Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can Someone Explain Dh To Me?


givenupgluten

Recommended Posts

givenupgluten Explorer

What does it look like exactly? When i saw my gastro dr. just recently he was asking if I ever broke out in 'rashes' or had itchy spells before going gluten free. I said no, not really giving it too much thought. My mother has celiac and she has never had any skin problems at all either, so I really never associated the two. I pretty much assumed I didnt either but, when i came home and told my bf about it, he mentioned several occasions where I did have extremely itchy sensitive skin but I never broke out in to any kind of rash. Just recently I had a large area on my shin that was itchy and I scratched and it broke out =- It looks awful. I'm terribly embarrassed to wear shorts or skirts, but it's HOT so I'm doing it anyway! haha

It's been almost two weeks now that I've had it and while it's very itchy, I've tried not to scratch it. It looks just as terrible as the first day though. It looks sort of like a rash (i guess) and bumpy and red. I can't tell if I just scratched too much in the beginning and made it break out like that, or if this is something else. Can anyone explain what dh looks like, or what their symptoms are like?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RoseTapper Newbie

For me, DH presents as blisters surrounded by inflamed skin (pink or red). The area itches for a while before the blisters form, and then the blisters themselves are extremely itchy. The worst of the itching continues for about 48 hours after the blister pops, and then the tissue underneath kind of hurts in addition to itching. The pain lasts for about another 48 hours and then the area starts to scab over. However, the itching continues for about six weeks with me, and the purple scarring that remains takes months to fade away.

givenupgluten Explorer

Thank you SO much for being so thorough..as I really know nothing about this aspect of the disease. I know that not everyone has this reaction, and it's probably just a coincidence that this is happening to me now. But I wanted to understand it better. Whatever is happening on my legs looks pretty awful. Is it possible to have the terribly itchy skin, but it not be accompanied by the blisters,etc?

ravenwoodglass Mentor
Thank you SO much for being so thorough..as I really know nothing about this aspect of the disease. I know that not everyone has this reaction, and it's probably just a coincidence that this is happening to me now. But I wanted to understand it better. Whatever is happening on my legs looks pretty awful. Is it possible to have the terribly itchy skin, but it not be accompanied by the blisters,etc?

"Just recently I had a large area on my shin that was itchy and I scratched and it broke out =- It looks awful. "

You may have been doing that scratching as the blisters were forming and not noticed them. If you have a derm look at it he can biopsy BESIDE the lesions and if it is DH he will find antibodies in the adjacent tissue. As mentioned DH leaves distinctive purple scars. That is also a sign.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,930
    • Most Online (within 30 mins)
      7,748

    Mhp
    Newest Member
    Mhp
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AnnaNZ
      I forgot to mention my suspicion of the high amount of glyphosate allowed to be used on wheat in USA and NZ and Australia. My weight was 69kg mid-2023, I went down to 60kg in March 2024 and now hover around 63kg (just after winter here in NZ) - wheat-free and very low alcohol consumption.
    • AnnaNZ
      Hi Jess Thanks so much for your response and apologies for the long delay in answering. I think I must have been waiting for something to happen before I replied and unfortunately it fell off the radar... I have had an upper endoscopy and colonoscopy in the meantime (which revealed 'minor' issues only). Yes I do think histamine intolerance is one of the problems. I have been lowering my histamine intake and feeling a lot better. And I do think it is the liver which is giving the pain. I am currently taking zinc (I have had three low zinc tests now), magnesium, B complex, vitamin E and a calcium/Vitamin C mix. I consciously think about getting vitamin D outside. (Maybe I should have my vitamin D re-tested now...) I am still 100% gluten-free. My current thoughts on the cause of the problems is some, if not all, of the following: Genetically low zinc uptake, lack of vitamin D, wine drinking (alcohol/sulphites), covid, immune depletion, gastroparesis, dysbiosis, leaky gut, inability to process certain foods I am so much better than late 2023 so feel very positive 🙂    
    • lehum
      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
    • Hmart
      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
    • trents
      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So, do you get reactions every time you consume gluten? If you were to purposely consume a slice of bread would you be certain to develop the symptoms you describe?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.