Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Re-testing Enterolab Question


LoriG

Recommended Posts

LoriG Contributor

Here were my enterolab results a year ago:

antigliadin igA 15

transglutaminase igA 18

fecal fat 771

one celiac/one gluten gene

Anyway, I've been gluten-free one year and retested the fecal fat score which came back 288 (normal).

I have a lot of other health problems mostly thyroid/adrenal and being gluten free hasn't really helped me at all, unfortunately. I feel like I've been spinning my wheels with this gluten thing for a year, becoming "obsessed" with cross contamination etc. The only thing I notice if I eat gluten is constipation.

Based on this new test score, I am led to believe that going gluten free has helped me even if it hasn't shown up in my health right? It must mean that why I feel so bad is related to something besides the Celiac right? It has been a mystery to myself and the doc's why going gluten-free hasn't helped me. Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

What are you doing for your Thyroid and your Adrenals?? It isnt easy to get these balanced and not just any ol doctor will do. You need someone who really understands how these organs work and what meds to try (there are many meds to choose from and there are no better meds, but everyone is different and you have to find out which one(s) work best for you).

LoriG Contributor
What are you doing for your Thyroid and your Adrenals?? It isnt easy to get these balanced and not just any ol doctor will do. You need someone who really understands how these organs work and what meds to try (there are many meds to choose from and there are no better meds, but everyone is different and you have to find out which one(s) work best for you).

I spent months working w/ a nutrtionist, cutting out food groups, adding more protein, more HCl/digestive enzymes etc. to no avail. Then, I really started concentrating on my thyroid/adrenals instead and did extensive testing. All trying to "guess" what was wrong with me despite going gluten-free. Kept getting worse and worse.

I've been around the block for 2 years with thyroid/adrenal issues. I've seen multiple doctors, have tried multiple combo's of thyroid pills. Found out recently I'm actually Hypopituitary and my adrenals are in major shut down as well as my thyroid. Right now I'm working with hydrocortisone to get my adrenals supported and am trying a T3 only for now since I also have High Reverse T3. May try armour again down the line. All of my hormones are low normal due to the hypopit. Glad I found it out finally, but very difficult getting better. When i found out I had Celiac's, I thought that was the end all be all of my health problems, but a year later, i am much more sick despite going gluten free. That's why with my recent re-testing, I now realize how much more my thyroid/adrenals are causing my health problems than the gluten. Very frustrating. I do have a current doc who will give my meds, but I've had to figure it all out myself.

Thanks for asking.

nora-n Rookie

i, I have read several abstracts and articles about adrenals, thyroid, etc. and most of it is autoimmune.

Even 30% og hashimotos patients have pituitaryantibodies (hat is why the TSH test is so stupid, one needs to go by the actual thyroid hormones, rread all about this in the thyroid forums)

Now you obviously have had this a long time, and there probably is some damage to the hypothalamus/adrenalsand one cannot expect it all to go away.

There was an ex-doctor posting on the thyroid.about.com forum, Larrian Gillespie, and she had pituitary/hypothalamus problems too and wrote about it. Her postings are still in the archives folder, a huge thread of 4000 + postings , hormone help please or something like that.

One thing came to mind, you could try LDN, go over to www.ahsta.com and look into it.

nora

LoriG Contributor
i, I have read several abstracts and articles about adrenals, thyroid, etc. and most of it is autoimmune.

Even 30% og hashimotos patients have pituitaryantibodies (hat is why the TSH test is so stupid, one needs to go by the actual thyroid hormones, rread all about this in the thyroid forums)

Now you obviously have had this a long time, and there probably is some damage to the hypothalamus/adrenalsand one cannot expect it all to go away.

There was an ex-doctor posting on the thyroid.about.com forum, Larrian Gillespie, and she had pituitary/hypothalamus problems too and wrote about it. Her postings are still in the archives folder, a huge thread of 4000 + postings , hormone help please or something like that.

One thing came to mind, you could try LDN, go over to www.ahsta.com and look into it.

nora

Thanks Nora for the information. I'll check it out.

gfpaperdoll Rookie

I think you might want to look at cutting out all grains & gluten free processed foods.

Maybe treat yourself occasionally to some organic white rice... skip the white potatoes & sub in sweet potatoes. & good for you for going dairy free, keep that up.

If you are not allergic to corn, add in an occasional Mission Brand White Corn tortilla or their corn chips - but I would not add corn in until you feel very well & can tell if it makes you feel worse.

constipation is a huge sign of a gluten problem... If you have DQ1 genes & this symptom, IMO it can lead to colon cancer. and all the more reason to cut out grains.

What we really need to be healthy are lots of veggies, fruit, meat, seafood, nuts, eggs, & seeds. & good fats like coconut oil (& coconut milk) advocado, nuts, olive oil (cold pressed, not heated in cooking)...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      30

      My journey is it gluten or fiber?

    2. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    4. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,818
    • Most Online (within 30 mins)
      7,748

    Twiggy777
    Newest Member
    Twiggy777
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.