Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do You Ever Just Wish


sickchick

Recommended Posts

sickchick Community Regular

You could lay down, take a year long nap, and when you wake up it's your time and your body is all healed? lol B)

I'm setting my alarm for Oct 2009. Cool! I just washed my sheets! :lol:

ni ni!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



munkee41182 Explorer

Good Night!!! 44 days until I get married...I got contaminated Tuesday night, had my first fitting last night with a bloated belly. SO PO'D!!!!! I'd love to sleep for the enxt 43 days......wake up, everything fit, not have a bloated belly and call it a wedding! I gues I need to wash my sheets now too!

ShayFL Enthusiast

Honestly, I feel every day is a blessing even if I am sick. I almost died at birth, drowned but was revived at 9, almost died at 13 with a ruptured appendix and survived a horrible car accident. Clearly I have a purpose here. :) I hate being sick. But at my lowest and sickest point I asked God to help me be able to mother my daughter (she is now 12) and I feel that getting that privilege is worth staying positive. I dont want to miss a year of teaching her and watching her grow. I also wouldnt want to miss a year of snuggling with my husband every night and playing with my doggies everyday.

sickchick Community Regular

Jami... you must be a little frazzled to say the least :lol:

WOW Shay that is pretty awesome :):):)

lovelove

roxie Contributor

Your post reminded me of a dream I had not too long ago. I dreamed that I jumped out of an airplane and started floating through the beautiful star-lit sky. I kept saying, "I'm Free - I'm Free!" I was thinking of NOTHING but floating. I feel like Celiac Disease has consumed my life. I want to be free again!!

Chrissyb Enthusiast

Yes there are days I feel like that and today was one of them. I deal with other illnesses also so today I had to get a 4 hour iv infusion for one and the nurse had a hard time finding the vain and since I have to do it again tomorrow she just let the cath in and it is in the top of my hand not a fun place. And to think I get to do this every month oh well such is life and it could be worse. I have many many blessing and I remember to thank God for them each day.

sickchick Community Regular

Oh roxie, I wish I could give you a big hug :D

OWWW Chrissy that sounds very painful... :huh:

hang in there everybody.

we are ALL blessings! xxx :)

I was just incredibly exhausted today and felt like if I laid down to sleep I'd sleep for a year at least ;)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



munkee41182 Explorer

I'm not too frazzled....I just had to tell the seamstress not to take in the top yet because of my belly. She actually offered to have me come back tomorrow (Saturday) for the fitting, which she usually doesn't do because she works out of her house. So I took her up on the offer and have been eating very plain rice, chicken and plain veggies just to get the belly down (which it has).

Besides, I got everything done about 10 months ago because I know how I am (I'm very uptight) and didn't want to be too frazzled around this time. Just waiting for stupid RSVP's so I can do the place cards and need to find wrapping paper to wrap the bridal party's gifts in. The hardest part now, trying to not get contaminated from now until October 26th (when we come back from our honeymoon). That's what I'm most freeked out about! One week in Antigua...I hold my fiance to throw me on the beach and make sure that I'm stocked with Lara bars and fresh fruit and hopefully I'll come home not ill!

And I agree, we're all blessings. Shay, your picture should be of a cat, you have so many lives!!!!

sickchick Community Regular

Good for you Sweetie! I hope your wedding is truly blissful:):):)

roxie Contributor

Collette,

You sound so free spirited and Happy/Positive!!! I envy you!!! Roxie

sickchick Community Regular

wow! that is incredibly sweet, roxie

and another hug for you :)

purple Community Regular
Honestly, I feel every day is a blessing even if I am sick. I almost died at birth, drowned but was revived at 9, almost died at 13 with a ruptured appendix and survived a horrible car accident. Clearly I have a purpose here. :) I hate being sick. But at my lowest and sickest point I asked God to help me be able to mother my daughter (she is now 12) and I feel that getting that privilege is worth staying positive. I dont want to miss a year of teaching her and watching her grow. I also wouldnt want to miss a year of snuggling with my husband every night and playing with my doggies everyday.

AMEN!

purple Community Regular

I live in a town, so small there are only 5 or 6 stop signs and no stop lites. I shop in the big city 1 hour away. I am not a celiac. When I go to town I think of all you people that are gluten-free. I am mostly gluten-free. I drive past all the fast food places (none in our town) and other restaurants, thinking about how hard it is for you guys. I shop quickly down some of the store aisles b/c there is nothing there "we" can buy. I am thankful for all I have learned on here from you great teachers! My dd is gluten-free and the other dd (19/17)is trying to be and dairy/egg free. Celiacs are very strong even when the body is weak. If you asked a gluten eating person to just give it up...they couldn't, most anyway. I am so proud of everyone here!

My heart is heavy for all the children. They go through so much. Babies thru college kids. So hard. And moms.

I went shopping last night and chose to eat a banana and some chips instead of fast food. I realize how hard it is except I don't know your physical pain. Not only physical but emotional. The list goes on. Friends, family, relatives, co-workers, waiters, etc., don't get it b/c they don't walk in your shoes.

We are blessed b/c we are eating healthier. Gluten eaters don't know what all their food is doing to their bodies.

Just peek into other peoples carts. Picture the products as boxes and bags of chemicals with the green Mr. Yuck sticker on them. Poison. Toxic. Early death. Time bomb waiting to explode. We are blessed.

Think of starving kids that may only get a bowl of rice for the day. We are blessed. Think of concentration camp prisoners that only got bread and watery parsnip soup. Sickly bodies and in prison, losing all they had and knew. We are blessed.

I and my family are eating more healthy. We are blessed.

I have prayed for many of you. You are blessed.

I want to quote a bible verse.

Revelation 21:4

And God shall wipe away all tears from their eyes; and there shall be no more death, neither sorrow, nor crying, neither shall there be any more pain; for the former things are passed away.

My prayer is that all of you will be included in this group called: "their"

My God's peace with you all. I love you guys!!! :)

Chrissyb Enthusiast

Wow thank you purple, you brought tears to my eyes, I love that verse. I truly am blessed and I consider it a blessing to find out that I have celiac disease and I am no longer poisioning my body. Sometimes I miss certian foods but it passes and I am learning how to cook things that are better tasting. (still looking for fluffy yummy pancakes :lol: ).

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.