registered--you still have two more days!

Kaiti, are you going?

Carriefaith Enthusiast
Carriefaith
Posted
The admission fee includes screening for celiac disease, test results, educational sessions, cooking classes for teens, exhibits, food sampling and entertainment.

Oh wow... that sounds like fun! I'd love to go but I am insanely busy for the next 3 weeks <_< Hopefully, I can make it to the next event! :)

For those that do go, let us know how it went!

celiac3270 Collaborator
celiac3270
Posted

I will :). I'll take scrupulous notes and post them in a new thread. I'll try to make everyone who can't make it feel like they did :D;)

Carriefaith Enthusiast
Carriefaith
Posted

Thanks celiac3270! That's very nice of you! B)

It would sure be nice if we could all make it to an event like this... It would be like a

Celiac.com reunion :lol:

celiac3270 Collaborator
celiac3270
Posted

I know--wouldn't that be amazing?!

I've only met Kristina (mysuicidalturtle) in person...but I'll meet Molly (flagbabyds) at the conference...that'll make two celiacs from the board :D

dreamhouses Newbie
dreamhouses
Posted

Mela, I hope you feel better soon. We will not be defeated by one funky chicken!! Since you are wondering about that chicken you ate: do you know that sometimes chicken has stuff injected into the meat by the processor, like a some sort of salt solution containing who knows what. I was really surprized to read a label in the grocery on some raw chicken saying it had this stuff, - I don't know if that would have gluten in it, but it makes me suspicious, maybe the place you got it used a product like that the second time.

FYI when I had really bad food allergies(in my early 20's) I was helped the most by sublingual drops which trained my body to tolerate stuff by putting tiny doses under the tongue...and interfering with the IGE reaction. Cool stuff. I'm having a few more food allergies now (much later) ... and I'm about to do the Bioset program with my naturopath - which uses accupressure. I'll post on how that goes, but she says its really effective. Keep your chin up. Valerie

celiac3270 Collaborator
celiac3270
Posted

Online registration is extended to Friday, March 25!

There are still openings for celiac disease screening at the Celiac Disease Center Family Screening Fair.

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    • rei.b
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      By rei.b · Posted

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    • knitty kitty
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